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PODCAST

Foundation Fighting Blindness

Foundation Fighting Blindness

The Foundation Fighting Blindness is the driving force in the global development of treatments and cures for blinding diseases. To learn more, go to FightingBlindness.org.

science

All Episodes

00:03:18

Sepul Bio Launches Phase 2b Clinical Trial for USH2A...

Foundation Fighting Blindness ·

2024/12/12

Known as ultevursen, the USH2A RNA therapy was licensed from ProQR.

en

00:32:10

Eye on the Cure Podcast | Episode 77: Dr. Bob Bell

Foundation Fighting Blindness ·

2024/12/06

Bob Bell, PhD, chief scientific officer at Ascidian Therapeutics, talks with host Ben Shaberman about STELLAR, the company's Phase 1/2 clinical trial for its emerging RNA-rewriting therapy for Stargardt disease (ABCA4 mutations). Dr. Bell also provides overviews of Stargardt disease, the role of RNA in cells, and the advantages of RNA re-writing over other genetic treatment approaches. Learn more about the clinical trial at STELLAR. Learn more about the prescreening study for STELLAR at

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00:28:39

Eye on the Cure Podcast | Episode 76: The...

Foundation Fighting Blindness ·

2024/11/13

When the Lemay-Pelletier family from Montreal learned that three of their four children were losing vision from retinitis pigmentosa, they made the bold decision to spend 15 months traveling the world to give their kids as many visual memories as possible. Podcast host Ben Shaberman talks to the family about their many incredible adventures and the National Geographic documentary (to stream on Disney+ in late 2024) that beautifully captured the journey.

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00:03:43

Atsena’s LCA1 Gene Therapy Licensed by Nippon...

Foundation Fighting Blindness ·

2024/11/13

The companies are planning a Phase 3 clinical trial for the promising gene therapy.

en

00:02:00

BlueRock’s Photoreceptor Cell Therapy to Move into...

Foundation Fighting Blindness ·

2024/10/30

The Foundation funded Dr. David Gamm for development of the induced pluripotent stem cell approach to be used in the trial.

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00:03:32

Kiora Receives Authorization for Phase 2 Clinical...

Foundation Fighting Blindness ·

2024/10/29

The 36-participant trial will take place at multiple sites in Australia.

en

00:37:54

Eye on the Cure Podcast | Episode 75: Sharon King

Foundation Fighting Blindness ·

2024/10/25

Sharon King, co-founder and president of Taylor’s Tale, talks to host Ben Shaberman about her family's journey when her daughter Taylor was diagnosed with Batten disease, a life-limiting, neurodegenerative disease that includes vision loss as a symptom. Taylor’s Tale is raising awareness of, and research funding for, Batten disease. Sharon is also a tireless advocate for the needs of the rare disease community.

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00:02:59

Opus Genetics, Ocuphire Merger to Boost Advancement...

Foundation Fighting Blindness ·

2024/10/23

Merger will provide additional capital for gene therapy development.

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00:00:36

#ShareYourVision | White Cane Day

Foundation Fighting Blindness ·

2024/10/15

#WhiteCaneDay is here! Let's celebrate the strength and independence the white cane symbolizes! Do you use a white cane or other tools? Share your story with #ShareYourVision!www.FightingBlindness.org/ShareYourVision

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00:02:32

Safety Clinical Trial Launched for Usher Syndrome 3 Drug

Foundation Fighting Blindness ·

2024/10/11

Researchers hope the molecule will slow the vision and hearing loss associated with USH3.

en

00:00:59

#ShareYourVision this Blindness Awareness Month |...

Foundation Fighting Blindness ·

2024/10/11

To help spread awareness during October’s Blindness Awareness Month, the Foundation Fighting Blindness invites you to share your unique experiences with blinding diseases through our social media campaign, #ShareYourVision. Just as no two fingerprints are alike, our perception of the world through our eyes is equally distinct. Let’s come together as a beacon of hope, emphasizing the resilience found in the uniqueness of our sight. Join us this October and share your story through written word,

en

00:34:07

Eye on the Cure Podcast | Episode 74: Dr. Kia Washington

Foundation Fighting Blindness ·

2024/10/11

Dr. Kia Washington, a professor in the Division of Plastic and Reconstructive Surgery at the University of Colorado, Anschutz Medical School, talks to host Ben Shaberman about her work in whole eye transplantation. Dr. Washington is also the first Black female plastic surgeon in the country to hold the title of full professor and she discusses the challenges of ensuring diversity and inclusion in her field. This episode is sponsored by Johnson & Johnson.

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00:00:35

#ShareYourVision | What do you want others to know...

Foundation Fighting Blindness ·

2024/10/11

To help spread awareness during October’s Blindness Awareness Month, the Foundation Fighting Blindness invites you to share your unique experiences with blinding diseases through our social media campaign, #ShareYourVision. Just as no two fingerprints are alike, our perception of the world through our eyes is equally distinct. Let’s come together as a beacon of hope, emphasizing the resilience found in the uniqueness of our sight. Join us this October and share your story through written word,

en

00:02:33

Vision: A Memoir of Blindness and Justice — A New...

Foundation Fighting Blindness ·

2024/09/26

“Tatel’s humility and tenacity shine. The result is a stirring reflection on an extraordinary life,” Publishers Weekly

en

00:03:09

4DMT Planning Phase 3 Clinical Trial for Wet AMD Gene...

Foundation Fighting Blindness ·

2024/09/23

Known as 4D-150, the wet AMD gene therapy performed well in a Phase 2b clinical trial.

en

00:19:25

Eye on the Cure Podcast | Episode 73: Dr. Zuhal Butuner

Foundation Fighting Blindness ·

2024/09/20

Dr. Zuhal Butuner, chief medical officer at Sepul Bio, talks with host Ben Shaberman about her company's two emerging RNA therapies – sepofarsen (for LCA10) and ultevursen (for USH2A) – formerly in clinical trials sponsored by ProQR. Dr. Butuner discusses how the RNA treatments work, what was learned from earlier clinical trials, and Sepul Bio's plans to move the therapies back into human studies.

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00:03:07

AAVantgarde Bio’s Dual-Vector USH1B Gene Therapy...

Foundation Fighting Blindness ·

2024/09/18

The USH1B trial is the first ever for a dual AAV gene therapy delivered to the retina.

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00:02:42

Nanoscope Planning Phase 3 Trial of its Optogenetic...

Foundation Fighting Blindness ·

2024/09/17

The Phase 3 trial is expected to begin in Q1 2025.

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00:41:55

Eye on the Cure Podcast | Episode 72: Hannah Scanga

Foundation Fighting Blindness ·

2024/08/23

Hannah Scanga, the supervisor of genetic counseling and the ocular genetics service at the University of Pennsylvania Medical Center, talks to host Ben Shaberman about the basics of genetic testing and counseling, as well as deeper topics such as inheritance patterns, reasons for variations in disease severity, and variants of unknown significance.

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00:34:18

Eye on the Cure Podcast | Episode 71: Dr. Leonide Saad

Foundation Fighting Blindness ·

2024/08/09

Leonide Saad, PhD, founder and chief scientific officer of the biotech Alkeus, talks to host Ben Shaberman about his company’s emerging therapy, gildeuretinol, a modified form of vitamin A which has performed well in clinical trials for people with Stargardt disease.

en

255 results

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