PODCAST

ALS Podcast

ALS Philadelphia

Stories from The ALS Association Greater Philadelphia Chapter

government & organizations non-profit

All Episodes

33:13

Talk to Defeat ALS with Lenny and Jessie

ALS Podcast ·

2021/04/29

Jessie Meier is a social worker at The ALS Association Recognized Treatment Center at Lehigh Valley Health Network. Through her years of working for people with ALS, she has come across many amazing stories, but she wanted a special way to highlight them.Lenny Rafalko is a person with ALS who attends the ALS Treatment Center at LVHN. He was looking for an uplifting project, especially as the global pandemic turned the world upside down for everyone. Jessie and Lenny collaborated and created their

38:11

Talk to Defeat ALS - ALS Focus

ALS Podcast ·

2020/09/29

The ALS Association continues to find new ways to listen to all parts of the ALS community to better deliver its mission. In this Talk to Defeat ALS Podcast, Sarah Parvanta discusses the new ALS Focus survey project. Topics include: Developing the right surveys using expert input What The ALS Association has already learned from surveys How people can participate and what voices are needed Creating the next round of surveys Listen and share and learn more about ALS Focus at

29:55

Talk to Defeat ALS Jim Doyle

ALS Podcast ·

2020/07/30

Jim Doyle has long been known as the voice of Berwick Bulldogs football. In this Talk to Defeat ALS podcast, Jim talks about the life of Bulldogs Coach George Curry and Coach Curry's battle with ALS, the disease that ultimately took his life in 2016. Jim discusses how the community rallied around Coach Curry and created the Berwick Walk to Defeat ALS. This year, the Walk to Defeat ALS is using the Walk Your Way concept so that everyone can participate! Register for a walk now at

32:42

Talk to Defeat ALS - Conversation with Steve...

ALS Podcast ·

2020/07/09

A new season of the Talk to Defeat ALS Podcast starts with Steve Spaulding, Director of Care Services at The ALS Association Greater Philadelphia Chapter as he discusses how The ALS Association has adapted to the challenges surrounding COVID-19. In this episode, we discuss: Transitioning to Telehealth How Care professionals are helping more ALS families than ever Steps you can take to stay safe and keep others with ALS safe Why people with ALS are more at risk from COVID-19 Listen and share this

22:22

Talk to Defeat ALS - Nurse Erica Smith

ALS Podcast ·

2019/05/09

The ALS Association Greater Philadelphia Chapter is proud to have many exceptional nurses on staff to provide needed quality care for people with ALS and their families. For Nurses Week 2019, Erica Smith joins the Talk to Defeat ALS Podcast to discuss why she became a nurse, the challenges of being a nurse for The ALS Association, what makes her job so rewarding, and why more people should choose nursing. Erica also talks about her support of the Berwick Walk to Defeat ALS. You can support Walk to

25:32

Talk to Defeat ALS - Social Worker MaryBeth Tomczak

ALS Podcast ·

2019/03/28

March is National Social Work Month and our own MaryBeth Tomczak is joining the Talk to Defeat ALS Podcast to talk about her role as a social worker with The ALS Association Greater Philadelphia Chapter. She also talks about why she joined the social work field, the challenges of being a social work provider for ALS families, and what she hopes to accomplish this year for the ALS cause. MaryBeth works mostly in North East Pennsylvania, which brings its own unique challenges to providing care with a

25:18

Talk to Defeat ALS Wendy Barnes- Social Work Month

ALS Podcast ·

2019/03/21

March is National Social Work Month and our own Wendy Barnes is coming back to the Talk to Defeat ALS Podcast to talk about her role as a social worker with The ALS Association Greater Philadelphia Chapter. She also talks about why she joined the social work field, the challenges of being a social work provider for ALS families, and what she hopes to accomplish this year for the ALS cause. Listen, share, subscribe and join Wendy and others in the fight against ALS at www.alsphiladelphia.org

19:46

Talk to Defeat ALS - Social Worker Maryann Jones

ALS Podcast ·

2019/03/14

March is National Social Work Month and we continue to highlight some of the amazing social workers who are so important to The ALS Association Mission. In this episode, Maryann Jones talks about how she became a social worker and joined The ALS Association Greater Philadelphia Chapter, what it is like working with the team at Hershey Medical Center, the challenges of caring for people with ALS, and why social work is so valuable and necessary. Listen, subscribe, share, and get involved in the

30:38

Talk to Defeat ALS Social Workers Melissa Anne and Jayne

ALS Podcast ·

2019/03/07

March is National Professional Social Work Month and our Chapter is proud to be home to many compassionate and accomplished social workers who go above and beyond to support people with ALS and their families. This month, the Talk to Defeat ALS Podcast will feature interviews with Chapter social workers to learn why they became social workers, what their job entails, the challenges of being a social worker for The ALS Association, and why social work is so valuable. Listen to this special episode

28:44

Talk to Defeat ALS - Frank Esterle with Home Helpers

ALS Podcast ·

2019/01/10

The Howard I. Abrams In-Home Care Program is a hallmark of The ALS Association Greater Philadelphia Chapter and a key part of the Chapter's mission for ALS families. In this podcast, Frank Esterle of Home Helpers talks about his organization's history of providing care for people with ALS, the stories that have impacted him personally and helped grow the relationship, and how Home Helpers is sponsoring upcoming events like the Help and Hope Research and Care Forum in March, 2019. Listen, Share, and

24:25

Talk to Defeat ALS - Clinical Conference Part 2 with...

