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PODCAST

Everything You Know About Disability Is Wrong

Everything You Know About Disability is Wrong is a podcast for the disability community by the disability community, hosted by two disabled women. But if you’re not disabled, listen in to learn about real issues, celebrations, and conversations disabled people are having in their communities. Powered by Easterseals.

society & culture relationships

All Episodes

64:48

Annie Segarra on Medical Gaslighting and EDS: Her...

Everything You Know About Disability Is Wrong ·

2024/12/12

Navigating a medical system that dismisses your pain ignites a fire to advocate for others who are overlooked.Annie Segarra is an activist and content creator dedicated to disability rights, body positivity, and social justice. Annie opens up about her deeply personal experience living with Ehlers-Danlos Syndrome (EDS), discussing the emotional and physical toll of navigating a medical system that often dismisses or misdiagnoses those with chronic illnesses. She shares her frustrations with

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25:58

Just Between Us: All I Want is Real Portrayals in Film

Everything You Know About Disability Is Wrong ·

2024/12/09

Your co-hosts Lily Newton and Erin Hawley return with a candid "Just Between Us" segment on this episode of Everything You Know. They discuss the importance of authentic storytelling in media, using recent casting choices in "Wicked" and Disney adaptations as a jumping-off point. The hosts explore why representation isn’t enough without real inclusion and the need for self-accommodation to destigmatize accessibility. Lily and Erin also reflect on highlights from the past year, sharing their

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52:20

Advocacy and Identity: Madison Tevlin’s Creative Journey

Everything You Know About Disability Is Wrong ·

2024/11/26

Advocacy is not just about raising awareness; it’s about creating real change.Madison Tevlin is an actor, Host, Model, and Advocate. She is known for her impactful work in the "Assume That I Can" campaign for World Down Syndrome Day and her role in "Champions" alongside Woody Harrelson. Madison shares her wonderful journey and passion for music and storytelling.Madison talks about her upcoming podcast, "21 Questions," featuring stars like Paris Hilton and Nelly Furtado. Madison opens up

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62:55

Pamela Schuller on Mastering the Balance between...

Everything You Know About Disability Is Wrong ·

2024/11/12

Humor is a bridge to understanding; it transforms conversations about disability into moments of connection.Pamela Schuller is a passionate disability advocate and stand-up comedian. Pamela shares her journey with Tourette syndrome and how humor has helped her tackle tough conversations about disabilities.Pamela opens up about finding the right balance between vulnerability and oversharing, the challenges of accommodating disabilities in public spaces, and her unexpected shift from stand-up

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75:34

Creative Ideas, Personal Brands, and Workplace...

Everything You Know About Disability Is Wrong ·

2024/10/15

“Accessibility isn’t just a feature; it’s a necessity for truly inclusive spaces.”Rachel Lowenstein, Founder and Culture Expert at Rachel Lowenstein Consulting and Divergent Convergent, joins Lily Newton and Erin Hawley on the show. Rachel talks about why neuro-inclusion is a crucial part of workplace accessibility and how her work with Divergent Convergent is making a difference. Rachel also opens up about her own experiences with finding her true identity, avoiding burnout, and shifting

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66:45

Finding Balance and Owning Your Story with Jennifer...

Everything You Know About Disability Is Wrong ·

2024/10/08

"The journey of self-acceptance is ongoing and deeply personal."Jennifer Gasner, author of *My Unexpected Life: Finding Balance Beyond My Diagnosis*,shares her journey of self-acceptance and understanding of her own identity. She explores the importance of supportive workplaces, the power of tell your own story, and addressing misconceptions about disability.Jennifer also highlights her personal growth in accepting help and fostering inclusivity. Her story is a powerful testament to

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62:16

Amplifying Autistic Voices: Lauren Melissa Ellzey on...

Everything You Know About Disability Is Wrong ·

2024/09/17

Author and Activist, Lauren Melissa, shares a powerful story of resilience and creativity. Diagnosed with autism in her twenties, Lauren Melissa turned the challenges of the COVID-19 pandemic into an opportunity, hand-writing a novel that was later accepted by Bold Strokes Books. Based in New York City, she passionately advocates for the representation of queer, BIPOC, and disabled individuals in fiction, bringing to life diverse, multiracial, neurodivergent, and queer characters. Her

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55:16

Oliver Scheier: 19-Year-Old Filmmaker, Artist, and...

Everything You Know About Disability Is Wrong ·

2024/08/27

"I don't concern myself with what they get wrong. I like to just show up as myself and then let any preconceived notion, if there is any, flow like, float away”Oliver Scheier, is a 19-year-old filmmaker, artist, and sophomore in college. Oliver discusses his approach to authenticity in both his work and personal life. He shares insights on his short film "Read a Page," his journey as a young artist, and how he navigates the perceptions of others.Key Moments00:00 Embracing individuality13:01

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25:04

Understanding Disability Through Community, Books,...

Everything You Know About Disability Is Wrong ·

2024/08/20

Your co-hosts Erin & Lily have a special in-person segment for the first time ever on the podcast. They Kick things off by discussing the significance of Disability Pride Month and the joys of creating content together as friends who are both disabled.They also discuss some light-hearted topics like newfound interests—Erin’s evolving relationship with pizza and Lily’s dive into the world of fantasy books, including some great disability representation in certain titles. They get real

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65:01

Redefining Accessibility: Jenna Bainbridge’s Impact...

