PODCAST

I"m Aware That I"m Rare: the phaware® podcast

I"m Aware That I"m Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early

health & fitness medicine

All Episodes

Jean M. Elwing, MD - phaware® interview 521

I"m Aware That I"m Rare: the phaware® podcast ·

2025/05/20

Dr. Jean Elwing, a leading expert in pulmonary hypertension, discusses groundbreaking advancements in treating pulmonary hypertension associated with interstitial lung disease (PH-ILD). For years, patients with this condition had limited treatment options beyond oxygen therapy and symptom management. However, recent studies have introduced new hope, showing improved patient outcomes and quality of life. Dr. Elwing emphasizes the importance of early diagnosis, ongoing research, and clinical trial

06:13

Episode 521 - Jean M. Elwing, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/05/19

Seth Hall, MBA, RRT - phaware® interview 520

I"m Aware That I"m Rare: the phaware® podcast ·

2025/05/13

Seth Hall, MBA, RRT, takes listeners on a journey through the past, present, and future of inhaled therapies. Discover how these treatments have evolved, the life-changing benefits they offer, and the revolutionary technologies that could redefine outcomes for PAH and PH-ILD patients. This Special Edition episode is sponsored by Liquidia. My name is Seth Hall. I started my career as a critical care respiratory therapist in Washington D.C. Over the years, I traveled around the country working at

11:26

Episode 520 - Seth Hall, MBA, RRT

I"m Aware That I"m Rare: the phaware® podcast ·

2025/05/12

Seth Hall, MBA, RRT, takes listeners on a journey through the past, present, and future of inhaled therapies. Discover how these treatments have evolved, the life-changing benefits they offer, and the revolutionary technologies that could redefine outcomes for PAH and PH-ILD patients. This Special Edition episode is sponsored by Liquidia. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Engage for a cure: www.phaware.global/donate #phaware Share your

Richard Channick - phaware® interview 519

I"m Aware That I"m Rare: the phaware® podcast ·

2025/05/06

Dr. Richard Channick, dives into the evolving world within pulmonary hypertension -- interstitial lung disease (PH-ILD). He sheds light on why early diagnosis matters and how new therapies are transforming care. Learn about the latest FDA-approved treatment and what’s on the horizon. This Special Edition episode is sponsored by Gossamer Bio and Pulmovant. Hello, I'm Rich Channick. I'm Professor of medicine at UCLA Medical Center and Co-Director of the Pulmonary Vascular Disease Program at UCLA

05:46

Episode 519 - Richard Channick, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/05/05

Dr. Richard Channick, dives into the evolving world within pulmonary hypertension -- interstitial lung disease (PH-ILD). He sheds light on why early diagnosis matters and how new therapies are transforming care. Learn about the latest FDA-approved treatment and what’s on the horizon. This Special Edition episode is sponsored by Gossamer Bio and Pulmovant. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Engage for a cure: www.phaware.global/donate #phaware Share

Ioana Preston, MD - phaware® interview 518

I"m Aware That I"m Rare: the phaware® podcast ·

2025/04/29

Dr. Ioana Preston explores the emerging field of pulmonary hypertension associated with interstitial lung disease (PH-ILD). She discusses the growing recognition of PH-ILD, especially after the introduction of inhaled treprostinil as a treatment, and highlights the importance of early screening and diagnosis. Dr. Preston also delves into the challenges of treating rare diseases, the evolution of research, and the hope for future therapies that could significantly improve patients' lives. This

09:24

Episode 518 - Ioana Preston, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/04/28

Raj Parikh, MD, MPH - phaware® interview 517

I"m Aware That I"m Rare: the phaware® podcast ·

2025/04/22

Dr. Raj Parikh from Hartford Hospital discusses the development of the PH-ILD Detection tool, a screening tool designed to help detect pulmonary hypertension (PH) in patients with interstitial lung disease (ILD) at an early stage. Early detection is critical, as there is often a significant delay in diagnosis of PH in ILD patients, leading to worsened outcomes. This Special Edition episode is sponsored by Liquidia. My name is Raj Parikh. I'm the Director of the Pulmonary Hypertension Center at

10:22

Episode 517 - Raj Parikh, MD, MPH

I"m Aware That I"m Rare: the phaware® podcast ·

2025/04/21

Dr. Raj Parikh from Hartford Hospital discusses the development of the PH-ILD Detection tool, a screening tool designed to help detect pulmonary hypertension (PH) in patients with interstitial lung disease (ILD) at an early stage. Early detection is critical, as there is often a significant delay in diagnosis of PH in ILD patients, leading to worsened outcomes. This Special Edition episode is sponsored by Liquidia. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials

