PODCAST

ALS Podcast

ALS Philadelphia

Stories from The ALS Association Greater Philadelphia Chapter

government & organizations non-profit

All Episodes

32:11

Episode 64 Cory Walts

ALS Podcast ·

2016/04/13

Cory Walts, the Fitness Center Director and Strength and Conditioning Coach at Haverford College, has been organizing the Joe Schwartz '83 Memorial 3k Run/Walk since 2008. In this podcast, Cory talks about his years organizing this great event, the support from students, staff, and alumni, and how this activity has grown over the years to raise thousands of dollars for the ALS cause. Listen, subscribe on iTunes, share, and join the Ninth Annual Run/Walk on Sunday, April 24 by signing up

46:16

Episode 63 Bryan Cutler and Ellyn Phillips

ALS Podcast ·

2016/04/06

Pennsylvania State Representative Bryan Cutler returns to the ALS Podcast to talk about his personal history with ALS and the power of advocacy. He is joined by Greater Philadelphia Chapter President Ellyn Phillips as she shares her ALS story on the podcast for the first time and talks about how she and Bryan have known each other for over 20 years in their united battle to end ALS. In this episode, Bryan and Ellyn talk about how ALS has impacted their lives, the value of sharing stories with

26:21

Episode 62 with Tom Giordano

ALS Podcast ·

2016/03/30

It’s #PodcastDay and today, Tom Giordano of Pond Lehocky Stern Giordano, LLP joins the #Podcast to share his personal story about losing his uncle to ALS and how that experience has influenced his legal career, helping people with Social Security Disability, including others with ALS. Tom is also proud to be among our first sponsors for the 2016 Greater Philadelphia Walk to Defeat ALS. Listen, share, comment, and then join Tom and thousands of others at a walk near you

30:54

Episode 61 Chris Scofield and Scott Israel

ALS Podcast ·

2016/03/23

Chris Scofield and Scott Israel are both passionate about ALS and the ALS Express bike ride. In this podcast, they talk about their past experience with the ride, their new role on the bike committee, and about how their personal connections to ALS make them so dedicated to finding a cure. Listen, subscribe, share, and then join them at ALS Express on Saturday, June 18, ending at Morey's Piers, by registering at www.als-express.org

42:37

Episode 60 Dan Quinn

ALS Podcast ·

2016/03/16

The Lake-Quinn family has been raising money for ALS research for 25 years in memory of Billy Lake and in this Podcast, Dan Quinn talks about the quarter century of work for the ALS cause, how loved Billy was by family and friends, and the work that he and Patti Lake-Quinn do for their multiple events with the Chapter. Learn more about the Billy Lake NCAA Beef and Beer on Friday, March 18 and the fall Billy Lake Basketball Marathon at www.billylake.org and get involved today

42:54

Episode 59 Christina Martin

ALS Podcast ·

2016/03/10

In the fall of 2015, Chris Martin, Chair of the Greater Philadelphia Walk to Defeat ALS, talked about his family story on our ALS Podcast. Now his mother, Christina Martin, talks about working with her son to fight ALS, how her husband Wayne fought ALS nearly 10 years ago and the Chapter services that helped then, the many events she enjoys, and her extensive work on the Chapter's board. Listen, subscribe on iTunes, and then get involved in the ALS cause today at www.alsphiladelphia.org

29:47

Episode 58 Jill Cawthern

ALS Podcast ·

2016/03/03

Jill Cawthern was just 9 years old when her father Tom passed away from ALS in 2001. Since then, her family has continued to fight ALS in his name in many ways, especially with ALS Advocacy. For a decade now, Jill has attended ALS Advocacy Days in Washington, DC with her mother Jayne, where she has made friend and, more importantly, made a difference in securing funding for vital research programs. Listen, share, subscribe, and join us for Advocacy Days in Washington, DC from May 8-10 at

30:38

Episode 57 with Jen LaRegina, RN

ALS Podcast ·

2016/02/24

Jen LaRegina has been a nurse with The ALS Association Greater Philadelphia Chapter for eight years, with a focus on Northeast Pennsylvania. Her hometown of Sugarloaf may be small, but she has a wide reach to help people with ALS and their families. In this podcast, Jen talks about how care has improved in her eight years, providing services to a rural population, and the benefits of technology. This May, Jen will be involved with the NEPA Walk to Defeat ALS. Join her at

40:46

Episode 56 Jamey PIggott

ALS Podcast ·

2016/02/18

Jamey Piggott has worked for The ALS Association Greater Philadelphia Chapter for roughly six months, but he's been connected to the ALS cause for many years. In this podcast, Jamey shares stories of his friend Wes's battle with ALS, how the events department works at the Chapter, and what he learned at the annual ALS Association Leaderships Conference. Jamey is very involved in the ALS Express Ride to Defeat ALS, Hot Chocolate, and the Walk to Defeat ALS. Join him at one of these events at

