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PODCAST

The Heart of Hospice Podcast

Hosted by Helen Bauer, BSN RN CHPN

The Heart of Hospice podcast is dedicated to helping personal and professional caregivers who are caring for someone with serious illness. We"re here to provide information and education so people can make informed choices about end of life care.

health & fitness medicine

All Episodes

00:49:05

The Truth About Spiritual Care From a Physician's...

The Heart of Hospice Podcast ·

2025/02/21

Dr. Robert Klitzman has learned the truth about the value of spiritual care through his professional practice and his own lived experience. As an author, he’s written over 180 articles and books on critical issues in bioethics regarding doctor-patient relationships and communication, research, and other areas. Robert realized the whole-person impacts of a traumatic grief event after the death of his sister in the Twin Tower attacks on 9-11. Speaking with physician colleagues, Robert heard

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00:51:25

How to Separate the Myths From the Truth About...

The Heart of Hospice Podcast ·

2025/02/14

My guest Gabby Jimenez and I are busting the hospice myths to get to the truth about end of life care. Because there are so many misconceptions about hospice care, many people don’t choose to have care from a hospice team or they delay hospice care until very close to death. It’s important to know the truth about all the aspects of hospice care - how medicines are managed, how morphine is really used for someone who’s dying, when to start hospice, and Do Not Resuscitate orders work. Gabby

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00:45:54

Mideo is a Breakthrough Method to Digitize Your...

The Heart of Hospice Podcast ·

2025/02/07

Dr. Fred Mirarchi is working to create personalized, specific advance care plans for patients, accommodating every stage of life and end of life wish. After seeing clinicians in the hospital struggle to determine exactly what patients’ wishes were, Fred realized documentation of advance directives didn’t truly communicate clearly. He and the team at Mideo Health have developed a best-practice model for documenting health care directives. Using a video format allows patients to customize

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00:56:59

Filmmaker Serene Meshel-Dillman Focuses on End of...

The Heart of Hospice Podcast ·

2025/01/31

Serene-Meshel Dillman’s documentary series Take Me Out Feet First captures the courage and compassion of people choosing Medical Aid in Dying. In the six part series, Serene features the end of life journeys of people dealing with terminal illness, as well as both her own parents. The struggles, grief, joy, and determination of those dying patients and their families shine through in the films. Serene’s vision is to educate the public about the medical aid in dying process and advocate for

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00:47:04

How to Empower the Caregiver as Care Boss

The Heart of Hospice Podcast ·

2025/01/24

After being a caregiver for her parents and husband, Jennifer O’Brien is empowering caregivers so they come through it healthy physically, emotionally, financially, and mentally. In her new book Care Boss, Jennifer has designed strategies and resources to support caregivers. Her 35+ years in healthcare leadership, partnered with all her years as an unpaid family caregiver, equipped her to write the guidebook that caregivers can use to navigate the care of their Person. If you’re one of the

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00:35:52

The Platinum Rule is the Key to Unlocking Better Care

The Heart of Hospice Podcast ·

2025/01/17

In this second episode in a two part series featuring Dr. Harvey Chochinov, we’re talking about The Platinum Rule. Providing care through the lens of the end of life provider doesn’t fully recognize the personhood of the patient. Dr. Chochinov teaches us about The Platinum Rule - treating others the way they want to be treated, instead of how we would want to be treated if the situation was ours.Connect with Dr. Harvey Chochinov Website: dignityincare.ca Virtualhospice.ca Social

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00:37:08

How to Know the Difference Between Healthcare and...

The Heart of Hospice Podcast ·

2025/01/10

Dr. Harvey Chochinov is teaching us how to go beyond providing healthcare to provide health-caring for the people we serve. Patients are people before they need to engage with the healthcare system. That personhood should be supported and validated with compassion and dignity. Dr. Chochinov has also led a large program of research on dignity within the healthcare setting, which includes the development and study of Dignity Therapy. As a Distinguished Professor of Psychiatry at the

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00:44:07

Learning About Death, Dying, and How to Do It Better

The Heart of Hospice Podcast ·

2025/01/03

Death Doula Darnell Lamont Walker is listening to the dying and speaking up to advocate for their needs. As a Death Doula who is also male and black, Darnell works to facilitate conversations about death in the black community. He’s a unique blend of skills and talents - an Emmy-nominated children’s writer, a documentary filmmaker, and a death doula. Darnell is a listener, a companion to people with serious illness. He’s working to create change around our perceptions of grief, death

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00:55:38

Death Doula Kacie Brings a New Perspective to Death...

The Heart of Hospice Podcast ·

2024/12/27

As a nurse and End of Life Doula, Kacie Gikonyo cares for the dying while working to make a lasting impact on end-of-life support. Kacie realized during the pandemic that she was called to work with the dying. She trained with INELDA (the International End of Life Doula Association) to become an End of Life Doula. Her special area of doula practice is with younger persons with a terminal illness, focusing on end of life conversations and legacy projects. Kacie believes in fostering

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00:47:51

Making End of Life Care Better With Dr. Ira Byock -...

