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PODCAST

The Heart of Hospice Podcast

Hosted by Helen Bauer, BSN RN CHPN

The Heart of Hospice podcast is dedicated to helping personal and professional caregivers who are caring for someone with serious illness. We"re here to provide information and education so people can make informed choices about end of life care.

health & fitness medicine

All Episodes

00:12:59

Empathy.com Supports Grievers When They Need It the Most

The Heart of Hospice Podcast ·

2022/07/22

Navigating the maze of responsibilities following a death can be overwhelming. Empathy.com can help. The Empathy founders know that loss-related tasks are many, ranging from writing an obituary to closing out business accounts and subscriptions. On the Empathy website, you’ll find resources to help with choosing a funeral home and celebrant, writing a eulogy, and dealing with issues related to the will. Empathy Care Specialists are available to offer guidance and services to walk through the

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00:58:05

How to Do Death Better with Dr. BJ Miller, Episode 113

The Heart of Hospice Podcast ·

2022/07/15

We’re honored to feature hospice physician and innovator BJ Miller in an amazing discussion about strengths, trends, and the future of end-of-life care. Dr. Miller is an advocate, thought-leader, and leader on the front lines of end-of-life care. He has been a physician for 19 years and has counseled over 1,000 patients and family members. This vast experience has led him to understand what people really need when dealing with difficult health situations. His TED Talk, What Really Matters

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00:22:07

Know Your Patient Rights Series 5, Heartbeat Episode 294

The Heart of Hospice Podcast ·

2022/07/08

In the final episode of our Patient Right series, we’re talking about the right to choose medications, equipment, and who makes visits to the home. The care that’s provided for a hospice patient is collected into something called a Plan of Care. That Plan of Care includes every intervention the hospice team provides, including medications, any medical equipment that’s needed, and which disciplines on the hospice team will make visits with the patient. There’s a lot of information in a Plan

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00:56:17

How to Care for Your Team Beyond the Ordinary with...

The Heart of Hospice Podcast ·

2022/07/01

Meet RN Keisha Jones and Dr. Michelle Owens of Hospice Austin and hear how they take extraordinary care of their hospice team with a debriefing program. . After seeing signs of accelerated compassion and moral fatigue in their hospice clinical team in 2021, Keisha and Michelle realized there was more needed beyond pizza parties. They put their heads together to create a debriefing program. As director of the clinical team, Keisha saw that nurses and other clinicians were deeply involved with

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00:13:53

Know Your Patient Rights Series #4, Heartbeat Episode...

The Heart of Hospice Podcast ·

2022/06/24

Hospice patients have the right to start and stop hospice care. Your hospice, your choices. After a physician determines that a patient has a “terminal prognosis” - a six-month life expectancy, a patient can be admitted to hospice if the patient chooses to start, or “elect”, hospice. The patient might still refuse to start hospice. There are numerous reasons why that might happen. Feeling like hospice is giving up hope, waiting for test results, or wanting to pass a milestone anniversary or

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00:08:04

Know Your Patient Rights Series #3, Heartbeat Episode...

The Heart of Hospice Podcast ·

2022/06/17

In episode 3 of our Patient Rights series, we’re talking about the right to choose a physician to manage a patient’s care while on hospice. When receiving hospice care, the patient or decision-maker has the right to choose which physician will manage care. The hospice agency is required to let the patient know he can choose an “attending physician”, a doctor who works alongside the hospice medical director and the hospice interdisciplinary team. Patients often ask a doctor who’s been their

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00:51:13

How to Be the Best Caregiver for Your Loved One with...

The Heart of Hospice Podcast ·

2022/06/15

Caregiving for someone with Alzheimer’s or dementia holds its special challenges. Jennifer Fink of the Fading Memories Podcast is with us to share her caregiving experience. Jennifer became the caregiver for her mom after the death of her dad. Experiencing all the frustration and challenges, Jennifer looked for podcasts that could help. After not finding what she needed, Jennifer launched the Fading Memories podcast. The podcast content is designed to help anyone who is providing care for

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00:13:30

Know Your Patient Rights Series #2, Heartbeat Episode...

The Heart of Hospice Podcast ·

2022/06/10

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00:08:24

Know Your Patient Rights Series #1 - Heartbeat...

The Heart of Hospice Podcast ·

2022/06/03

A common myth about hospice is that patients and families don’t have any choices once hospice care starts, so we’re talking about all the rights patients really do have. Don't miss this 5 part series! It’s vital that both consumers and providers of hospice care know what rights the patient (or the responsible decision-maker) has. Those rights are real and every agency serving seriously ill patients should provide a list to their patients and caregivers. We’re highlighting some of the most

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00:43:31

Hospice Nurse Julie is the New TikTok Phenomenon

The Heart of Hospice Podcast ·

2022/06/01

Who knew that TikTok videos about death and dying would gain 800,000 followers? Hospice Nurse Julie is our guest, talking about why her hospice videos have gone viral, and what she finds meaningful about working in end-of-life care. RN Julie McFadden started making the videos, never dreaming that four days later so many people would connect with her content. As a hospice nurse, Julie has heard all the questions from patients and families dealing with serious illness. Topics of her videos

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00:16:17

What You Need to Know About Bereavement Services,...

