PODCAST

I"m Aware That I"m Rare: the phaware® podcast

I"m Aware That I"m Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early

health & fitness medicine

All Episodes

John Granton, MD - phaware® interview 531

I"m Aware That I"m Rare: the phaware® podcast ·

2025/07/30

Dr. John Granton, a critical care and transplant physician at Toronto General Hospital, shares his journey in pulmonary hypertension and lung transplantation, detailing the groundbreaking advancements in transplant technology. He discusses the evolution of lung preservation methods, the challenges of chronic rejection, and the hope for longer-lasting transplants. With a passion for improving patient outcomes, Dr. Granton envisions a future where transplant becomes obsolete—replaced by treatments

10:33

Episode 531 - John Granton, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/07/29

First 5 Minutes® - phaware® interview 530

I"m Aware That I"m Rare: the phaware® podcast ·

2025/07/23

In this episode, Drs. Victor Test, Deborah Levine and Rodolfo Estrada discuss CHEST’s First 5 Minutes® program, which helps medical professionals build the skills that lead to a positive relationship with patients from the get-go. The goal is to improve patient care, shorten time to diagnosis for complex or rare diseases like pulmonary hypertension, and increase patient compliance and buy-in to their treatment plan. Victor Test, MD, FCCP: I'm Dr. Victor Test, Chief of Pulmonary Medicine and

11:20

Episode 530 - First 5 Minutes®

I"m Aware That I"m Rare: the phaware® podcast ·

2025/07/22

Lia Barros, DNP and Tijana Milinic, MD - phaware®...

I"m Aware That I"m Rare: the phaware® podcast ·

2025/07/16

Dr. Tijana Milinic and Lia Barros, DNP, from the University of Washington take a deep dive into the world of pulmonary arterial hypertension (PAH) clinical trials and discuss why diversity and inclusion matter. They explore the hidden biases in medical research and the real-world consequences of exclusion. Lia Barros, DNP: My name is Lia Barros and I'm a pulmonary vascular disease nurse practitioner specialist. I work at the University of Washington, where I've been practicing as a pulmonary

18:40

Episode 529 - Lia Barros, DNP and Tijana Milinic, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/07/15

Dr. Tijana Milinic and Lia Barros, DNP, from the University of Washington take a deep dive into the world of pulmonary arterial hypertension (PAH) clinical trials and discuss why diversity and inclusion matter. They explore the hidden biases in medical research and the real-world consequences of exclusion. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Engage for a cure: www.phaware.global/donate #phaware Share your story: info@phaware.com Like, Subscribe and

Lana Melendres-Groves, MD - phaware® interview 528

I"m Aware That I"m Rare: the phaware® podcast ·

2025/07/09

Dr. Lana Melendres-Groves dives into her research on racial and ethnic disparities in PAH treatment. From differences in medication access to the role of social determinants of health, she explores how systemic barriers impact care and what steps can be taken to ensure equity and inclusivity in PAH management. Hi, I am Lana Melendres-Groves. I'm at the University of New Mexico. I’m the Pulmonary Hypertension Medical Director of our Comprehensive Care Center. Today, I hope to dive into a little bit

15:05

Episode 528 - Lana Melendres-Groves, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/07/08

Dr. Lana Melendres-Groves dives into her research on racial and ethnic disparities in PAH treatment. From differences in medication access to the role of social determinants of health, she explores how systemic barriers impact care and what steps can be taken to ensure equity and inclusivity in PAH management. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Engage for a cure: www.phaware.global/donate #phaware Share your story: info@phaware.com Like, Subscribe

Roham Zamanian, MD, FCCP - phaware® interview 527

I"m Aware That I"m Rare: the phaware® podcast ·

2025/07/02

Dr. Roham Zamanian, discusses the concept of "disease modification" in the treatment of pulmonary hypertension. He describes how this idea emerged from discussions with colleagues about the future of pulmonary hypertension therapies, and the potential for treatments to impact the underlying disease process beyond just reducing pulmonary artery pressures. This Special Edition Episode Sponsored by: Johnson & Johnson My name is Roham Zamanian, and I'm the Medical Director of the Adult Pulmonary

10:35

Episode 527 - Roham Zamanian, MD, FCCP

I"m Aware That I"m Rare: the phaware® podcast ·

2025/07/01

Dr. Roham Zamanian, discusses the concept of "disease modification" in the treatment of pulmonary hypertension. He describes how this idea emerged from discussions with colleagues about the future of pulmonary hypertension therapies, and the potential for treatments to impact the underlying disease process beyond just reducing pulmonary artery pressures. This Special Edition Episode Sponsored by: Johnson & Johnson Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials

