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PODCAST

Two Disabled Dudes

The 2DD podcast is about setting sights beyond the challenges in your life and dreaming big, making a plan, and then executing like mad. You are guaranteed an emotional rollercoaster, and practical thoughts that you can apply to your life with this podcast. Hosts Sean and Kyle are both affected by a rare disease called Friedreich’s ataxia (FA). FA affects their balance and coordination, significantly limiting their physical abilities. However both dudes have completed several long distance bike

education self-improvement

All Episodes

45:48

123 - Why Do We Keep Our True Selves Hidden?

Two Disabled Dudes ·

2020/10/12

Anyone who has listened to this podcast before has heard The Dudes go on and on about the power of community and the importance of connecting to others. So why is our first reaction to pull away when things get hard? Denial? Pride? Self-preservation? Fear? Listen as the dudes try to break down this complex topic. They probably need some professional help... This topic all started with a little column Sean wrote:

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41:57

122 - Red Tape is Easier With Help

Two Disabled Dudes ·

2020/10/04

Government programs such as Social Security provide essential services for people with disabilities. But navigating through the bureaucracy can be a nightmare. That's why there are companies such as Allsup Disability Insurance Services and people like Mary Dale Walters - to help us make sense of it all! Listen as she gives us a great start to the conversation and provides resources for where to find out more. https://www.allsup.com/

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58:40

121 - How to Join the rideATAXIA Global Challenge

Two Disabled Dudes ·

2020/09/28

Using our collective effort. participants in the rideATAXIA Global Challenge will power the team around the globe in 30 days. During this time the team will be introducing all of us to the brilliant minds behind the effort to treat and cure Friedreich's Ataxia. Get more info and register at rideataxia.org/globalchallenge or join Team #CrankinWithKyle HERE. Join us on Strava to contribute to the goal of traveling around the globe! Cycling - https://www.strava.com/clubs/710903 Running -

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42:52

120 - What is Alport Syndrome? - Kevin Schnurr

Two Disabled Dudes ·

2020/09/20

In 2012, at the age of 26, Kevin Schnurr was unexpectedly diagnosed with Alport syndrome after being rushed to the hospital with high blood pressure. After two years on peritoneal dialysis, he received a living donor kidney transplant from a close friend in May 2014. Kevin’s desire to help others in the rare disease community led to him volunteering at Alport Syndrome Foundation (ASF) in 2012. He later served in a position as ASF Social Media Specialist in 2014 and part-time Patient Outreach

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39:21

119 - Are You Messy Like Kyle or Neat Like Sean?

Two Disabled Dudes ·

2020/09/13

Sean and Kyle are polar opposites in so many different ways. But this is a strength rather than a weakness. This week the Dudes discuss their differences and why they work well together.

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39:10

118 - How We Can Serve the Community Through Google's...

Two Disabled Dudes ·

2020/09/06

Like it or not, communicating with smart devices has become a huge part of our lives. For people with disabilities, this communication can be an essential part of making it through the day. However these devices have a hard time understanding speech that is outside what they've heard before. Google has launched an effort called Project Euphonia to retrain our devices to understand people who have speech impairments. Bob MacDonald is one of the leaders of the project and he joins The Dudes to talk

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39:59

117 - What does Team Gleason have in Common with Google?

Two Disabled Dudes ·

2020/08/30

Blair Casey is the Assistant Executive Director of Team Gleason - an organization founded by former NFL player Steve Gleason. The organization is committed to providing for and finding solutions for persons living with ALS. Team Gleason’s staff and volunteers work tirelessly every day to empower those living with ALS to live with continued purpose and as productively and independently as possible. Blair joins the Dudes to talk about their work to support Google's Project Euphonia and how we can all

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52:56

Bonus Conversation With Friends!

Two Disabled Dudes ·

2020/08/26

BONUS episode! We received a lot of comments about Episode 114 (the encounter with Debora) so we invited a few friends to join us to talk about the sometimes awkward interactions with strangers who may be uncomfortable with disability. Friends who joined us are Shandra and Christian from Florida, Leona from Colorado, and Effie Parks (host of the Once Upon a Gene Podcast) from Seattle. This bonus episode is unedited. Enjoy!

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37:07

116 - What would you change about yourself if you could?

Two Disabled Dudes ·

2020/08/23

If you could change something about yourself, what would it be? In this episode, the dudes tackle this question as it relates to disability or as it relates to life in general. Listen and reach out if you have thoughts about this subject.