Everything You Know About Disability Is Wrong ·

2024/08/06

In this episode, hosts Erin and Lily interview Jenna Bainbridge, an actress, singer, and accessibility advocate. Jenna shares her journey as the first wheelchair user to perform in a new musical on Broadway, debuting in the award-winning "Suffs." She discusses her career and daily life as an ambulatory wheelchair user, challenging misconceptions and emphasizing the importance of accessibility and personal freedom.Jenna explains how her wheelchair enhances her ability to navigate New York

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33:22

Just Between Us: Disability Pride Month

Everything You Know About Disability Is Wrong ·

2024/07/31

Your co-hosts Erin & Lily have a special segment today called “Just Between Us!” Today’s episode is all about the importance of Disability Pride Month. They share their thoughts on why it's crucial to celebrate being disabled and not just focus on ableism. Erin & Lily also discuss how pride in their identities as disabled people and as friends empowers them. We hope you enjoy today’s real (and unfiltered) episode. Happy Disability Pride Month!Timestamps04:06 Claiming pride in queer

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63:27

Amanda McGrory’s Insights on Adaptive Sports and...

Everything You Know About Disability Is Wrong ·

2024/07/23

Amanda McGrory, a four-time Paralympian and seven-time Paralympic medalist shares her journey as an elite athlete. She addresses the pervasive stereotypes and misconceptions surrounding disabled athletes and how they are often misrepresented in the media.Throughout the conversation, the importance of authentic representation in media and sports is highlighted, focusing on the significance of community support. She discusses her struggles with eating disorders and finding community through

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53:27

Learning Self-Love: Chelsea Bear Discusses Disability...

Everything You Know About Disability Is Wrong ·

2024/07/09

In this episode, Chelsea Bear, a content creator and disability advocate, shares her experiences and challenges as a lifestyle influencer. Chelsea highlights the importance of embracing her disability wholeheartedly and the sense of community and validation it brings. She discusses how Disability Pride Month encourages individuals to own their disabilities proudly, even on tough days.The co-hosts Erin and Lily resonate with Chelsea's experiences, sharing their struggles and triumphs in

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57:34

Adventures Around the World: Cory Lee on Accessible...

Everything You Know About Disability Is Wrong ·

2024/06/25

In this episode, Cory shares his experiences exploring the world as a wheelchair user, from group trips to international destinations to navigating the challenges of air travel accessibility. Learn about Cory’s blog, Curb Free with Cory Lee, and its company non-profit, The Curb Free Foundation, which funds dream trips for wheelchair users. Discover practical tips on accessible travel planning, insights on preparing for travel obstacles, and the importance of building a strong community for

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59:16

Redefining Queer Spaces: Spencer West's Accessible...

Everything You Know About Disability Is Wrong ·

2024/06/18

In today’s episode, we have Spencer West! From discussing the challenges of accessing queer spaces and nightlife to setting boundaries as a disabled content creator, this conversation sheds light on pivotal issues affecting the LGBTQ+ and disabled communities. Spencer shares his personal experiences, advocacy work, and the role of social media in promoting awareness.Don't miss this engaging episode with Spencer West!Timestamps00:00 Spencer West: Keynote speaker, activist, trailblazer,

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59:31

Advocating for Accessibility and Equity: A...

Everything You Know About Disability Is Wrong ·

2024/06/11

In this episode, hosts Lily Newton and Erin Hawley sit down with actor, model, content creator, and CEO of the lifestyle brand Live Solo, Lolo Spencer. Known for her advocacy work and trailblazing efforts in changing the narrative around disability, Lolo shares her incredible journey and vision for a more inclusive world.We also explore the broader implications of representation in Hollywood and the importance of community building, with Lolo emphasizing the need for disabled actors to be

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69:46

The Laughing Edge: Changing expectations through...

Everything You Know About Disability Is Wrong ·

2024/05/29

In today's episode, Erin and Lily are joined by Tina Friml, a New York-based comedian who shares her unique experiences navigating the comedy scene. We'll explore the misconceptions about disabilities, the role of humor and radical self-acceptance, and turning casual ableism into comedy gold.From the sometimes illogical things Tina can and cannot do, to her decision to only perform in ADA accessible venues, this episode is packed with insights.Get ready to tune in, laugh, and learn as we

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54:19

Rawan Tuffaha Unveils the Artistic Journey of ASD...

Everything You Know About Disability Is Wrong ·

2024/05/14

In today's episode, your hosts Lily Newton and Erin Hawley have a heartfelt conversation with our guest, Rawan Tuffaha. Rawan is the lead singer of the ASD Band, a group composed entirely of autistic musicians, which shines a light on talent within the autistic community. Besides her music career, Rawan is an advocate for autism acceptance and disability employment, challenging misconceptions and pushing for more inclusive practices.Join us as we delve into Rawan's journey, from forming the

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70:59

Navigating Independence and Relationships: Subodh and...

Everything You Know About Disability Is Wrong ·

2024/04/30

Navigating Independence and Relationships: Subodh and Aarti's Journey on EYK | Season 3, Episode 2Welcome to a special episode of Everything You Know, presented by Easterseals. Today, we've got a truly enlightening conversation lined up with our guests, Subodh Garg and his sister, Aarti Garg. Subodh, a charismatic individual diagnosed with autism at the age of 3, shares his journey towards independence, his exceptional memory, and his experiences with dating and social interactions. Aarti,

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74:23

Gaelynn Lea - Everything You Know About Disability is...

Everything You Know About Disability Is Wrong ·

2024/04/16

Join our hosts, Lily Newton and Erin Hawley, as they sit down with the riveting Gaelynn Lea, whose voice and violin strings resonate with the force of change, challenging our perceptions of ability and accessibility.Imagine being told that your dream career is not designed for someone like you. Now picture breaking that mold and redefining what is possible. Gaelynn Lea did just that. Born with a physical disability, Gaelynn transformed the way the violin is played, gripping it like a cello

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53 results

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