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PODCAST

Two Disabled Dudes

The 2DD podcast is about setting sights beyond the challenges in your life and dreaming big, making a plan, and then executing like mad. You are guaranteed an emotional rollercoaster, and practical thoughts that you can apply to your life with this podcast. Hosts Sean and Kyle are both affected by a rare disease called Friedreich’s ataxia (FA). FA affects their balance and coordination, significantly limiting their physical abilities. However both dudes have completed several long distance bike

education self-improvement

All Episodes

51:28

283 - Disability Advocacy in Work and Travel

Two Disabled Dudes ·

2025/11/12

In this episode, Kyle and Sean discuss the importance of disability employment and accessible travel with guest Daniel Van Sant, Director of Disability Policy at the Harkin Institute. They explore the challenges faced by disabled individuals in the workforce, the significance of National Disability Employment Awareness Month, and the barriers to travel for those with disabilities. Daniel shares insights on advocacy, the need for positive representation of disabled individuals, and the current trends

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36:46

282 - Adapt the Plan, Not the Dream

Two Disabled Dudes ·

2025/10/25

It’s a live-recorded birthday hangout as Kyle turns 44 and Sean dials in from his new (very echoey) apartment mid-move. After shout-outs to folks in the live chat, the Dudes dive into a candid conversation about dreaming big—and how diagnoses, delays, and logistics don’t have to kill big goals, they just change how you chase them. Sean shares why he postponed his world’s-longest stairway climb and how reframing timelines, adapting methods, and asking for help keep the dream intact. Together they

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58:05

281 - Pixels With Purpose - Ben Forred

Two Disabled Dudes ·

2025/10/07

This live episode features longtime friend and rare disease advocate Ben Forred. After years as a scientist studying rare conditions and leading a global patient registry, Ben launched Zebra Site Studios to design websites tailored specifically for rare disease organizations. In this conversation, Kyle, Sean, and Ben dig into the unique challenges of advocacy websites—balancing accessibility, multiple stakeholder needs, compliance, fundraising, and SEO. With his deep personal and professional

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53:46

280 - Is Accessibility Really About Access… or Attitude?

Two Disabled Dudes ·

2025/09/16

Sean and Kyle reconnect after travel, skipping a planned live stream to actually experience London. Kyle opens with the saga of curb-damage to his new accessible van—weeks of repairs, inspections, and isolation—before the relief of finally getting back on the road. From there, the conversation pivots to travel takeaways: how attitude—not just laws—shapes access. In London (and across the Netherlands and Paris), they encountered a “whatever it takes” mindset: bartenders hauling out awkward ramps with

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46:09

279 - 2DD LIVE: The Power of Owning Your Disability

Two Disabled Dudes ·

2025/08/22

Recorded live in-studio (CA and PA), Kyle and Sean welcome viewers and then dive into a vulnerable discussion about the transition from walking to using assistive devices like walkers and wheelchairs. Incorporating comments from the audience, they talk honestly about the embarrassment, shame, and pride tied to showing visible signs of disability, as well as the unexpected freedom and safety these tools can bring. The conversation expands into themes of feeling like a burden, hiding pain, struggling

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48:38

278 - Mic Trouble, a Gift Card, and Streaking on a...

Two Disabled Dudes ·

2025/08/13

This replay of our first-ever Two Disabled Dudes Podcast live broadcast captures all the excitement—and a few mic mishaps—of going live with our audience. Listeners from around the world joined in via chat while we shared personal updates, gave away a $20 Amazon gift card, and welcomed returning guest Effie Parks, host of Once Upon a Gene. Effie reflected on how our show inspired her to start her own podcast and shared moving stories of how her work connects and empowers rare disease

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37:09

277 - Season Finale - Gratitude, Growth, and Dog Poop...

Two Disabled Dudes ·

2025/05/26

In the final episode of season 13, after a brief discussion about dog poop DNA, Kyle and Sean reflect on how their priorities, perspectives, and self-image have evolved over time. From awkward teen years and early adult panic to working through tough moments, they explore the power of hindsight and personal growth. The conversation dives into public misperceptions of disability, body image struggles, and the ways they’ve learned to let go of what doesn’t matter. They wrap up with gratitude for a

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29:02

276 - World Domination…With a Twist of Kindness

Two Disabled Dudes ·

2025/05/19

In Episode 276, Kyle kicks things off with a brunch story involving an oversized, impossible-to-handle coffee mug and a series of well-intentioned but clumsy attempts to make it right.The episode then shifts gears with a fun and thought-provoking compilation of answers from past guests to the question: If you ruled the world, what would you change? Responses range from practical ideas like increasing accessibility and reducing barriers, to grand visions of kindness, open science, and even perfect

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38:13

275 - A Soft Blanket and a Bold Mission

Two Disabled Dudes ·

2025/05/12

In this episode, Sean and Kyle kick things off with a nostalgic dive into Kyle’s latest midlife hobby—collecting Sacramento Kings basketball cards from the early 2000s. What began as a simple eBay gift for his nephew spiraled into a full-on tribute to his college years, complete with prized cards now stashed in a personal safe. The dudes banter about their shared sports memories, the glory days of Bibby and Weber, and how even Shaq’s son is now playing ball in Sacramento. It’s a fun and lighthearted

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44:10

274 - When Compassion Leads the Play: Inside...

