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PODCAST

The Eye Believe Podcast

A Cure In Sight

Join A Cure in Sight, an ocular melanoma foundation, in sharing stories + raising awareness for OM patients and their families. Here we share information and insights on treatment, research, and living with ocular melanoma.

health & fitness medicine

All Episodes

01:05:35

Barriers to Immunotherapy: Success for Uveal Melanoma...

The Eye Believe Podcast ·

2022/04/22

A Cure in Sight, in collaboration with the Ocular Melanoma Foundation, is joined by TriSalus Life Sciences to bring you a presentation on Barriers to Immunotherapy: Success for Uveal Melanoma Liver Metastases. The slides from this presentation can be found to follow along here on Youtube. In this presentation, we will be hearing from three of the experts involved in the PERIO-01 Clinical Trial. The Pressure-Enabled Regional Immuno-Oncology (PERIO-01) clinical trial is studying a new

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21:18

Boundaries and Mental Health

The Eye Believe Podcast ·

2022/04/08

The host of The Eye Believe Podcast, Danet Peterson, shares some ideas from Cait, @thecancercouncelor on Instagram, on setting boundaries when faced with the diagnosis of ocular melanoma, and the accompanying seasons you may encounter. See Cait’s post re-shared by @acureinsight here for the visual of ideas to save and share. Setting healthy boundaries for yourself is critical in maintaining your mental health as a patient with a long term diagnosis. ANNOUNCEMENTS: SWING FOR SIGHT is

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30:35

Living with OM, a Brown-Eyed Story with Yvonne

The Eye Believe Podcast ·

2022/03/25

The Eye Believe Podcast is joined by Yvonne Kirondomara to share her story thus far with ocular melanoma. She speaks of her unique Brown-Eyed Story, because as many of us know, this cancer is rare, but it is most common in blue and green eyed patients. "I was surprised on December 12, 2019 when I was told that I had a rare cancer in my eye called Choroidal Melanoma. What was that called again? I was taking notes as my doctor was telling me my diagnosis. It was completely shocking to hear just

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50:27

Coping with Loss of Control in a Cancer Diagnosis

The Eye Believe Podcast ·

2022/03/11

A Cure in Sight is joined in The Eye Believe Podcast by Arielle Farkash, a patient diagnosed with ocular melanoma in Nov 2018. Three things she would share with anyone beginning their journey, or in a hard place: Focus on what you know–don’t get caught up in the stories of what if. Ask ALL the questions–they’re all valid! It may be hard now, but it DOES get better with time. All things good and bad DO come to an end eventually; when it’s hard, hang on and when it’s good, lean in and be

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43:00

Why See a Uveal Melanoma Oncologist with Dr. Justin...

The Eye Believe Podcast ·

2022/02/28

Topic: Why see a uveal melanoma oncologist and how to talk with your oncologist about clinical trials? A Cure in Sight is joined by Dr. Justin Moser, a medical oncologist in the Phoenix, Arizona area. He shares helpful tips to keep in mind when having discussions with a medical oncologist, and why it’s vital for patients to be seen and under the watch and care of a medical oncologist either familiar with uveal melanoma protocols for scans and care, or someone who is willing to learn from another

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17:20

The Invisible Burdens of Ocular Melanoma

The Eye Believe Podcast ·

2022/02/24

In today's episode, Danet talks about the invisible burdens of ocular melanoma. The graphics linked in the social media posts below may be helpful to you to share with others to communicate what you are grappling with on a day to day basis. You may often feel alone in this diagnosis: Loved ones and friends want to support you, but you don’t have the words to convey why you need support, or what is challenging. If all you can do today is acknowledge that you have a lot of emotions, a lot of