41:45

Episode 55 - Thomas Heyl

ALS Podcast ·

2016/02/11

Everyone involved in the fight against ALS has an inspiration. For Tony Heyl, the Director of Communications and Public Policy at the Greater Philadelphia Chapter, that inspiration was his grandfather, who passed away in 2007 from the disease. In this podcast, Tony talks to his dad, Tom Heyl, about caring for someone with ALS, facing tough conversations with a loved one, and the support of a local ALS Association Chapter. Listen, share, subscribe on iTunes, comment, and then support the ALS Care

41:47

Episode 54 Bob Grimes

ALS Podcast ·

2016/02/02

Bob Grimes is loving husband to Despina, who has been living with ALS for ten years. He appreciates every day with her, but he also realizes that he needs help along the way to be a caregiver and to relieve some of his own stress. In addition to using the clinic services at Hershey Medical Center, Bob and Despina have begun using the Howard I. Abrams In Home Care Program, which provides up to 12 hours of in home care for a person with ALS per week. Listen, share, subscribe on iTunes and support

42:59

Episode 53 with Jill Kaplan and Maryellen Bowers

ALS Podcast ·

2016/01/28

Episode 1 of the ALS Podcast featured Larry Kaplan talking about Hot Chocolate 2015. Now, one year later, his wife Jill Kaplan joins the podcast to talk about Hot Chocolate 2016! She is joined by Maryellen Bowers of Cakes and Candies by Maryellen as they both discuss how they prepare for the annual Hot Chocolate event, what guests can expect, recruiting sponsors, and why you should attend this year. Learn more about Hot Chocolate at Adventure Aquarium at www.alsphiladelphia.org/hot-chocolate

51:11

Episode 51 Phil Avillo

ALS Podcast ·

2016/01/21

Phil Avillo is a United States Marine veteran of the Vietnam War, an amputee, college professor, coach of many sports, loving husband and father, and is living with ALS. His many years of life experience, particularly his willingness to walk away from what was familiar at points in his personal history, have prepared him for this next step of being an ALS advocate. As Phil gets ready to raise awareness for the Hershey Walk to Defeat ALS, he joins the ALS Podcast to discuss his life, his diagnosis,

35:43

Episode 50 Gail Houseman Kelly Slipakoff

ALS Podcast ·

2016/01/14

ALS Association Greater Philadelphia Chapter staff nurse Gail Houseman started the Chapter's Visiting Volunteer program 15 years ago. Since then, over 100 volunteers have participated in the program to provide help and companionship to people with ALS in the Chapter's area. Kelly Slipakoff was the very first VV and she continues to be involved in the program to this day. In this podcast, Gail and Kelly talk about the program, what they've learned, and how to be good friends to those living with the

39:53

Episode 49 with Sarah Brendle

ALS Podcast ·

2016/01/07

Sarah Brendle was diagnosed with ALS in 2009. Since then, she has been active in the ALS community and active as a mother raising three smart, caring children. In this podcast, she discusses how it felt to learn that she had ALS, the help from her family, the services from The ALS Association, and the many events that she has participated in over the years. Sarah also talks about the value of sharing her story with others. Listen, share, subscribe on iTunes, and get involved today at

42:50

Episode 48 with Steve Hildebrand

ALS Podcast ·

2015/12/31

In the final ALS Podcast of 2015, Steve Hildebrand talks about his wife's battle with ALS, the events the family has participated in over the years, and raising a young daughter all along the way. He explains the many challenges of being a caregiver. Listen, subscribe on iTunes, and honor caregivers with a donation at www.alsphiladelphia.org/careappreciation

46:28

Episode 47 with Karen Stull

ALS Podcast ·

2015/12/23

Karen Stull cared for her brother during his battle with ALS 15 years ago. That caregiving experience continues to impact her to this day. Listen to her perspective on ALS, being a caregiver, and how the disease affects an entire family and then get involved at www.alsphiladelphia.org

38:59

Episode 47 with Meg Dresher

ALS Podcast ·

2015/12/17

As the Holiday season gets into full swing, Meg Dresher talks about how her family has united in support of her mom during her battle with ALS. In this podcast, we discuss the challenges of getting diagnosed, services from the Greater Philadelphia Chapter, and caring for caregivers. Listen, share, subscribe on iTunes and support those who provide care at www.alsphiladelphia.org/careappreciation

45:46

Episode 46 with Andy Miller

ALS Podcast ·

2015/12/10

After being diagnosed with ALS, Andy Miller took on every opportunity to raise awareness and to find a cure. He has started his own awareness effort called One and Half Legs to let people know about his life with ALS and the latest in research across the world. In this podcast, Andy shares his story and his hopes for an end to ALS.

45:30

Episode 45 with Alexander and Noah Snyder-Mackler

ALS Podcast ·

2015/12/02

Dr. Scott Mackler lived with ALS for over 15 years. In that time, he lost his ability to walk, eat, and speak, but he remained very active in his professional and family lives, raising his sons and coordinating groundbreaking research himself. He also started the Scott Mackler Assistive Technology Program to make sure that people with ALS can get the tools they need to communicate and live fuller lives. In this podcast, his sons Noah and Alexander talk about their father, the results of the

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