The Heart of Hospice Podcast ·

2022/05/27

Bereavement care is part of hospice, but what exactly is it, who does it, and what should it look like? Hospice agencies in the U.S. are required to offer bereavement services to families and loved ones of patients who die on hospice service. For up to 13 months after the death, families receive support for their grief. It can come in many different forms, depending on the individual needs of the family. The Bereavement Plan of Care is written according to how the family is coping with the

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00:16:00

Getting Back to the Basics of Quality Self Care,...

The Heart of Hospice Podcast ·

2022/05/20

How's your self-care these days? We're getting back to the basics of care of body, mind, and spirit. Maybe your self care got off track during the pandemic, but it’s always a good time to do a care inventory. It’s important to ask yourself 5 things about your self care: 1) Is it affordable? 2) Is it sustainable? 3) Is it enjoyable? 4) Is it flexible? 5) Is it actionable? Here’s what we know about self care. You have to like what you choose to do (enjoyable). You might need to change

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00:41:25

How to Create Meaningful Care with CareStory, Episode...

The Heart of Hospice Podcast ·

2022/05/15

Certified Dementia Practitioner Nicole Shute is talking with us about CareStory and its mission to make caring a collaborative effort between caregivers and families. According to the CareStory website, CareStory is “a non-medical digital solution approach to bridge the gap between aging populations, their families, and caregivers. It provides individualized holistic person-centered care for senior residents and just-in-time support to caregivers by engaging families through the use of smart

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00:15:37

How to get the Best Hospice Care with Therapies,...

The Heart of Hospice Podcast ·

2022/05/13

We’re clearing up the confusion about using therapies (physical, speech, and occupational) for hospice patients. It’s one of the confusing issues in hospice - whether therapy modalities can be used in end of life care. The truth is that PT, ST, and OT can be utilized in hospice. The goal of these therapies is not rehabilitation or long-term strengthening. The real goal for each of these therapies is enhancing quality of life, focusing on education of the patient and caregivers, and teaching

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00:19:54

How to Make Solo Caregiving Easier, Heartbeat Episode...

The Heart of Hospice Podcast ·

2022/05/06

Solo caregiving is a complicated job. Creating a caregiving village can make it easier. Over 54 million people across the U.S. are unpaid caregivers. They might provide care for a spouse or partner, child, friend, or parent. They might also be providing that care by themselves - a solo caregiver. One person caring for another is often a full time job, especially if there’s a serious illness or terminal diagnosis. So many factors come into play: health issues of the caregiver, physical

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01:11:13

Benjamin Kintisch Talks About Life Review: The...

The Heart of Hospice Podcast ·

2022/05/01

Humor and compassion overflow in our guest Benjamin Kintisch, hospice chaplain and director of Life Review: The Hospice Musical! Working with hospice patients as a spiritual counselor inspired Benjamin to tell his patients’ stories in songs that captivate the audience. Benjamin holds a Masters in Sacred Music and Cantorial degree, and has completed his fourth year of chaplaincy training, having served in both hospice and eldercare facilities. He serves in his community as a middle school

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00:23:56

How to Respect & Honor Other People's Hospice...

The Heart of Hospice Podcast ·

2022/04/29

Choosing hospice care can be a very difficult decision, whether it’s for yourself or someone you are about. It’s important to respect those choices. Most people who decide to utilize hospice care have experienced a serious illness. Sometimes there’s been a catastrophic health event that limits someone’s life expectancy. It’s easy to judge someone else’s choices from an outsider perspective. Even hospice and end of life professionals criticize the choice not to accept hospice care when the

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00:22:01

Learning How to Interpret the Language of Hospice,...

The Heart of Hospice Podcast ·

2022/04/22

Words, terms, and acronyms - it’s important to know how to speak the language to get the best quality hospice you can. When you’re in an unfamiliar situation, understanding the terms that are being used will help you to manage things better. There’s a lot of stress when someone is experiencing a serious illness, starting hospice, or communicating with a hospice interdisciplinary team. Professionals should use words that patients and caregivers understand, not leave them with more questions

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00:11:05

Are You Ready for National Healthcare Decisions Day?,...

The Heart of Hospice Podcast ·

2022/04/16

In recognition of National Healthcare Decisions Day 2022, we’re talking about advance care planning. What’s your plan for your healthcare and who have you told it to? National Healthcare Decisions Day was started in 2008 by attorney Nathan Kottkamp to encourage people to complete their advance care planning. Every year on April 16 (the day after Tax Day), National Healthcare Decisions Day is observed. It’s the perfect day to make your end of life plans. Develop your plan - think about your

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00:47:23

Sharing Meaningful Rituals with Hospice Nurse Pepper...

The Heart of Hospice Podcast ·

2022/04/15

Hospice nurse and author Pepper Cappuccio is talking with us about his book “Warm Water: The Last Act of Compassion”, and how he creates meaning for patients and their families in their last moments. Carl “Pepper” Cappuccio has been a nurse for over 15 years, and a hospice nurse for 10 years. According to his website peppercappuccio.com, “he became a registered nurse more than 15 years ago, however, it was not until he experienced the death of his own mother that he realized his true calling

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