PODCAST

ALS Podcast

ALS Philadelphia

Stories from The ALS Association Greater Philadelphia Chapter

government & organizations non-profit

All Episodes

23:17

ALS Registry with Jen Hjelle

ALS Podcast ·

2017/03/09

The ALS Registry is a powerful tool to learn more about who has ALS in the United States and develop appropriate research proposals with different populations of people. In order for the Registry to work, people with ALS need to participate in a series of surveys. In this podcast, Jen Hjelle, the Executive Director of The ALS Association MN/ND/SD Chapter talks about their outreach to ALS families for the registry in more rural areas of the country and why they see the Registry as a valuable tool to

27:47

ALS Research Podcast - Biomarkers

ALS Podcast ·

2017/02/09

In Part 3 of the ALS Research Podcast Series with Dr. Jill Yersak, we discuss the significance of biomarkers in understanding ALS progression and developing new treatments. Dr. Yersak answers questions on this topic such as: What are biomarkers? How does one identify a biomarker for ALS? Why are biomarkers important for ALS research? What is the future of this avenue of study? Listen, subscribe, and learn more about biomarkers and other aspects of ALS research at www.alsa.org/research/

44:08

Advancing the Mission through Advancing Communication

ALS Podcast ·

2017/02/02

In 1977, The ALS Association Greater Philadelphia Chapter started with a promise to listen to people with ALS and create solutions to their every day needs while investing in research to end ALS for good. When Alisa Brownlee started with the Chapter in 1996, there were not many ways for the Chapter to do that listening except in face to face meetings. Since she began, the technology at the Chapter and nationally at The ALS Association, has grown by leaps and bounds to better assist ALS families

19:32

Resource Group Podcast with guest Alair Altiero

ALS Podcast ·

2017/01/17

One of the first commitments that The ALS Association Greater Philadelphia Chapter made to ALS families was to provide them with compassion and support through group meetings. Before the Chapter could develop the comprehensive care services taht it has today, it had to listen to the needs of those affected by ALS. That started with meetings at the homes of people like Ben and Dottie Ohrenstein. In 2017, as part of the Chapter's 40th Anniversary, the Chapter is Honoring the Promise of those early

29:51

What is ALS? with Dr. Jill Yersak

ALS Podcast ·

2017/01/11

ALS is a difficult and complicated disease. Most people who are affected by ALS have not spent much time researching it until they or someone that they care for has been diagnosed. Everybody has questions, from the very general understanding of the disease to details about research, genetics, and more. Dr. Jill Yersak, Manager of Research Communications at The ALS Association, is sharing her expertise in a running series on ALS research questions. In this Podcast, Dr. Yersak takes part in

34:07

What is ALS Research? Podcast with Dr. Jill Yersak

ALS Podcast ·

2016/11/30

38:31

Episode 78 Maureen Reid

ALS Podcast ·

2016/11/23

Maureen Reid is a nurse at the ALS Treatment Center at Penn State Hershey Medical Center, where she supports patient families. She knows ALS all too well as she lost her husband to the disease, giving her even greater reason to provide compassionate care to those affected by the disease. In this special Thanksgiving podcast, Maureen talks about her background in nursing, the high quality of staff at Hershey Medical Center, and the progress she sees for patient care. Listen, share, and learn more

47:59

Episode 77 - Alair Altiero

ALS Podcast ·

2016/11/17

2016 marks the 20th anniversary of the ALS Association Treatment Center at Penn State Hershey Medical Center. One of the newer healthcare professionals at the clinic is Alair Altiero, PhD., who assists ALS families as the mental health clinician. Not only does Alair run the resource group at Hershey Medical Center, but she also oversees the group program for the entire Greater Philadelphia Chapter. In this podcast, Alair talks about her role and what it means to be a part of a long standing

24:21

Episode 76 - ALS Registry with Melissa Coll

ALS Podcast ·

2016/10/20

In this Podcast, Chapter social worker Melissa Coll talks about the National ALS Registry through the Centers for Disease Control. The Registry helps guide knowledge of ALS and help researchers understand the numbers of who has the disease so that they can move on other important projects. Melissa here talks about the value of the Registry, how it empowers people with ALS, and why continued advocacy is important. Listen, share, and learn more about the Registry at www.alsa.org or

31:21

Episode 75 Ann Malloy

ALS Podcast ·

2016/09/14

Each year, Ann Malloy and her family walk in the Greater Philadelphia Walk to Defeat ALS in memory of their father, Pat Malloy. They come together as part of team Pat's Posse. Now Ann is walking not just with her father in mind, but also her brother Patrick, who was diagnosed with ALS. In this podcast, Ann talks about what the walk means to her, how the team prepares, and why they find the Walk to Defeat ALS to be so positive and reaffirming year after year. Join them on Sunday, November 6 by

43:44

Episode 74 - Jamey Piggott on the 50 in 30 Challenge

ALS Podcast ·

2016/08/19

Long time Greater Philadelphia Chapter volunteer Larry Kaplan has embarked on an ambitious program to travel to every state in the country for the 50 in 30 Challenge - a campaign to do a unique bucket challenge in each state to raise money and awareness for the ALS cause. In this podcast, Jamey Piggott, an events manager with the Chapter, talks about how he joined Larry on the road for a week, seeing 16 states in 8 days to help him meet people from Ohio to Kansas and many places in between. Find

37:53

Episode 73 - Chrissie Delaney Cohen on Participating...

