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PODCAST

Everything You Know About Disability Is Wrong

Everything You Know About Disability is Wrong is a podcast for the disability community by the disability community, hosted by two disabled women. But if you’re not disabled, listen in to learn about real issues, celebrations, and conversations disabled people are having in their communities. Powered by Easterseals.

society & culture relationships

All Episodes

60:31

Dance Through It: The Story Behind “Disabled” and a...

Everything You Know About Disability Is Wrong ·

2025/11/13

Pop artist and model Austin Halls joins Lily and Erin for a funny, candid conversation about music, face difference, and building a career that actually works. Born with Möbius syndrome (complete facial paralysis at birth), Austin talks about growing up with media that coded face differences as villainy, and how that shaped first impressions, assumptions, and everyday interactions.Austin’s answer is art and access. His dance-pop track “Disabled” flips the script with a hook that invites

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67:39

Beyond the Binary: Maria Pendolino on Disability, Fat...

Everything You Know About Disability Is Wrong ·

2025/10/30

Voice actor Maria Pendolino joins Lily for an episode that challenges the narrow way society views disability. Maria shares her experiences as an ambulatory mobility-aid user, explaining how fluctuating conditions are often misunderstood or erased in media and medicine. With candid honesty, she connects her journey of psoriatic arthritis, knee replacements, and self-advocacy to building a career that truly works for her body, through voiceover and a fully accessible home studio.The

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52:06

Start Now: Matthew Shapiro on Advocacy & Workplace...

Everything You Know About Disability Is Wrong ·

2025/10/16

Matthew Shapiro, founder and CEO of Six Wheels Consulting, joins hosts Lily Newton and Erin Hawley for a candid conversation about language, work culture, and the everyday practice of access. Matthew unpacks how assumptions show up in daily life, why “disabled” is a valuable identifier, and what it means to balance personal energy with public advocacy.The conversation moves from nuance in calling out ableism to concrete advice for workplaces. Matthew shares practical examples that help

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23:49

Just Between Us: Disability Language, Pride & Power

Everything You Know About Disability Is Wrong ·

2025/10/09

Your co-hosts Erin & Lily bring another “Just Between Us” conversation to Everything You Know About Disability Is Wrong. This time, they’re diving into disability language: why euphemisms like “differently abled” miss the mark, how identity-first vs. person-first language is used, and why words matter but shouldn’t overshadow the bigger fights for access, benefits, and equity.They share stories from their own journeys—how language has shaped their identities, how it can affirm or erase,

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55:19

Disability as Strategy: Dylan M. Rafaty on...

Everything You Know About Disability Is Wrong ·

2025/09/23

Dylan M. Rafaty, President and CEO of the North Texas Disability Chamber, joins Lily Newton and Erin Hawley to talk about disability acceptance and advocacy. With clarity and conviction, Dylan outlines why disability should never be treated as an act of charity. Instead, he frames it as a strategic investment that drives innovation, empowers communities and strengthens organizations from within.Dylan reflects on his personal experience navigating the world as someone who is deaf and hard of

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55:58

Showing Up Authentically: Amanda Steijlen on...

Everything You Know About Disability Is Wrong ·

2025/07/31

Amanda Steijlen is a therapist, lifestyle creator, and founder of Wheelie Big Dreams, a nonprofit that helps people with disabilities pursue their goals. She also leads True Bloom Therapy, supporting clients through life transitions with strategies that are both practical and grounded.In this episode, Amanda shares her path to mental health work, the ways we misunderstand independence, and how caregiving can be reciprocal. She speaks candidly about online self-image, burnout, and the

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57:30

Confidence Takes Time: Courn Ahn on Disability,...

Everything You Know About Disability Is Wrong ·

2025/06/10

Courn Ahn is a designer, content creator, and advocate who cares deeply about accessibility and social justice. Their work focuses on helping people see disability, identity, and community support in a new way, especially through the lens of queerness, race, and being neurodivergent.As a Queer, nonbinary, mixed-race Korean creative, Courn shares from personal experience and speaks honestly about the challenges that come with being disabled in a world full of assumptions. Courn's journey has

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59:46

From Runway to Real Life: Jillian Curwin on Fashion,...

Everything You Know About Disability Is Wrong ·

2025/05/15

Jillian Curwin, Director of Communications for the Mascots Matter Campaign, is an advocate, storyteller, and content creator reshaping the conversation around disability, access, and representation. In this episode of Everything You Know About Disability Is Wrong, she joins hosts Lily Newton and Erin Hawley for an insightful discussion.Jillian shares her experience as a little person navigating an often inaccessible world, particularly in the fashion industry. She reflects on what sparked

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65:49

Kids Need Neurodivergent Characters: Kyla and...

Everything You Know About Disability Is Wrong ·

2025/04/22

Kyla and Jedidiah Mora are a neurodivergent couple, writers, and advocates. They are the authors of “Today My Brain Is a Dinosaur”, a popular children’s book that helps kids understand autism, ADHD, and different ways of thinking. Their journey started with their own diagnoses of autism and ADHD as adults. After years of confusion and challenges, they found clarity, self-acceptance, and a desire to help others feel less alone. Kyla is a high school teacher and journalist who is passionate

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68:22

From Wall Street to Changemaker: Tiffany Yu’s Story...

Everything You Know About Disability Is Wrong ·

2025/04/01

Tiffany Yu is a disability advocate, entrepreneur, and author of The Anti-Ableist Manifesto. She started her career at Goldman Sachs before becoming a leader in disability inclusion. After acquiring a disability as a child, she struggled with loneliness and self-doubt. Over time, she turned her experiences into advocacy and founded Diversability, a community that celebrates disability pride and fights stigma. She works to break barriers, share personal stories, and create more inclusive

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58:43

Exploring the World Through Sensory Experiences with...

