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PODCAST

The POTScast

Standing Up to POTS, Inc.

Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS

health & fitness medicine

All Episodes

00:32:34

Alici’a, a nauseous, resilient, animal-lover

The POTScast ·

2025/06/15

Alici'a has spent a LOT of time hugging garbage pails, due to extreme nausea, and she did not get the support she hoped from her school or insurance company, but that didn't keep her from figuring out how to graduate high school, get accepted to college with needed accomodations, and feel she has become a better person for the challenges. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved,

en

00:32:34

Alici’a, a nauseous, resilient, animal-lover

The POTScast ·

2025/06/15

Alici'a has spent a LOT of time hugging garbage pails, due to extreme nausea, and she did not get the support she hoped from her school or insurance company, but that didn't keep her from figuring out how to graduate high school, get accepted to college with needed accomodations, and feel she has become a better person for the challenges. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved,

en

00:53:12

Cardiologist Alexis Cutchins on MCAS, POTS, venous...

The POTScast ·

2025/06/10

This is an excellent discussion for patients and practitioners alike who are interested in the connections between MCAS, POTS, venous compression, pelvic venous disorder, and MALS. Cardiologist Dr. Cutchins and Dr. Tania Dempsey share tons of information plus their latest thinking on how to treat patients with these complex presentations, including an in-depth conversation about how MCAS patients are faring with stenting procedures for venous

en

00:53:12

Cardiologist Alexis Cutchins on MCAS, POTS, venous...

The POTScast ·

2025/06/10

This is an excellent discussion for patients and practitioners alike who are interested in the connections between MCAS, POTS, venous compression, pelvic venous disorder, and MALS. Cardiologist Dr. Cutchins and Dr. Tania Dempsey share tons of information plus their latest thinking on how to treat patients with these complex presentations, including an in-depth conversation about how MCAS patients are faring with stenting procedures for venous

en

00:36:42

Caitlyn wrote a book!

The POTScast ·

2025/06/03

Caitlyn was a 4th grade teacher, mom, group fitness instructor and general ball of energy until she got Mononucleosis. Faced with all sorts of challenges, including losing relationships because her health was "too much", what did she do? She wrote. And it evolved into a book about her experiences and included thoughtful questions for readers, which Caitlyn wishes she's asked herself sooner. Above all, she wants other patients not feel alone. You

en

00:36:42

Caitlyn wrote a book!

The POTScast ·

2025/06/03

Caitlyn was a 4th grade teacher, mom, group fitness instructor and general ball of energy until she got Mononucleosis. Faced with all sorts of challenges, including losing relationships because her health was "too much", what did she do? She wrote. And it evolved into a book about her experiences and included thoughtful questions for readers, which Caitlyn wishes she's asked herself sooner. Above all, she wants other patients not feel alone. You

en

00:17:43

Biological Sex Differences in POTS with Marie-Claire...

The POTScast ·

2025/05/26

Dr. Marie-Claire Seeley explains new published findings from the Australian POTS Registry, looking at sex differences in symptoms, care seeking, diagnostic delay, and other parts of the patient journey. You can read the published article here and learn more about the Australian POTS Foundation here. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to

en

00:17:43

Biological Sex Differences in POTS with Marie-Claire...

The POTScast ·

2025/05/26

Dr. Marie-Claire Seeley explains new published findings from the Australian POTS Registry, looking at sex differences in symptoms, care seeking, diagnostic delay, and other parts of the patient journey. You can read the published article here and learn more about the Australian POTS Foundation here. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to

en

00:09:13

Invitation to DysCourse, presented by The...

The POTScast ·

2025/05/19

The DysCourse event is presented by The Dysautonomia Project. It is 100% free and is intended to provide practical strategies, information and community to patients and caregivers. Hope to see you there!

en

00:09:13

Invitation to DysCourse, presented by The...

The POTScast ·

2025/05/19

The DysCourse event is presented by The Dysautonomia Project. It is 100% free and is intended to provide practical strategies, information and community to patients and caregivers. Hope to see you there!

en

00:37:51

POTS Diaries with Sam, sharing her POTS and seizures...