ALS Podcast ·

2018/11/29

In part two of our two part series on the 2018 Clinical Conference, Chapter Social Workers Anne Cooney and Melissa Coll talk about what they learned at the conference and what they presented as well. Melissa and Anne talk about caregiving and how caregivers can take care of themselves as well. Listen, subscribe, share, and then learn more about ALS services and how you can get involved at www.alsphiladelphia.org

33:36

Talk to Defeat ALS - Report from the 2018 Clinical...

ALS Podcast ·

2018/11/21

The ALS Association Greater Philadelphia Chapter's Care Services team recently participated in the 2018 Clinical Conference in Dallas, Texas. Many members of the Chapter team presented ideas and studies they worked on and everyone learned from experts from across the country. In Part 1 of our two part podcast series, Care Services Director Steve Spaulding; Gail Houseman, RN; and Alisa Brownlee, ATP discuss what they presented and learned. Listen, subscribe, share, and then join us in the fight

27:12

Talk to Defeat ALS - Scott Smith and Virtual Reality

ALS Podcast ·

2018/11/15

Scott Smith has produced dazzling visual effects on major Hollywood films for nearly two decades and currently works for Brick Simple to create groundbreaking virtual reality and augmented reality projects. On Wednesday, November 28, Scott will bring his experience and ideas to The ALS Association Greater Philadelphia Chapter's Annual Dinner to talk about how Virtual Reality can be used to create a powerful empathy experience for ALS. This technology can be used for ALS awareness, education,

04:29

Talk to Defeat ALS - 5 Minute Tip - Scooters and ALS

ALS Podcast ·

2018/10/09

In the latest Five Minute Tip on the Talk to Defeat ALS Podcast, Alisa Brownlee talks about how people with ALS can use a scooter for mobility and answers some questions about their usefulness. Listen, share, subscribe and then get involved in the fight against ALS at www.alsphiladelphia.org

04:53

Talk to Defeat ALS - 5 Minute Tip Tech and Support...

ALS Podcast ·

2018/10/02

The Talk to Defeat ALS continues with another 5 Minute Tip with Alisa Brownlee. In this episode, Alisa talks about the value of Tech and Support groups and how they can make life better for a person with ALS and their family and caregivers. She explains how to find one near you and how you should be prepared to listen and learn from others. Listen, subscribe, and do more in the fight against ALS online now at www.alsphiladelphia.org

04:35

Talk to Defeat ALS - 5 Minute Tip: Using a Trilogy...

ALS Podcast ·

2018/09/25

In this 5 Minute Tip, Alisa Brownlee discusses how a person with ALS could use a Trilogy device and answers some quick questions that people may have. Listen, share, subscribe and then learn more at www.alsphiladelphia.org and follow Alisa on Twitter @ALSAssistiveTec and follow the Chapter @alsphiladelphia

04:54

Talk to Defeat ALS - 5 Minute Tip: Calling for Help...

ALS Podcast ·

2018/09/11

In this latest 5 Minute Tip on the Talk to Defeat ALS Podcast, Alisa Brownlee gives advice for how a person with ALS can call for help from a loved one outside of their home. Tune in and subscribe to our podcast on iTunes for more 5 Minute Tips and support the fight against ALS at www.alsphiladelphia.org

04:40

Talk to Defeat ALS - 5 Minute Tip: Cell Phone Use for...

ALS Podcast ·

2018/09/04

Alisa Brownlee is back with another 5 Minute Tip on our Talk to Defeat ALS Podcast, this time to discuss how a person with ALS can use a cell phone even if they have difficulties using their hands and fingers. Listen, share, subscribe on iTunes, and then visit www.alsphiladelphia.org to learn more about resources for people with ALS and how you can donate and volunteer today.

36:55

Talk to Defeat ALS - Social Media

ALS Podcast ·

2018/08/23

Social Meida is a valuable tool for everybody in the 21st Century, but it can be even more vital for people with ALS who have challenges with communication and connecting with others. In this Talk to Defeat ALS podcast, Alisa Brownlee and Tony Heyl discuss the benefits and pitfalls of Facebook, Twitter, Instagram, YouTube and even Pinterest. This is also a reminder to follow The ALS Association Greater Philadelphia Chapter on social media @alsphiladelphia Listen, Share, subscribe, and donate

04:37

Talk to Defeat ALS - 5 Minute Tip: Yes, No, Maybe

ALS Podcast ·

2018/08/21

In this latest 5 Minute Tip edition of the Talk to Defeat ALS Podcast, Alisa Brownlee discusses the importance of using the words Yes, No, and Maybe when communicating with a person with ALS. Many people with ALS struggle with speech and developing a Yes, No, Maybe approach to communicating can be vital to their quality of life. Listen, share, and then get involved by donating or volunteering in the fight against ALS at www.alsphiladelphia.org

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