Everything You Know About Disability Is Wrong ·

2025/03/18

Experiencing the world isn’t just about sight, it's about tasting, touching, hearing, and smelling, too. Using all our senses helps us connect more deeply to the world around us.Dr. Hoby Wedler is a chemist, entrepreneur, and advocate for inclusivity. He holds a Ph.D. in physical organic chemistry from UC Davis and founded the Wedland Group to explore how our senses shape emotions and connections.He creates unique food and drink experiences that help people appreciate the little things in

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64:38

Entrepreneurship, Education, and Knowing Your Value...

Everything You Know About Disability Is Wrong ·

2025/02/25

"Just because you can’t see it, doesn’t mean it’s not real."Onyinye Udokporo, CEO and founder of Enrich Learning, dives into a conversation that’s both eye-opening and deeply personal, exploring the differences between UK and US disability cultures. From how each country approaches accessibility and support to the ways people talk about neurodivergence, it’s clear that culture shapes the disability experience in ways we don’t always realize.A big theme in this discussion is the power of

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63:22

The Power of Gaming: Richard Jacobs on Community,...

Everything You Know About Disability Is Wrong ·

2025/01/14

Richard Jacobs is a dedicated gamer and member of the esports team QuadGods. He discusses his journey of resilience, the pivotal role gaming plays in his life, and the misconceptions he faces as a disabled individual.Richard shares about the power of community and how his streaming “family” has allowed him to harness his competitive spirit and embrace his emotions. Key Moments13:32 - Inspiration and belonging.21:57 - Supports family through streaming.31:24 - Prefers controller over

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55:55

The Advocacy Power of Humor: Steven Verdile and The...

Everything You Know About Disability Is Wrong ·

2024/12/20

Humor can educate and challenge, but it must highlight issues without mocking the disability community. In this episode, we explore how satire can play into advocacy and ask, “What exactly makes good satire?”. Steven Verdile, Founder of Squeaky Wheel Media, shares his insights on the critical intersection of disability and content creation. Steven discusses the significance of focusing on specific issues, particularly those impacting the disabled community, and the protective measures taken

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64:48

Annie Segarra on Medical Gaslighting and EDS: Her...

Everything You Know About Disability Is Wrong ·

2024/12/12

Navigating a medical system that dismisses your pain ignites a fire to advocate for others who are overlooked.Annie Segarra is an activist and content creator dedicated to disability rights, body positivity, and social justice. Annie opens up about her deeply personal experience living with Ehlers-Danlos Syndrome (EDS), discussing the emotional and physical toll of navigating a medical system that often dismisses or misdiagnoses those with chronic illnesses. She shares her frustrations with

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25:58

Just Between Us: All I Want is Real Portrayals in Film

Everything You Know About Disability Is Wrong ·

2024/12/09

Your co-hosts Lily Newton and Erin Hawley return with a candid "Just Between Us" segment on this episode of Everything You Know. They discuss the importance of authentic storytelling in media, using recent casting choices in "Wicked" and Disney adaptations as a jumping-off point. The hosts explore why representation isn’t enough without real inclusion and the need for self-accommodation to destigmatize accessibility. Lily and Erin also reflect on highlights from the past year, sharing their

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52:20

Advocacy and Identity: Madison Tevlin’s Creative Journey

Everything You Know About Disability Is Wrong ·

2024/11/26

Advocacy is not just about raising awareness; it’s about creating real change.Madison Tevlin is an actor, Host, Model, and Advocate. She is known for her impactful work in the "Assume That I Can" campaign for World Down Syndrome Day and her role in "Champions" alongside Woody Harrelson. Madison shares her wonderful journey and passion for music and storytelling.Madison talks about her upcoming podcast, "21 Questions," featuring stars like Paris Hilton and Nelly Furtado. Madison opens up

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62:55

Pamela Schuller on Mastering the Balance between...

Everything You Know About Disability Is Wrong ·

2024/11/12

Humor is a bridge to understanding; it transforms conversations about disability into moments of connection.Pamela Schuller is a passionate disability advocate and stand-up comedian. Pamela shares her journey with Tourette syndrome and how humor has helped her tackle tough conversations about disabilities.Pamela opens up about finding the right balance between vulnerability and oversharing, the challenges of accommodating disabilities in public spaces, and her unexpected shift from stand-up

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75:34

Creative Ideas, Personal Brands, and Workplace...

Everything You Know About Disability Is Wrong ·

2024/10/15

“Accessibility isn’t just a feature; it’s a necessity for truly inclusive spaces.”Rachel Lowenstein, Founder and Culture Expert at Rachel Lowenstein Consulting and Divergent Convergent, joins Lily Newton and Erin Hawley on the show. Rachel talks about why neuro-inclusion is a crucial part of workplace accessibility and how her work with Divergent Convergent is making a difference. Rachel also opens up about her own experiences with finding her true identity, avoiding burnout, and shifting

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66:45

Finding Balance and Owning Your Story with Jennifer...

Everything You Know About Disability Is Wrong ·

2024/10/08

"The journey of self-acceptance is ongoing and deeply personal."Jennifer Gasner, author of *My Unexpected Life: Finding Balance Beyond My Diagnosis*,shares her journey of self-acceptance and understanding of her own identity. She explores the importance of supportive workplaces, the power of tell your own story, and addressing misconceptions about disability.Jennifer also highlights her personal growth in accepting help and fostering inclusivity. Her story is a powerful testament to

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47 results

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