The POTScast ·

2025/05/17

Sam was enjoying a post-graduation road trip when a series of unlucky medical issues left her with POTS including non-epileptic seizures. Although she still faces new challenges (MALS this time), Sam is still smiling, optimistic, and sharing her experiences and tips as an influener on TikTok. You can find her channel here. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are

en

00:37:51

POTS Diaries with Sam, sharing her POTS and seizures...

The POTScast ·

2025/05/17

Sam was enjoying a post-graduation road trip when a series of unlucky medical issues left her with POTS including non-epileptic seizures. Although she still faces new challenges (MALS this time), Sam is still smiling, optimistic, and sharing her experiences and tips as an influener on TikTok. You can find her channel here. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are

en

00:47:05

Women’s sexual health with Dr. Anna Cabeca: Mast Cell...

The POTScast ·

2025/05/12

Dr. Anna Cabeca started her career as a researcher and busy physician, until her own fertility issues drove her to search the world over for better solutions for women's sexual health. In this interview with Dr. Dempsey we learn about hormones, symptoms, treatments, natural alternatives, that vaginal health is important for overall health, and much more. Dr. Cabeca's website is here: https://drannacabeca.com/ Dr. Dempsey's website is

en

00:34:51

POTS Diaries with Reilly, nurse and world adventurer

The POTScast ·

2025/05/06

Meet Reilly, a 29-year-old director of nursing from Northern British Columbia, Canada. Reilly shares insights into her life and career, details her experience with the healthcare system as both a provider and a patient, talks about the challenges of traveling with POTS, and describes her journey from the onset of symptoms to receiving a diagnosis. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so

en

00:34:51

POTS Diaries with Reilly, nurse and world adventurer

The POTScast ·

2025/05/06

Meet Reilly, a 29-year-old director of nursing from Northern British Columbia, Canada. Reilly shares insights into her life and career, details her experience with the healthcare system as both a provider and a patient, talks about the challenges of traveling with POTS, and describes her journey from the onset of symptoms to receiving a diagnosis. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so

en

00:36:38

Hyperventilation in POTS with Jacquie Baker, PhD

The POTScast ·

2025/04/28

Hyperventilation and POTS: Do POTS patients "breathe wrong?" Dr. Jacquie Baker explains the high-tech research studies performed in her (and Dr. Satish Raj's) lab to untangle the mechanistic causes and effects of hyperventilation in POTS. She also explains findings on how hyperventilation in POTS differs from hyperventilation in anxiety. You can find the discussed publications here and here. Dr. Raj & Dr. Baker's latest research projects at U. of

en

00:36:38

Hyperventilation in POTS with Jacquie Baker, PhD

The POTScast ·

2025/04/28

Hyperventilation and POTS: Do POTS patients "breathe wrong?" Dr. Jacquie Baker explains the high-tech research studies performed in her (and Dr. Satish Raj's) lab to untangle the mechanistic causes and effects of hyperventilation in POTS. She also explains findings on how hyperventilation in POTS differs from hyperventilation in anxiety. You can find the discussed publications here and here. Dr. Raj & Dr. Baker's latest research projects at U. of

en

00:37:33

POTS Diaries with Megan - finding the right doctor...

The POTScast ·

2025/04/22

Megan is a literacy advocate in Georgia and is very passionate about her work. When POTS and comorbid conditions struck, she had difficulty making it through the work day, and didn't get any relief or answers from the first 20 doctors she saw. Luckily she persisted and eventually found the one that made ALL the difference. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are

en

00:37:33

POTS Diaries with Megan - finding the right doctor...

The POTScast ·

2025/04/22

Megan is a literacy advocate in Georgia and is very passionate about her work. When POTS and comorbid conditions struck, she had difficulty making it through the work day, and didn't get any relief or answers from the first 20 doctors she saw. Luckily she persisted and eventually found the one that made ALL the difference. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are

en

00:49:34

MCAS in developmental & behavioral pediatrics with...

The POTScast ·

2025/04/15

Dr. Donna Kirchoff is an integrative developmental and behavioral pediatrician who works with children who have complex conditions, often involving MCAS, autism and other neuroinflammatory conditions like PANS and PANDAS. In this episode she and Dr. Dempsey discuss the role of mast cells in these conditions and what can be done to help these young patients. Dr. Kirchoff's website is here. Dr. Dempsey's website is here. If you liked this episode, we hope

en

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