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01:02:13

Cancer & Leadership with Tanya Gibson

The Eye Believe Podcast ·

2022/01/28

*Don’t forget to register for our first ever annual STEPS FOR SIGHT Challenge! Register yourself and your team at the link below--or donate to the overall goal: https://www.charityfootprints.com/sight/eventdetails A Cure in Sight is joined by Tanya Gibson, sharing her journey since being diagnosed in March 2021 with choroidal melanoma. She summarizes her story below: Tanya Gibson Cancer & Leadership I remember the moment I knew that I was going to hear “you’ve got cancer”. It was the day after

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48:26

Living with Ocular Melanoma with Ziva (Anne) Osborn

The Eye Believe Podcast ·

2022/01/09

*Don’t forget to register for our first ever annual STEPS FOR SIGHT Challenge! Register yourself and your team at the link below: https://www.charityfootprints.com/sight/eventdetails ******************************************************** A Cure in Sight is joined by Anne Osborne, an OM patient and also therapist, sharing her journey with Ocular melanoma thus far. She shares about the journey of being a patient with ocular melanoma, and also a rare daughter of another patient, her mom, who was

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11:34

SPECIAL ANNOUNCEMENT: STEPS FOR SIGHT!

The Eye Believe Podcast ·

2021/12/28

SAVE THE DATE Don’t forget to register for our first ever annual STEPS FOR SIGHT Challenge! Register yourself and your team at the link below: https://www.charityfootprints.com/sight/eventdetails DEADLINE TO REGISTER YOURSELF/YOUR TEAM is JAN 15! Don't wait! We start tracking our 7K steps a day on Jan 1-31!! Take steps toward a cure with us! Read or to learn more about our first annual #stepsforsight2022 awareness challenge (and r e g i s t e r!) Just in time for the new year, those

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53:58

Understanding Grief with Emily Bingham

The Eye Believe Podcast ·

2021/12/18

*Don’t forget to register for our first ever annual STEPS FOR SIGHT Challenge! Register yourself and your team at the link below: https://www.charityfootprints.com/sight/eventdetails DEADLINE TO REGISTER YOURSELF/YOUR TEAM is JAN 15! Don't wait! We start tracking our 7K steps a day on Jan 1-31!! Take steps toward a cure with us! A Cure in Sight is joined by Emily Bingham to discuss the topic of grief. Emily is a grief coach, fitness professional, mother of two, and widow as of March 2019, when

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57:23

An Interview with Dr. Harbour, leading uveal melanoma...

The Eye Believe Podcast ·

2021/12/09

*Don’t forget to register for our first ever annual STEPS FOR SIGHT Challenge! Register yourself and your team at the link below: https://www.charityfootprints.com/sight/eventdetails DEADLINE TO REGISTER YOURSELF/YOUR TEAM is JAN 15! Don't wait! We start tracking our 7K steps a day on Jan 1-31!! Take steps toward a cure with us! A Cure in Sight is joined by Dr. Harbour in an interview “from the vault” that we wanted to bring back to you this month as a special gift! J. William Harbour, M.D., is

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01:02:05

Living with OM and Metastatic Uveal Melanoma with...

The Eye Believe Podcast ·

2021/12/01

A Cure in Sight is joined by Ashlely McCrary, a patient with Ocular Melanoma who is part of the Auburn, Alabama grouping of patients. Ashley shares her journey with ocular melanoma, beginning with her diagnosis in 2012 at age 42. She has been a constant and passionate advocate for raising funds to research the cause of ocular melanoma, cast light on this rare disease, and advocate for research for a cure! Despite being diagnosed with mets last year, Ashley brings hope to the journey of fighting

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15:36

10 Tips for Newly Diagnosed Patients

The Eye Believe Podcast ·

2021/11/23

Today, hear 10 tips compiled from our website and patient feedback to help newly diagnosed patients in navigating and understanding their initial diagnosis, especially during the first few visits with a doctor, namely: Take notes during your appointments. Stay off google and ask questions of experts! Be prepared for long appointments, especially at first: Bring a light jacket, water, and a snack. Advocate for yourself! Ask for medical oncology referrals Consider a biopsy Lean into social

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48:34

Living with Pediatric Ocular Melanoma with Presley...