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40:14

115 - Leading the VEDS Movement - Katie Wright

Two Disabled Dudes ·

2020/08/16

Where do we start after a life threatening diagnosis. Start a YouTube Channel of course! That's what Katie did. She started connecting with the Vascular Ehlers Danlos Syndrome (VEDS) community and now she leads the VEDS Movement for the The Marfan Foundation. Find out more at thevedsmovement.org. And find out more about the people behind the movement at translucentone.blog

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35:15

114 - Don't Judge a Dude by his Wheelchair

Two Disabled Dudes ·

2020/08/10

Curiosity about someone's disability often comes from a good place but depending on how it is delivered, it can create awkward or even offensive situations. This week the dudes struggle with how to react in these awkward situations. It's good for someone to ask questions but there is a line somewhere. Listen for real life stories and honest conversation.

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36:52

113 - How do we Define Each Other?

Two Disabled Dudes ·

2020/08/03

In the opening episode of Season 4, Sean and Kyle admit to being a little lazy lately and then commit to getting back on the wagon. That's the power of accountability! And it's the power of their commitment to their listeners - one insightful episode per week for the next 4 months! The meat of the episode is all about how we tend to define ourselves and each other by the immediate circumstances. The Dudes postulate that perhaps we should be defined by the entirety of what we do rather than one or

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39:33

112 - Season Finale - Different Reactions to Coronavirus

Two Disabled Dudes ·

2020/05/25

Why do we all react differently to a situation - especially when the stakes are high, such as the current situation with Coronavirus? Sean and Kyle have a few thoughts to share but first we must hear about Sean's recent cluster at physical therapy, and Kyle explains how it is possible to lock yourself out of your own bathroom. Season 4 starts in August but there are 111 other episodes to enjoy so check them out. We hope you have a great summer!

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56:32

111 - Copiing in Times of Uncertainty with Team Amicus

Two Disabled Dudes ·

2020/05/18

We’ve had the privilege to work with Amicus Therapeutics on multiple occasions and each time we are moved by their commitment and consistent execution of their corporate mission. This virtual patient panel they facilitated is no exception! Three weeks into the company’s work-from-home arrangements due to COVID-19, Amicus wanted to continue connecting their team members with each other and the patient communities they work on behalf of. We were honored to moderate the conversation between Naomi

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41:52

110 - How Rare Diseases Impact Carriers - Taylor Kane

Two Disabled Dudes ·

2020/05/11

After a brave fight, Taylor Kane lost her Dad to a rare disease called Adrenoleukodystrophy (ALD) when she was 3 years old. She subsequently found out that she was a carrier of this X-linked disease. For a long time it was believed that "carriers don't get symptoms." However, that myth has been busted and Taylor Kane has a clear mission in life. She started a non-profit called Remember the Girls that builds support and community for carriers of X-linked diseases. What is X-linked? The Dudes had

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39:16

109 - Hawk's Eye View on Duchenne MD - Hawken Miller

Two Disabled Dudes ·

2020/05/04

Hawken Miller is an accomplished young writer with a clear purpose in life. He is an incredible representative for the Duchenne Muscular Dystrophy Community and he has a passion for the work of CureDuchenne. Writing is his chosen medium and he has a keen interest in the e-sports world. He uses video games to connect with others in the Duchenne Community and he uses writing to explain video games to the every day person. Hawken is a recent graduate of USC and his journalism experience includes The

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27:55

108 - #QuarantineLife

Two Disabled Dudes ·

2020/04/26

As everyday life continues to be dominated by coronavirus Quarantine, The Dudes discuss the pros and cons of the situation. They prognosticate about how things might change because of this pandemic. Tune in and play along with the thought experiment.

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37:06

107 - Patient focused Drug Development - James Valentine

Two Disabled Dudes ·

2020/04/20

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39:25

106 - No Arms, no Legs, no Problem - Gabe Adams

Two Disabled Dudes ·

2020/04/13

Gabe Adams was born without arms or legs due to HanHart Syndrome. He joins us and shares so much about being "different" from other kids, finding his independence, dating, his upbringing in the Mormon-Christian church and so much more. Gabe is no stranger to people pointing, staring or talking negatively in extreme and cruel ways. Still, he has defined and recognizes his own value and has built a platform to inspire and encourage others. Don't miss this interview!

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30:55

105 - The Dudes Vent

Two Disabled Dudes ·

2020/04/05

Sometimes frustrations get the better of us. And in quarantine, we are all on edge a little more than usual. In this episode, the dudes put their focused conversation aside for a bit to vent a few frustrations and ramble aimlessly. Enjoy :-)

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