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PODCAST

Foundation Fighting Blindness

Foundation Fighting Blindness

The Foundation Fighting Blindness is the driving force in the global development of treatments and cures for blinding diseases. To learn more, go to FightingBlindness.org.

science

All Episodes

00:31:58

Eye on the Cure Podcast | Episode 22: Judge David Tatel

Foundation Fighting Blindness ·

2022/04/08

April 8, 2022. Host Ben Shaberman chats with Judge David Tatel, who, since 1994, has served on the US Court of Appeals — DC Circuit. He was appointed to the court by President Bill Clinton when Ruth Bader Ginsburg was appointed to the Supreme Court. During the podcast interview, David reflects on his impressive career, his adjustments to vision loss from XLRP, and his beloved guide dog, Vixen.

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00:29:35

Eye on the Cure Podcast | Episode 21: Katriona Taylor

Foundation Fighting Blindness ·

2022/03/25

March 25, 2022. Jazz singer Katriona Taylor talks with host Ben Shaberman about her journey with Stargardt disease and her new album, Blind Passion, which includes covers of songs from iconic singers such as Stevie Wonder, Ray Charles, and Diane Schuur. Katriona also shares a performance of her original song "In the Name of Love."

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00:22:45

Eye on the Cure Podcast | Episode 20: Dr. Nancy Holekamp

Foundation Fighting Blindness ·

2022/03/11

March 11, 2022. Dr. Nancy Holekamp, a retinal specialist, clinical trial investigator, and key opinion leader in the retinal disease space, discusses new therapies and research for wet and dry age-related macular degeneration and some emerging treatment approaches for inherited retinal diseases. This episode is sponsored by Apellis Pharmaceuticals.

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00:30:38

Eye on the Cure Podcast | Episode 19: Nieraj Jain, MD

Foundation Fighting Blindness ·

2022/02/25

February 25, 2022. Host Ben Shaberman talks with Nieraj Jain, MD, a retinal surgeon and expert in inherited retinal diseases from Emory on a wide range of clinical topics including retinal surgeries, vitamin A for IRD patients, cataract surgery for IRD patients, and his role in the Phase 3 XLRP gene therapy clinical trial being conducted by MeiraGTx/Janssen.

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00:35:13

Eye on the Cure Podcast | Episode 18: Michael Stone

Foundation Fighting Blindness ·

2022/02/11

February 11, 2022. Ben Shaberman talks with Michael Stone, a 17-time Ironman triathlete, about the adventures and challenges of being a prolific athlete with vision loss and a really fast guide dog.

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00:29:56

Eye on the Cure Podcast | Episode 17: Tom Reh, PhD

Foundation Fighting Blindness ·

2022/01/28

January 28, 2022. Eye on the Cure host, Ben Shaberman, talks with world-renowned researcher Tom Reh, PhD, who is developing an approach to enable the degenerating retina to regenerate its own new photoreceptors.

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00:19:39

Eye on the Cure Podcast | Episode 16: Actor Ben Mehl

Foundation Fighting Blindness ·

2022/01/14

January 14, 2022. Podcast host, Ben Shaberman, has a fun chat with Ben Mehl, an actor with Stargardt disease who plays a completely blind librarian on the hit Netflix series "You."

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00:03:15

News | Ocugen to Launch Clinical Trial for...

Foundation Fighting Blindness ·

2021/12/13

The clinical trial is for RHO and NR2E3 mutations, but the retinal gene therapy has the potential to benefit people with a variety of other mutated genes.

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00:40:51

Eye on the Cure Podcast | Episode 15: Gordon Gund

Foundation Fighting Blindness ·

2021/12/10

December 10, 2021. Gordon Gund, co-founder and chairman emeritus of the Foundation, joins host Ben Shaberman to share reflections on 50 years of fighting blindness and what has made the Foundation successful in driving its mission to eradicate the entire spectrum of retinal degenerative diseases.

