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PODCAST

Foundation Fighting Blindness

Foundation Fighting Blindness

The Foundation Fighting Blindness is the driving force in the global development of treatments and cures for blinding diseases. To learn more, go to FightingBlindness.org.

science

All Episodes

00:03:35

Harriet Finkelstein, Foundation Angel, Passes Away

Foundation Fighting Blindness ·

2025/02/05

Though unaffected by vision loss, she brought great passion to driving the Foundation’s mission.

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00:26:04

Eye on the Cure Podcast | Episode 80: Aniz Girach, MD

Foundation Fighting Blindness ·

2025/01/24

January 24, 2025. Aniz Girach, MD, the chief medical officer at SpliceBio, talks to host Ben Shaberman all about the company’s emerging protein-splicing therapy for Stargardt disease which has received clearance from the FDA to move into a clinical trial.

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00:04:16

Atsena to Launch Part B of Phase 1/2 Clinical Trial...

Foundation Fighting Blindness ·

2025/01/10

The Foundation is a founding investor in Atsena.

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00:35:38

Eye on the Cure Podcast | Episode 79: Damon Lembi

Foundation Fighting Blindness ·

2025/01/07

Damon Lembi talks to host Ben Shaberman about his journey as a college baseball star, father, and CEO of Learnit (a live learning platform), and how the diagnosis of an inherited retinal disease informs his leadership style, personal growth, and relationships. Damon is also a best-selling author and host of the Learn-It-All podcast.

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00:03:27

ViGeneron Receives FDA Authorization to Launch...

Foundation Fighting Blindness ·

2024/12/20

The company is also planning to conduct the clinical trial at sites in the EU.

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00:40:27

Eye on the Cure Podcast | Episode 78: Dr. Sheldon Rowan

Foundation Fighting Blindness ·

2024/12/18

Dr. Sheldon Rowan, a professor and researcher at Tufts University, talks to host Ben Shaberman about the impact of the glycemic index, microbiome, and diet on the development of age-related macular degeneration and optimization of overall retinal health. Dr. Rowan will also discuss his grant from the Foundation and the Free Family for studying diet and AMD risk. The grant is also enabling Dr. Rowan to evaluate an FDA-approved drug and an emerging gene therapy as potential AMD preventions.

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00:02:46

SpliceBio Receives FDA Clearance to Launch Clinical...

Foundation Fighting Blindness ·

2024/12/16

The company has also launched a natural history study of patients to inform the planned clinical trial.

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00:03:18

Sepul Bio Launches Phase 2b Clinical Trial for USH2A...

Foundation Fighting Blindness ·

2024/12/12

Known as ultevursen, the USH2A RNA therapy was licensed from ProQR.

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00:32:10

Eye on the Cure Podcast | Episode 77: Dr. Bob Bell

Foundation Fighting Blindness ·

2024/12/06

Bob Bell, PhD, chief scientific officer at Ascidian Therapeutics, talks with host Ben Shaberman about STELLAR, the company's Phase 1/2 clinical trial for its emerging RNA-rewriting therapy for Stargardt disease (ABCA4 mutations). Dr. Bell also provides overviews of Stargardt disease, the role of RNA in cells, and the advantages of RNA re-writing over other genetic treatment approaches. Learn more about the clinical trial at STELLAR. Learn more about the prescreening study for STELLAR at

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00:28:39

Eye on the Cure Podcast | Episode 76: The...

Foundation Fighting Blindness ·

2024/11/13

When the Lemay-Pelletier family from Montreal learned that three of their four children were losing vision from retinitis pigmentosa, they made the bold decision to spend 15 months traveling the world to give their kids as many visual memories as possible. Podcast host Ben Shaberman talks to the family about their many incredible adventures and the National Geographic documentary (to stream on Disney+ in late 2024) that beautifully captured the journey.

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00:03:43

Atsena’s LCA1 Gene Therapy Licensed by Nippon...

Foundation Fighting Blindness ·

2024/11/13

The companies are planning a Phase 3 clinical trial for the promising gene therapy.

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00:02:00

BlueRock’s Photoreceptor Cell Therapy to Move into...

Foundation Fighting Blindness ·

2024/10/30

The Foundation funded Dr. David Gamm for development of the induced pluripotent stem cell approach to be used in the trial.

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00:03:32

Kiora Receives Authorization for Phase 2 Clinical...

Foundation Fighting Blindness ·

2024/10/29

The 36-participant trial will take place at multiple sites in Australia.

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00:37:54

Eye on the Cure Podcast | Episode 75: Sharon King

Foundation Fighting Blindness ·

2024/10/25

Sharon King, co-founder and president of Taylor’s Tale, talks to host Ben Shaberman about her family's journey when her daughter Taylor was diagnosed with Batten disease, a life-limiting, neurodegenerative disease that includes vision loss as a symptom. Taylor’s Tale is raising awareness of, and research funding for, Batten disease. Sharon is also a tireless advocate for the needs of the rare disease community.

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00:02:59

Opus Genetics, Ocuphire Merger to Boost Advancement...

Foundation Fighting Blindness ·

2024/10/23

Merger will provide additional capital for gene therapy development.

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00:00:36

#ShareYourVision | White Cane Day

Foundation Fighting Blindness ·

2024/10/15

#WhiteCaneDay is here! Let's celebrate the strength and independence the white cane symbolizes! Do you use a white cane or other tools? Share your story with #ShareYourVision!www.FightingBlindness.org/ShareYourVision

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00:02:32

Safety Clinical Trial Launched for Usher Syndrome 3 Drug

Foundation Fighting Blindness ·

2024/10/11

Researchers hope the molecule will slow the vision and hearing loss associated with USH3.

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00:00:59

#ShareYourVision this Blindness Awareness Month |...

Foundation Fighting Blindness ·

2024/10/11

To help spread awareness during October’s Blindness Awareness Month, the Foundation Fighting Blindness invites you to share your unique experiences with blinding diseases through our social media campaign, #ShareYourVision. Just as no two fingerprints are alike, our perception of the world through our eyes is equally distinct. Let’s come together as a beacon of hope, emphasizing the resilience found in the uniqueness of our sight. Join us this October and share your story through written word,

en

00:34:07

Eye on the Cure Podcast | Episode 74: Dr. Kia Washington

Foundation Fighting Blindness ·

2024/10/11

Dr. Kia Washington, a professor in the Division of Plastic and Reconstructive Surgery at the University of Colorado, Anschutz Medical School, talks to host Ben Shaberman about her work in whole eye transplantation. Dr. Washington is also the first Black female plastic surgeon in the country to hold the title of full professor and she discusses the challenges of ensuring diversity and inclusion in her field. This episode is sponsored by Johnson & Johnson.

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00:00:35

#ShareYourVision | What do you want others to know...

Foundation Fighting Blindness ·

2024/10/11

To help spread awareness during October’s Blindness Awareness Month, the Foundation Fighting Blindness invites you to share your unique experiences with blinding diseases through our social media campaign, #ShareYourVision. Just as no two fingerprints are alike, our perception of the world through our eyes is equally distinct. Let’s come together as a beacon of hope, emphasizing the resilience found in the uniqueness of our sight. Join us this October and share your story through written word,

en

242 results

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