Two Disabled Dudes ·

2025/05/05

Sean kicks things off with an update on his long-standing Starbucks habit, revealing surprising progress in cutting back—even if a freshly remodeled store briefly pulled him back in. It’s a light and honest moment that sets the tone before shifting into something deeper: a conversation with Brett Brackett, former NFL player and current president of Uplifting Athletes.Brett shares how his journey from the football field to rare disease advocacy has been driven by compassion, purpose, and a desire to

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42:44

273 - Letting Go of One Dream to Discover a Thousand...

Two Disabled Dudes ·

2025/04/28

In this episode, Kyle and Sean get real about what it means when a circumstance such as rare disease forces you to let go of old dreams, grieve unexpected losses, and slowly uncover new paths forward. It’s an honest conversation about redefining fulfillment and learning to live fully — even when life looks different than you imagined.

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45:45

272 - Bridging Worlds: Empowering Patients and...

Two Disabled Dudes ·

2025/04/21

In classic Two Disabled Dudes fashion, the episode opens with a hilariously painful recounting of bloodwork gone wrong. Kyle survives a multi-day ordeal involving broken systems, pre-dawn wake-ups, and a forgotten ID, while Sean’s appointment gets derailed by a national holiday his lab forgot existed. Moral of the story: get your labs done early—or prepare for a side quest no one asked for.Things shift from comedy to clinical trials with guest Kendall Davis, a rare disease advocate and engagement

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36:53

271 - Rae of Hope: The Power of Inclusion

Two Disabled Dudes ·

2025/04/14

In this powerful and heartfelt episode, we sit down with Erin, founder of the Rae of Hope Foundation, to talk about caregiving, community, and what it means to find joy even when life is hard.Erin shares her family’s journey following her daughter Reagan’s epilepsy and cerebral palsy diagnoses, how caregiving shaped her 30s, and how she’s now carving out space for herself as Reagan becomes more stable. We dive into the real stuff—guilt, resilience, and the healing power of connecting with people who

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01:12:28

270 - RDD 2025 with Jett Foundation: "Disability...

Two Disabled Dudes ·

2025/04/07

In partnership with Jett Foundation, we roll into an inspiring conversation with a powerhouse panel of guests who prove that nothing—not even a ridiculously expensive adaptive wheelchair—can keep them from chasing their dreams. From power soccer to adaptive paragliding (yes, that’s a thing!), our guests share how nonprofits, grants, and a little creative Googling can help make adventure accessible.But it's not just about the gear—it's about mindset. Whether it’s treating life like a video game

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46:15

269 - Red Pandas, Wheelchairs, and the Courage to Say...

Two Disabled Dudes ·

2025/03/31

What happens when a teenager asks, “Why are you in a wheelchair?” at the bar... and it’s not weird at all? In this episode, Sean and Kyle reflect on what it means to be curious, considerate, and occasionally oblivious when it comes to disability—and why teens might just be winning in the empathy department. From cruise ship conversations to elevator etiquette, we explore how age, culture, and confidence shape the way people react (or don’t react) to disability.Then we catch up with our good friend

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44:20

268 - Energy Management: How Not to Become a Pile of...

Two Disabled Dudes ·

2025/03/24

Ever feel like your energy levels are on a shoestring budget? In this episode, Sean and Kyle tackle the daily balancing act of managing energy, especially with a rare disease. From the science of sleep hygiene (which, by the way, Kyle has mastered like a bedtime ninja) to the mystery of why spoon theory uses, well, spoons as its currency, they dive into the mental and physical toll of fatigue. They share personal stories of how they’ve learned to prioritize commitments, manage FOMO, and avoid

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40:51

267 - Life After Diagnosis: The Power of Humor,...

Two Disabled Dudes ·

2025/03/17

When it comes to wheelchair repairs, navigating the system shouldn’t be harder than the fix itself—but for Sean, that’s exactly what happened. In this episode, he shares the frustrating saga of dealing with a major medical equipment provider, exposing the inefficiencies, miscommunications, and outright absurdities of the process. From lost time to pointless bureaucracy, Sean’s experience highlights the challenges disabled individuals face just to maintain their independence. It’s a wild ride that

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42:57

266 - Spreading the Word, Saving Lives: Key Insights...

Two Disabled Dudes ·

2025/03/10

This episode features an interview with Heidi Wallis, Executive Director of the Association for Creatine Deficiencies (ACD). Heidi discusses ACD’s efforts in advancing research, treatments, and newborn screening for creatine deficiency disorders. Heidi shares her personal journey as a mother of two children with creatine deficiencies, emphasizing the importance of early diagnosis and treatment. The conversation also explores the challenges and progress in securing newborn screening for these

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26:29

265 - Holding Onto Hope Without Letting Go of Today

Two Disabled Dudes ·

2025/03/03

In this episode, we dive into a topic that hits close to home: the tension between hoping for a cure and fully embracing life as it is today. We explore how dreaming about a different future—whether through medical breakthroughs, financial success, or other changes—can be both motivating and, at times, limiting.Kyle shares a frustrating parking lot experience that sparks a conversation about accessibility, awareness, and the small but constant challenges we face in daily life with a disability. From

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44:36

264 - A Mother's Journey with CTNNB1 Syndrome and her...

Two Disabled Dudes ·

2025/02/24

This episode features a heartfelt conversation with Rivki, a mother of six, including her youngest son, Eli, who was diagnosed with CTNNB1 syndrome, a rare genetic disorder. She shares her journey of recognizing early developmental concerns, overcoming medical dismissals, and advocating for a proper diagnosis. She discusses the impact of Eli's condition on the family, the challenges and joys of raising a child with a challenging rare disease, and the importance of allowing her other children to

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