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PODCAST

The POTScast

Standing Up to POTS, Inc.

Learn about Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS) and more by joining us each week for a new episode. If you are living with POTS, MCAS or other chronic illnesses, you are not alone! Our goal is to raise awareness, nurture community, and empower patients with information and practical skills for living better with this chronic invisible illness. Each month, we feature episodes with top POTS physicians as well as POTS patients. Because many POTS

health & fitness medicine

All Episodes

00:49:34

MCAS in developmental & behavioral pediatrics with...

The POTScast ·

2025/04/15

Dr. Donna Kirchoff is an integrative developmental and behavioral pediatrician who works with children who have complex conditions, often involving MCAS, autism and other neuroinflammatory conditions like PANS and PANDAS. In this episode she and Dr. Dempsey discuss the role of mast cells in these conditions and what can be done to help these young patients. Dr. Kirchoff's website is here. Dr. Dempsey's website is here. If you liked this episode, we hope

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00:36:44

Karen from rural Canada, both patient and healthcare...

The POTScast ·

2025/04/07

Karen is a healthcare professional in rural Canadian who had onset of confusing and scary symptoms six days after her third COVID shot. It took a year to figure out symptoms like "feeling drugged when upright, yet feeling able to solve world problems when lying down." Karen shares how she found answers and the ability to be back at work, now able to recognize POTS in her patients. If you liked this episode, we hope you will click subscribe so that you

en

00:36:44

Karen from rural Canada, both patient and healthcare...

The POTScast ·

2025/04/07

Karen is a healthcare professional in rural Canadian who had onset of confusing and scary symptoms six days after her third COVID shot. It took a year to figure out symptoms like "feeling drugged when upright, yet feeling able to solve world problems when lying down." Karen shares how she found answers and the ability to be back at work, now able to recognize POTS in her patients. If you liked this episode, we hope you will click subscribe so that you

en

00:47:48

Cerebral Blood Flow Findings with Marie-Claire...

The POTScast ·

2025/03/30

POTS patients with cognitive dysfunction had SPECT imaging done to measure the blood flow to their brains and lead author, Marie-Claire Seeley, RN, PhD, discusses the dramatic findings. You can read the published article here and learn more about the Australian POTS Foundation here. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production

en

00:47:48

Cerebral Blood Flow Findings with Marie-Claire...

The POTScast ·

2025/03/30

POTS patients with cognitive dysfunction had SPECT imaging done to measure the blood flow to their brains and lead author, Marie-Claire Seeley, RN, PhD, discusses the dramatic findings. You can read the published article here and learn more about the Australian POTS Foundation here. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to help to support our production

en

00:35:30

Four nutrition findings with Jill Brook, MA

The POTScast ·

2025/03/25

Jill shares four nutrition findings from general nutrition (not done on POTS patients) that might still be of interest to POTS patients, as they have been shown to affect cognitive function, mood, pain and exercise tolerance. As always, this is not medical or dietary advice. Check with your own medical team about what is right for you. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved, donations are accepted to

en

00:35:30

Four nutrition findings with Jill Brook, MA

The POTScast ·

2025/03/25

Jill shares four nutrition findings from general nutrition (not done on POTS patients) that might still be of interest to POTS patients, as they have been shown to affect cognitive function, mood, pain and exercise tolerance. As always, this is not medical or dietary advice. Check with your own medical team about what is right for you. If you liked this episode, we hope you will click subscribe so that you don't miss an episode. If you are so moved,

en

00:39:48

Lily’s transition to career and adulting

The POTScast ·

2025/03/15

Lily was our first POTS Diaries guest (Episode #2) as a college student with severe POTS. She's back to discuss how she navigated planning a POTS-friendly career, the job hunt, cross-country move, 2 hurricanes, and maintaining her relationship with her partner -- all while managing fairly severe POTS and related conditions. Lily's smart strategies, insights and sense of humor make this episode extra valuable and fun. If you liked this episode, we hope you will click subscribe

en

00:55:04

Ayurvedic approach with Gillian Ehrlich, DNP, ARNP:...

The POTScast ·

2025/03/11

Gillian Ehrlich's NeuroVeda Clinic in Seattle treats complex patients with a wide variety of treatments including peptides, Ayurvedic medicine, diet and nutrition, imaging, mind-shifting therapeutics, plasmapheresis, and more. In this episode, Dr. Tania Dempsey interviews Gillian about her Ayurvedic approach and also her experiences with plasmapheresis. More information about Gillian and her clinic is available here. Dr. Dempsey's website can be found here. If you liked this

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00:35:32

Drug excipients and label inconsistencies with Data...

The POTScast ·

2025/03/04

Patients with sensitivities to medications or their inactive ingredients ('excipients') often use NIH's DailyMed website to look up excipients or alternative drug formulations that might work better for them. This is important as 38 "inactive" ingredients have been reported to cause allergic reactions at the doses found in medications. Data Scientist Mike Brook explains the research project that found excipient list inconsistencies in ~40% of DailyMed drug product labels, and

en

00:35:32

Drug excipients and label inconsistencies with Data...