The Eye Believe Podcast ·

2021/10/27

A Cure in Sight is joined by Mila and her mom, Kezia, as well as Presley and his mom Stephanie to speak to their journey with ocular melanoma. Here’s a short snippet of each of their stories--tune into the podcast to listen fully! Be sure to subscribe, and share this episode with your friends and family on social--and we would LOVE it if you would consider making a donation to ACIS, or creating a fundraiser on social media to help us raise money for a cure. Meet Mila, a 14 year old who was

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41:22

Living with Ocular Melanoma with Paige Thompson

The Eye Believe Podcast ·

2021/10/22

A cure in sight is joined by Paige Thompson, in an interview about her 4 year plus journey so far with Ocular Melanoma. After being told she was too young to need her eyes dilated, Paige scratched her left eye. This thankfully led to her ophthalmologist dilating both eyes and eventually referring her to further specialists who diagnosed her with Ocular Melanoma in July of 2017, at the age of 27. She shares that her biggest gifts in this journey have been presence with her life now, the people

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54:04

Living with Ocular Melanoma with Carrie Younger-Howard

The Eye Believe Podcast ·

2021/09/20

A Cure in Sight is joined by Carrie Younger-Howard, a patient in Arizona living with ocular melanoma. She expresses a piece of her journey below; tune in and listen as you’re able, then be sure to share her story with those you know in hopes of raising more awareness and funding for researching and finding a cure. ••••••••••••••••••••••••••••••••••••••••••••••••• “It’s malignant. You have cancer.” My stomach clenched. I sat in shock as I tried to comprehend those heavy words. “Eye. Optic

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01:08:20

Understanding Biopsies with Dr. Scott Walter

The Eye Believe Podcast ·

2021/09/09

A Cure in Sight is joined by Dr. Scott Walter for a discussion on the importance of biopsies, and how they are being used in the field to diagnose ocular melanoma early on, as well as provide information for how patients should proceed after treatment with scan protocols. He explains the process of the biopsy, the risks involved, and what he does to ensure minimal risk in the procedure, as well as the importance of the biopsy in diagnostic information to treat the tumor initially, or to proceed

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18:20

Devyn Anderson’s Journey with Ocular Melanoma

The Eye Believe Podcast ·

2021/08/25

A Cure in Sight is joined by Devyn Anderson, who speaks about her journey with ocular melanoma. She was diagnosed at age 23, in October of 2013. At such a young age, she was shell shocked to receive this diagnosis, and felt very “in the dark” as to what her diagnosis meant. Within a week and a half of diagnosis her eye was enucleated and she continued through her life, getting married within a few years of diagnosis. Despite such a traumatic diagnosis at a young age, she has maintained an

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01:05:05

Steven Russell Living with Ocular Melanoma

The Eye Believe Podcast ·

2021/08/08

I was diagnosed with Choroidal Melanoma in March of 2008. My optometrist found a freckle in my eye at a routine exam. I wasn’t going to say anything, but I eventually told her that I had been seeing a flash of light in my right eye for several months. She sat me back down in the chair and took a much longer, more careful look. She said that she wasn’t qualified to diagnose anything, but that I had better have someone else take a look. She sent me to a retina specialist the next day. She actually

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33:18

OM Story Share: Diana and Barbara BAP1 Interview

The Eye Believe Podcast ·

2021/07/28

•Barbara's story• I was diagnosed with OM in April 2015. My optometrist found the tumor on a routine eye exam, and then referred me to the retinal specialist. I had a medium sized tumor with plaque treatment (4 days). I had the muscle released to insert the plaque. I didn't have tumor testing because insurance wouldn't pay for it in 2015. I have 20/40 vision in my right eye. I had a cataract removed, a laser surgery and now get regular Avastin shots. I was tested for the inherited BAP1 tumor

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