The Heart of Hospice Podcast ·

2024/12/20

Dr. Ira Byock believes hospice can heal its own dysfunction by holding providers and clinicians responsible for the care we provide and how we provide it. Physician Dr. Ira Byock is a voice for change in the hospice industry, and an advocate for quality end of life care. His many years of experience in hospice medicine, coupled with the compassion he has for people dealing with serious illness, have made him an industry leader in the U.S. According to his website (irabyock.org), he is

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00:42:16

How to Have Fewer Regrets at End of Life

The Heart of Hospice Podcast ·

2024/12/13

As Editor-in-Chief of The Bucket, David Abend takes on the ultimate marketing challenge: rebranding death by showing how embracing mortality can lead to a more fulfilling life. The Bucket is an online magazine that helps people make choices to reduce deathbed regrets (DBRs). With a background in creative direction and copywriting, co-founder and Editor-in-Chief David Abend has spent decades helping people see things differently. The Bucket offers a mix of podcasts, interviews, and articles

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00:54:59

The Information You Need to Know About Funerals From...

The Heart of Hospice Podcast ·

2024/12/06

Licensed funeral director and End of Life Doula Christa Ovenell is busting myths about funerals, and sharing practical tips on how to plan a funeral service that reflects your values and needs. As a community-based Death Educator, Christa is the founder of Death’s Apprentice Education & Planning Inc., a company that specializes in holistic advance care planning for individuals and forward-thinking companies. Christa leads with her heart when it comes to guiding clients through death and

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00:56:14

The Remarkable Caregiving Story of Stanley and...

The Heart of Hospice Podcast ·

2024/11/29

Allison Applebaum stood by her dad Stanley as his caregiving partner, respecting his wishes and maintaining his quality of life through the very end of his life. Allison was previously the Founding Director of the Caregivers Clinic at Memorial Sloan Kettering Cancer Center, the first program of its kind in the United States to provide comprehensive psychosocial care to family members and friends of patients who are in the caregiving role. Her father Stanley, a talented and prolific composer

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00:45:21

When Professional Grief Becomes Personal: A...

The Heart of Hospice Podcast ·

2024/11/25

In this final episode of our special 4 part series, Hospice Educator Barbara Karnes shares the personal story of her husband’s end of life journey and death. She opens up about all the emotions she experienced as she and her family supported Jack Karnes after his diagnosis with a terminal illness. Jack died four months after he was diagnosed with lung cancer. Barbara and Jack had been married for 61 years at the time of his death. After working over 40 years in end of life care, Barbara

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00:51:37

Caregiver Creates Legacy of Love After Loss

The Heart of Hospice Podcast ·

2024/11/22

Susan Combs will tell you she had a great dad. Her caregiving experience at the end of his life inspired her to give back to the veteran community. Susan’s dad Major General Roger E. Combs was a huge influence on her life. Roger battled with throat cancer related to Agent Orange for ten years, eventually dealing with a feeding tube toward the end of his life. A simple act - his request to eat pancakes - launched a non-profit organization that supports military veterans. Susan is the

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00:40:33

Learning How to Say the Last Goodbye with Barbara Karnes

The Heart of Hospice Podcast ·

2024/11/18

After a 40 year hospice career, Barbara Karnes knows a thing or two about end of life care. Today’s special episode is part 3 of our 4 part series in honor of National Family Caregivers Month and National Hospice and Palliative Care Month. Barbara calls her introduction to working with the dying “divine intervention” that occurred because of a random connection with a hospice worker. She spent five years working at the bedside, eventually moving into administrative positions and management.

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00:40:21

This Innovative Product Is Helping Us Do Death Care...

The Heart of Hospice Podcast ·

2024/11/15

Cuddle Cots and Cuddle Blankets allow families to spend more time with a loved one after a death, providing an opportunity for end of life workers to do death care better. Danielle Franck of Flexmort shares her personal experience with a Cuddle Cot in this interview. *Warning - This episode contains a description of the loss of a stillborn infant. It may not be for all listeners. Please take care of yourself.Danielle is the Business Development Executive of the US at Flexmort, a company

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00:42:32

The Rich History of Hospice: How We Got Here

The Heart of Hospice Podcast ·

2024/11/11

In episode two of our special four part series, hospice icon Barbara Karnes shares what it was like working in hospice in the early days, before there was a model for working with the dying. Barbara has worked in end of life care for over 40 years, educating and supporting end of life workers and family caregivers alike. In this conversation, we talk about what hospice work was like early in her career.Here are some highlights from this episode: Barbara shares how they cared for patients,

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00:49:47

How to Organize Your Life to Make Death Easier

The Heart of Hospice Podcast ·

2024/11/08

When his dad died, Adam Zuckerman created a highly organized kit for managing his estate. As founder of Buried in Work, he helps people get their end-of-life preparation in place. Adam’s family learned the ins and outs of hospice as they supported his dad at the end of his battle with leukemia. Although their time using hospice care was short, Adam saw the benefits of end of life care first hand.Adam's mission is to empower individuals of all ages to navigate the intricacies of estate

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00:45:22

Starting Out in the End: Talking With Barbara Karnes

The Heart of Hospice Podcast ·

2024/11/04

In honor of National Hospice and Palliative Care Month - and National Family Caregivers Month - we’re featuring a special 4-part series with special guest Barbara Karnes, Hospice Nurse and End of Life Educator. In the first episode of the series, Barbara shares how she got started in end of life care back before the Medicare hospice benefit was established in the 1980’s.Here are some highlights of this special episode: Barbara thinks she should have been a social worker but her mother

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