Ron Zolty, MD - phaware® interview 516

I"m Aware That I"m Rare: the phaware® podcast ·

2025/04/15

Dr. Ron Zolty delves into groundbreaking advancements in treating pulmonary arterial hypertension. From the historical use of vasodilators to the revolutionary promise of sotatercept and seralutinib, Dr. Zolty unpacks how science is moving closer to halting—and possibly even reversing—PAH. This Special Edition episode is sponsored by Gossamer Bio. My name is Ron Zolty. I'm a cardiologist working in advanced heart failure and heart transplantation. In my training, I had to do a lot of

10:48

Episode 516 - Ron Zolty, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/04/14

Dr. Ron Zolty delves into groundbreaking advancements in treating pulmonary arterial hypertension. From the historical use of vasodilators to the revolutionary promise of sotatercept and seralutinib, Dr. Zolty unpacks how science is moving closer to halting—and possibly even reversing—PAH. This Special Edition episode is sponsored by Gossamer Bio. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Engage for a cure: www.phaware.global/donate #phaware Share your

Rajan Saggar, MD - phaware® interview 515

I"m Aware That I"m Rare: the phaware® podcast ·

2025/04/08

For decades, researchers have sought better treatments for pulmonary hypertension in interstitial lung disease, a condition that drastically impacts patients’ quality of life. In this episode, Dr. Rajan Saggar dives into the latest advancements, including new inhaled medications, upcoming clinical trials, and the push for more personalized treatment approaches. This Special Edition episode is sponsored by Gossamer Bio and Pulmovant. I am Dr. Rajan Saggar. I'm Co-Director of the Pulmonary

11:52

Episode 515 - Rajan Saggar, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/04/07

Eric Austin, MD, MSCI - phaware® interview 514

I"m Aware That I"m Rare: the phaware® podcast ·

2025/04/01

Eric Austin, MD, MSCI discusses early detection among people who are at risk of pulmonary arterial hypertension (PAH), particularly those who would have genetic susceptibility, or who may have congenital heart disease, or who may have connective tissue disease or other features that would make them more at risk of developing pulmonary arterial hypertension than the rest of the population. My name is Dr. Eric Austin. I'm a physician and physician scientist at Vanderbilt University Medical Center. I

16:11

Episode 514 - Eric Austin, MD, MSCI

I"m Aware That I"m Rare: the phaware® podcast ·

2025/03/31

Eric Austin, MD, MSCI discusses early detection among people who are at risk of pulmonary arterial hypertension (PAH), particularly those who would have genetic susceptibility, or who may have congenital heart disease, or who may have connective tissue disease or other features that would make them more at risk of developing pulmonary arterial hypertension than the rest of the population. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social

Kristin Highland, MD - phaware® interview 513

I"m Aware That I"m Rare: the phaware® podcast ·

2025/03/25

Kristin Highland, MD, from the Cleveland Clinic discusses the importance of shared decision-making and patient preferences when treating patients with pulmonary hypertension. Dr. Highland, emphasizes that the patient is the true expert on their own body and that it is crucial to understand their perspective when making treatment decisions. She highlights the need to consider factors beyond just clinical outcomes, such as side effects, costs, and the patient's ability to manage the therapy. She

17:12

Episode 513 - Kristin Highland, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/03/24

Jimmy Ford, MD - phaware® interview 512

I"m Aware That I"m Rare: the phaware® podcast ·

2025/03/18

Jimmy Ford, MD discusses the 7th World Symposium on Pulmonary Hypertension and his work on the Exploring the Patient Perspective in PH Task Force. My name's Jimmy Ford. I work at the University of North Carolina at Chapel Hill where I direct the pulmonary hypertension program. I got into pulmonary hypertension when I was a pulmonary fellow about 17 years ago. At our institution, there was not really a formally organized program or cohort of patients being followed by a pulmonary hypertension

13:55

Episode 512 - Jimmy Ford, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/03/17

Jimmy Ford, MD discusses the 7th World Symposium on Pulmonary Hypertension and his work on the Exploring the Patient Perspective in PH Task Force. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: info@phaware.com #phawareMD @UNCDeptMedicine

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I"m Aware That I"m Rare: the phaware® podcast

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