Hall Skaara - phaware® interview 526

I"m Aware That I"m Rare: the phaware® podcast ·

2025/06/25

Hall Skaara, representing PHA Europe, brought the patient perspective to the forefront at the World Symposium on Pulmonary Hypertension, joining other members of Task Force 1. PHA Europe was well-represented with delegates including Eva Otter, Monika Tschida, Natalia Maeva, Tadeja Ravnik, and Nina Kobler. This prestigious event gathered over 1,500 of the brightest minds in the field of pulmonary hypertension, offering a unique opportunity for patients and professionals to collaborate and share

12:10

Episode 526 - Hall Skaara

I"m Aware That I"m Rare: the phaware® podcast ·

2025/06/24

Lisa Mielniczuk, MD - phaware® interview 525

I"m Aware That I"m Rare: the phaware® podcast ·

2025/06/18

Why Pulmonary Hypertension Isn’t Just a Lung ProblemCardiologist Dr. Lisa Mielniczuk from the Mayo Clinic pulls back the curtain on one of the most common — yet misunderstood — forms of pulmonary hypertension: the kind caused by left heart disease. In this episode, she explains why it’s time we stop thinking of PH as a rare condition. My name's Lisa Mielniczuk. I'm a cardiologist and I work at the Mayo Clinic in Rochester, Minnesota. I've been working in the field of PH now for almost 20 years. I

12:59

Episode 525 - Lisa Mielniczuk, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/06/17

Why Pulmonary Hypertension Isn’t Just a Lung ProblemCardiologist Dr. Lisa Mielniczuk from the Mayo Clinic pulls back the curtain on one of the most common — yet misunderstood — forms of pulmonary hypertension: the kind caused by left heart disease. In this episode, she explains why it’s time we stop thinking of PH as a rare condition. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate

Jason Weatherald, MD - phaware® interview 524

I"m Aware That I"m Rare: the phaware® podcast ·

2025/06/11

Beyond the Clinical Trial: What Real-World Data Means for You. Think only people in clinical trials help advance medicine? Think again. Dr. Jason Weatherald explains how your everyday clinic visits - from walk tests to how you feel - can help shape the future of pulmonary hypertension treatment. Learn what "real-world evidence" is and why your story matters more than you think. I'm Jason Weatherald, I'm from the University of Alberta in Edmonton in Canada. I'm a clinical researcher, I focus on

08:24

Episode 524 - Dr. Jason Weatherald

I"m Aware That I"m Rare: the phaware® podcast ·

2025/06/10

Beyond the Clinical Trial: What Real-World Data Means for You Think only people in clinical trials help advance medicine? Think again. Dr. Jason Weatherald explains how your everyday clinic visits — from walk tests to how you feel — can help shape the future of pulmonary hypertension treatment. Learn what "real-world evidence" is and why your story matters more than you think. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for

Rodolfo Estrada, MD - phaware® interview 523

I"m Aware That I"m Rare: the phaware® podcast ·

2025/06/04

Dr. Rodolfo Estrada, is a seasoned pulmonologists currently at UT Health San Antonio with significant experience in the management of patients with different forms of pulmonary hypertension. In this episode, Dr. Estrada will discuss the technology and clinical development behind YUTREPIA™ (treprostinil) inhalation powder and why it might be a good option for some PAH and PH-ILD patients. This Special Edition episode is sponsored by Liquidia. Please see the Important Safety Information

08:33

Episode 523 - Rodolfo Estrada, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/06/03

Marc Simon, MD - phaware® interview 522

I"m Aware That I"m Rare: the phaware® podcast ·

2025/05/27

Decoding Pulmonary Hypertension: Echo and Cath Insights for Pulmonologists. Dr. Marc Simon shares his expertise on diagnosing pulmonary hypertension, emphasizing echocardiographic markers, right heart catheterization pitfalls, and risk stratification with the H2FPEF score. His insights help clinicians refine their diagnostic approach for better patient outcomes. This Special Edition episode is sponsored by Liquidia. View PDF Slides here. I’m Marc Simon. I am a cardiologist and a heart

32:15

Episode 522 - Marc Simon, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/05/26

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I"m Aware That I"m Rare: the phaware® podcast

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