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PODCAST

Foundation Fighting Blindness

Foundation Fighting Blindness

The Foundation Fighting Blindness is the driving force in the global development of treatments and cures for blinding diseases. To learn more, go to FightingBlindness.org.

science

All Episodes

00:02:33

Vision: A Memoir of Blindness and Justice — A New...

Foundation Fighting Blindness ·

2024/09/26

“Tatel’s humility and tenacity shine. The result is a stirring reflection on an extraordinary life,” Publishers Weekly

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00:03:09

4DMT Planning Phase 3 Clinical Trial for Wet AMD Gene...

Foundation Fighting Blindness ·

2024/09/23

Known as 4D-150, the wet AMD gene therapy performed well in a Phase 2b clinical trial.

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00:19:25

Eye on the Cure Podcast | Episode 73: Dr. Zuhal Butuner

Foundation Fighting Blindness ·

2024/09/20

Dr. Zuhal Butuner, chief medical officer at Sepul Bio, talks with host Ben Shaberman about her company's two emerging RNA therapies – sepofarsen (for LCA10) and ultevursen (for USH2A) – formerly in clinical trials sponsored by ProQR. Dr. Butuner discusses how the RNA treatments work, what was learned from earlier clinical trials, and Sepul Bio's plans to move the therapies back into human studies.

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00:03:07

AAVantgarde Bio’s Dual-Vector USH1B Gene Therapy...

Foundation Fighting Blindness ·

2024/09/18

The USH1B trial is the first ever for a dual AAV gene therapy delivered to the retina.

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00:02:42

Nanoscope Planning Phase 3 Trial of its Optogenetic...

Foundation Fighting Blindness ·

2024/09/17

The Phase 3 trial is expected to begin in Q1 2025.

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00:41:55

Eye on the Cure Podcast | Episode 72: Hannah Scanga

Foundation Fighting Blindness ·

2024/08/23

Hannah Scanga, the supervisor of genetic counseling and the ocular genetics service at the University of Pennsylvania Medical Center, talks to host Ben Shaberman about the basics of genetic testing and counseling, as well as deeper topics such as inheritance patterns, reasons for variations in disease severity, and variants of unknown significance.

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00:34:18

Eye on the Cure Podcast | Episode 71: Dr. Leonide Saad

Foundation Fighting Blindness ·

2024/08/09

Leonide Saad, PhD, founder and chief scientific officer of the biotech Alkeus, talks to host Ben Shaberman about his company’s emerging therapy, gildeuretinol, a modified form of vitamin A which has performed well in clinical trials for people with Stargardt disease.

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00:11:01

Beacon Story | Para triathlete Deb Chucoski

Foundation Fighting Blindness ·

2024/08/06

Check out this exclusive Beacon Story podcast with WROC’s Adam Chodak and professional Para triathlete Deb Chucoski as they discuss living with Stargardt disease and the amazing achievements of those who refuse to let it define them. Deb’s journey is a testament to the power of resilience and determination. Hear her story and how the Paralympic Games provide a platform for athletes with vision loss and any disability to showcase their extraordinary talents! This special Foundation Fighting

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00:02:55

AREDS Formula Reduces Risk of Visual Acuity Loss for...

Foundation Fighting Blindness ·

2024/07/30

Previously, the formula was thought to only reduce risk of early age-related macular degeneration advancing to late-stage disease

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00:22:29

Eye on the Cure Podcast | Episode 70: Karen Petrou

Foundation Fighting Blindness ·

2024/07/26

Karen Petrou, the new board chair at the Foundation, talks to host Ben Shaberman about her vision for the Foundation moving forward. Karen has been an active director on the Foundation’s board for nearly two decades. She is co-founder and managing partner of Federal Financial Analytics, a firm providing analytical and advisory services on legislative, regulatory, and public-policy issues affecting financial services companies. Karen has RP and lives in Washington, DC, with her guide dog, Ike.

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01:07:06

VISIONS 2024 | Clinical Trials: What Should You Know?

Foundation Fighting Blindness ·

2024/07/19

Speakers: Todd Durham, PhD; Kristin Macdonald and Thomas Mendel, MD, PhDThis session will provide clinician and participant perspectives on inherited retinal disease clinical trials and discuss the importance of natural history studies for interventional clinical trials.

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01:04:58

VISIONS 2024 | Gene Agnostic Therapeutic Approaches

Foundation Fighting Blindness ·

2024/07/19

Speakers: Dan Chung, DO, MA; Michael Voevodsky, MBA abd Jami Kern, MBA, PhD This session will discuss gene agnostic therapeutic approaches, which are applicable to multiple retinal diseases and patients at early to mid-stage of disease progression.

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00:20:26

VISIONS 2024 | Karen Petrou "Vision for the Future"

Foundation Fighting Blindness ·

2024/07/19

VISIONS 2024 | Karen Petrou "Vision for the Future" by Foundation Fighting Blindness

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00:57:30

VISIONS 2024 | Tribute, Awards and Closing

Foundation Fighting Blindness ·

2024/07/19

Honoring John Corneille, JD, on his retirement from the Foundation Fighting Blindness and the Lulie's Light Awards.

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01:06:46

VISIONS 2024 | Eye Health and Nutrition

Foundation Fighting Blindness ·

2024/07/19

Speakers: Paul Bernstein, MD, PhD and Abigail Fahim, MD, PhD This session will discuss how dietary supplements and lifestyle choices can influence eye health (e.g. smoking, exercise).

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01:03:40

VISIONS 2024 | Inherited Retinal Disease Genetics:...

Foundation Fighting Blindness ·

2024/07/19

Science Plenary Session Speakers: Todd Durham, PhD; Kristi Lee, MS, CGC and Ramiro Maldonado, MD This session will discuss the importance of genetic testing and give an overview of the Foundation's My Retina Tracker® Registry.

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00:57:42

VISIONS 2024 | Optogenetics for Sight Restoration...

Foundation Fighting Blindness ·

2024/07/19

Speakers: Paul Bresge; Eric Daniels, MD and Ethan Rossi, PhD This session discusses optogenetics, a method of endowing non-photoreceptor cells with light-sensing capabilities. This is the most applicable to late-stage patients.

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01:00:57

VISIONS 2024 | Navigating Air Travel—A Southwest...

Foundation Fighting Blindness ·

2024/07/19

Speaker: James Ashworth This session will discuss practical tips and strategies for traveling with vision loss on Southwest Airlines, information such as accessible transportation options, navigating airports, finding accessible accommodations, and using assistive technology. The session aims to empower participants with the knowledge and confidence to explore air travel regardless of their level of vision loss.

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01:26:57

VISIONS 2024 | Clinical & Research Updates: Retinitis...

Foundation Fighting Blindness ·

2024/07/19

Speakers: Robert Hyde, MD, PhD and Miranda Scalabrino, PhD This session will feature clinicans and researchers discussing recent updates for Retinitis Pigmentosa.

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01:26:58

VISIONS 2024 | Clinical & Research Updates: Leber...

Foundation Fighting Blindness ·

2024/07/19

Speakers: Bikash Pattnaik, PhD and Ramiro Maldonado, MD This session will feature clinicans and researchers discussing recent updates for Leber Congenital Amaurosis (LCA).

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242 results

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