ALS Podcast ·

2016/07/29

Chrissie Delaney Cohen lost her mother to ALS and her sister has lived with ALS for over 5 years. Recently, she travelled to the University of Miami to participate in ALS research studies to help understand the genetics of families affected by ALS. In this podcast, she talks about how she got involved in the program, what it entailed, and why others should search for more ALS studies for themselves. Learn more about ALS and how to get involved at www.alsphiladelphia.org

32:35

Episode 72 Jeff Oppenheimer

ALS Podcast ·

2016/06/23

When Shelbie Oppenheimer was diagnosed with ALS in the 1990's, she and her husband Jeff quickly became a team united to find an end to the disease. Together they raised a wonderful daughter, get involved with ALS Association events, worked with the Phillies, and advocated on Capitol Hill in front of national lawmakers. Shelbie passed away from ALS after a long battle and Jeff continues to be a strong advocate and supporter. Listen to Jeff's perspective on this journey with ALS and then find more

33:49

Episode 71 Wes Rose

ALS Podcast ·

2016/06/15

Wes Rose has been living with ALS for over 10 years. As a father, husband, advocate, and board member with The ALS Association Greater Philadelphia Chapter, Wes has fought ALS from all angles. In this podcast, Wes joins the discussion from his office at Arcadia University to talk about the support of the Philadelphia Phillies, his organizing efforts for Team Rose Pedals in the Ride to Defeat ALS, and how young people like his sons and their friends such as JD Florio, are next generation leaders to

29:04

Episode 70 Matt Doroshow

ALS Podcast ·

2016/06/08

Matt Doroshow and the students at Colonial Middle School in Montgomery County, PA have run the extremely successful 4 on 4 for a Cure Basketball Tournament for the last few years to raise money for ALS research. In this podcast, Matt and two students in the Hoops for Hope Committee, MacKenzie and Charley, talk about organizing for the event and the excitement of bring people together for a good cause. They are so good at putting together this event that this year, it raised over $18,000! Click

36:25

Episode 69 Dale Miller

ALS Podcast ·

2016/05/20

Dale Miller has had a remarkable career in the United States Marines. In this podcast, Dale talks about how he began developing symptoms of ALS while serving in the military, the care he receives through the VA and The ALS Association, his work in ALS advocacy, and the strong help from the Philadelphia Phillies. Listen, subscribe on iTunes, and get involved further at www.alsphiladelphia.org

27:37

Episode 68 John Russo on Talking about ALS

ALS Podcast ·

2016/05/11

Often when we discuss ALS and other serious diseases, we use words like hero and brave to describe those who are most affected. However, is that how people with ALS want to be described? In this podcast, John Russo talks about his life with ALS and about the words he likes and dislikes, how people can offer to help in person, and why the best way for people to be a friend to someone with a disease is to not wait until they need a friend, but to start now, before ALS or something like it enters the

33:04

Episode 67 John Crawford

ALS Podcast ·

2016/05/04

When the ALS Association Greater Philadelphia Chapter created a t-shirt design contest, many people offered some great ideas. John Crawford created a winning design called CURE ALS based off the Love Park statue in Philadelphia. In this Podcast, John talks about his father's battle with ALS, enjoying the Phillies World Series win together, and how he hopes his shirt design will bring more awareness to ALS and the services and research through The ALS Association. Purchase your CURE ALS shirt

31:47

Episode 66 Violet Graham

ALS Podcast ·

2016/04/27

Military veterans are twice as likely to be diagnosed with ALS as the general population. In this podcast, Violet Graham of the Paralyzed Veterans of America talks about her role in supporting veterans with ALS, making sure that they get the services that they need and deserve, and advocating for their families. Violet works with The ALS Association to connect veterans in Pennsylvania to multiple services to ensure that they get help quickly and efficiently. Learn more about what the PVA does for

26:37

Episode 65 Sandra Sage

ALS Podcast ·

2016/04/21

Sandra Sage of West Chester, PA just recently joined the Chapter board and she is very familiar with ALS, having lost her mother to the disease in 2006. She has assisted the Chapter in enlisting the support of her employer, Clemens Food Group and is highly motivated to promote the many Chapter events in the area such as the Walk to Defeat ALS®. Sandra has worked in the grocery business for thirty years and brings fresh ideas, energy, and dedication to the ALS cause. Listen and share her podcast

100 results

ALS Podcast

All Episodes

Similar Podcasts

The Michigan DNR"s Wildtalk Podcast

Michigan Department of Natural...

Bilbo Hiria irratia

Mises Institute

Jua Haki Zako

RFI Kiswahili

Finding Arizona Podcast

Jose Acevedo