The POTScast ·

2025/03/04

Patients with sensitivities to medications or their inactive ingredients ('excipients') often use NIH's DailyMed website to look up excipients or alternative drug formulations that might work better for them. This is important as 38 "inactive" ingredients have been reported to cause allergic reactions at the doses found in medications. Data Scientist Mike Brook explains the research project that found excipient list inconsistencies in ~40% of DailyMed drug product labels, and

en

00:55:43

Mechanisms and treatment of neuropsychiatric symptoms...

The POTScast ·

2025/02/25

POTS and related conditions are not psychiatric conditions, but can have neuropsychiatric symptoms. Nurse Practitioner Tena McLarty PMHNP-C, FNP-C specializes in POTS and comorbid conditions, with a particular interest in neuropsychiatric symptoms both from the conditions themselves and as possible side effects from drugs commonly used in these conditions. In this episode she shares the research findings - plus her personal experiences - relating to common symptoms, underlying

en

00:55:43

Mechanisms and treatment of neuropsychiatric symptoms...

The POTScast ·

2025/02/25

POTS and related conditions are not psychiatric conditions, but can have neuropsychiatric symptoms. Nurse Practitioner Tena McLarty PMHNP-C, FNP-C specializes in POTS and comorbid conditions, with a particular interest in neuropsychiatric symptoms both from the conditions themselves and as possible side effects from drugs commonly used in these conditions. In this episode she shares the research findings - plus her personal experiences - relating to common symptoms, underlying

en

00:33:27

Erica on her surgeries, search, stent, and solution...

The POTScast ·

2025/02/17

Erica was busy, active and career-focused when her health challenges began. She survived a thrice-collapsed lung, two lung surgeries (one with complications) and COVID, but was left with debilitating POTS with blood pressure spikes and chest pain. She spent thousands of dollars consulting concierge doctors, long COVID clinics, and even having a stent placed, but the thing that made the biggest difference for her POTS was neural retraining to calm her nervous system. In this

en

00:33:27

Erica on her surgeries, search, stent, and solution...

The POTScast ·

2025/02/17

Erica was busy, active and career-focused when her health challenges began. She survived a thrice-collapsed lung, two lung surgeries (one with complications) and COVID, but was left with debilitating POTS with blood pressure spikes and chest pain. She spent thousands of dollars consulting concierge doctors, long COVID clinics, and even having a stent placed, but the thing that made the biggest difference for her POTS was neural retraining to calm her nervous system. In this

en

00:55:43

Dr. Michael Ruscio on SIBO and gut health as drivers...

The POTScast ·

2025/02/13

Dr. Ruscio is a thought leader, expert, clinician, researcher and podcaster specializing in gut health and SIBO - small intestinal bacterial overgrowth. In this episode, he and Dr. Tania Dempsey discuss how gut health issues like SIBO can drive MCAS, plus Dr. Ruscio's approach to testing and treatment. This is a great conversation between top clinicians, full of practical tips for patients with SIBO and other GI issues in the context of MCAS. Dr. Ruscio's website is here:

en

00:55:43

Dr. Michael Ruscio on SIBO and gut health as drivers...

The POTScast ·

2025/02/13

Dr. Ruscio is a thought leader, expert, clinician, researcher and podcaster specializing in gut health and SIBO - small intestinal bacterial overgrowth. In this episode, he and Dr. Tania Dempsey discuss how gut health issues like SIBO can drive MCAS, plus Dr. Ruscio's approach to testing and treatment. This is a great conversation between top clinicians, full of practical tips for patients with SIBO and other GI issues in the context of MCAS. Dr. Ruscio's website is here:

en

00:24:19

Provider Profiles: Dr. Leonard Weinstock and his most...

The POTScast ·

2025/02/05

Dr. Leonard Weinstock -- gastroenterologist, prolific researcher, and clinician on a mission to cure syndromes -- returns with his grandchild, Max, to discuss MCAS, his latest research projects, the release of his Triad documentary, and why he is so driven to keep helping people with mysterious complex syndromes. If you are a fan of Dr. Weinstock as we are, you'll enjoy hearing him in the role of both dedicated physician and dedicated grandfather. If you'd like to consider

en

00:24:19

Provider Profiles: Dr. Leonard Weinstock and his most...

The POTScast ·

2025/02/05

Dr. Leonard Weinstock -- gastroenterologist, prolific researcher, and clinician on a mission to cure syndromes -- returns with his grandchild, Max, to discuss MCAS, his latest research projects, the release of his Triad documentary, and why he is so driven to keep helping people with mysterious complex syndromes. If you are a fan of Dr. Weinstock as we are, you'll enjoy hearing him in the role of both dedicated physician and dedicated grandfather. If you'd like to consider

en

00:44:24

Lisa on living independently with POTS, blindness,...

The POTScast ·

2025/01/26

Since birth Lisa has lived without eyesight or normal hormones, but it wasn't until her 50's that POTS and long COVID struck. But that hasn't stopped her from travelling, singing in a choir (including solos) and living independently. Lisa is an expert on developing smart strategies to live better with physical challenges: In addition to doing it for her own unique combo of conditions, her profession is teaching classes to people without eyesight on living independently. Lisa

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372 results

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