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00:28:06

Eye on the Cure Podcast | Episode 14: Michael Kalberer

Foundation Fighting Blindness ·

2021/11/19

November 19. 2021. Michael Kalberer talks with Ben Shaberman about his perspective on living with cerebral palsy and Leber congenital amaurosis as well as his vision improvements after receiving an emerging CRISPR/Cas9 treatment in Editas' BRILLIANCE clinical trial. Michael can be reached at michaeljkalberer@gmail.com. His website is at michaeljkalbererpresents.com.

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00:18:58

Eye on the Cure Podcast | Episode 13: Dave Knop, PhD

Foundation Fighting Blindness ·

2021/11/05

November 5, 2021. Ben Shaberman talks with Dave Knop, PhD, vice president of process development at AGTC, about how emerging gene therapies for inherited retinal diseases are manufactured for use in human studies.

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00:03:05

News | FDA Approves Genentech’s Susvimo for Treating...

Foundation Fighting Blindness ·

2021/10/25

The US Food & Drug Administration (FDA) has approved Susvimo, Genentech’s port delivery system (PDS) with ranibizumab, for the treatment of wet age-related macular degeneration (AMD). The PDS, a refillable capsule the size of a rice grain, provides continual release of ranibizumab, a protein that blocks the growth of vision-robbing, leaky blood vessels which are the hallmark of wet AMD. The PDS is implanted at the surface of the eye during a one-time, outpatient, surgical procedure. The PDS may be

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00:17:13

Eye on the Cure Podcast | Episode 12: Michael Young, PhD

Foundation Fighting Blindness ·

2021/10/22

October 22, 2021. Michael Young, PhD, from Harvard Medical School, joins host Ben Shaberman to talk about the latest in stem cell research for retinal diseases.

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00:24:30

Eye on the Cure Podcast | Episode 11: Silvia...

Foundation Fighting Blindness ·

2021/10/08

October 8, 2021. Silvia Sorensen, PhD, an associate professor at the University of Rochester in the Center for Community Health and Prevention, talks with host Ben Shaberman about mental health issues and management for people with low vision.

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00:24:48

Eye on the Cure Podcast | Episode 10: Dr. Naveed...

Foundation Fighting Blindness ·

2021/09/24

September 24, 2021. Dr. Naveed Shams, chief scientific officer at ProQR, discusses RNA therapies and ProQR's three clinical trials targeting: Leber congenital amaurosis (a CEP290 mutation), USH2A exon 13, and retinitis pigmentosa (RHO-P23H).

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00:36:06

Eye on the Cure Podcast | Episode 9: Stephen Daiger, PhD

Foundation Fighting Blindness ·

2021/09/10

September 10, 2021. Stephen Daiger, PhD, Director of the Laboratory for Molecular Diagnosis of Inherited Eye Diseases at UT Houston, discusses the challenges and advancements in identifying the genetic mutations that cause retinal degenerative diseases.

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00:10:16

Eye on the Cure Podcast | Episode 8: Ben Shaberman,...

Foundation Fighting Blindness ·

2021/08/20

August 27, 2021. Host Ben Shaberman provides an overview of the Foundation's no-cost genetic testing program for people in the U.S. with inherited retinal diseases.

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00:22:55

Eye on the Cure Podcast | Episode 7: Bonnie Swenor,...

Foundation Fighting Blindness ·

2021/08/13

August 13, 2021. Host Ben Shaberman talks with Bonnie Swenor, MPH, PhD, Director of the Johns Hopkins Disability Health Research Center, about her journey from the sudden, unexpected onset of vision loss to becoming a researcher and advocate for people with all disabilities.

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00:31:43

Eye on the Cure Podcast | Episode 6: Drs. Troyk and Lane

Foundation Fighting Blindness ·

2021/07/30

July 30, 2021. Ben Shaberman interviews Drs. Philip Troyk and Frank Lane of the Illinois Institute of Technology about their clinical trial for the Intracortical Vision Prosthesis, a pioneering system for restoring vision to people who are completely blind.

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00:27:09

Eye on the Cure Podcast | Episode 5: Morten Bonde

Foundation Fighting Blindness ·

2021/07/16

July 16, 2021. Ben Shaberman chats with Morten Bonde, senior art director at Lego Group in Copenhagen and author of the book "Sentenced to Blindness – Now What?"

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255 results

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