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PODCAST

The Heart of Hospice Podcast

Hosted by Helen Bauer, BSN RN CHPN

The Heart of Hospice podcast is dedicated to helping personal and professional caregivers who are caring for someone with serious illness. We"re here to provide information and education so people can make informed choices about end of life care.

health & fitness medicine

All Episodes

00:56:14

The Remarkable Caregiving Story of Stanley and...

The Heart of Hospice Podcast ·

2024/11/29

Allison Applebaum stood by her dad Stanley as his caregiving partner, respecting his wishes and maintaining his quality of life through the very end of his life. Allison was previously the Founding Director of the Caregivers Clinic at Memorial Sloan Kettering Cancer Center, the first program of its kind in the United States to provide comprehensive psychosocial care to family members and friends of patients who are in the caregiving role. Her father Stanley, a talented and prolific composer

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00:45:21

When Professional Grief Becomes Personal: A...

The Heart of Hospice Podcast ·

2024/11/25

In this final episode of our special 4 part series, Hospice Educator Barbara Karnes shares the personal story of her husband’s end of life journey and death. She opens up about all the emotions she experienced as she and her family supported Jack Karnes after his diagnosis with a terminal illness. Jack died four months after he was diagnosed with lung cancer. Barbara and Jack had been married for 61 years at the time of his death. After working over 40 years in end of life care, Barbara

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00:51:37

Caregiver Creates Legacy of Love After Loss

The Heart of Hospice Podcast ·

2024/11/22

Susan Combs will tell you she had a great dad. Her caregiving experience at the end of his life inspired her to give back to the veteran community. Susan’s dad Major General Roger E. Combs was a huge influence on her life. Roger battled with throat cancer related to Agent Orange for ten years, eventually dealing with a feeding tube toward the end of his life. A simple act - his request to eat pancakes - launched a non-profit organization that supports military veterans. Susan is the

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00:40:33

Learning How to Say the Last Goodbye with Barbara Karnes

The Heart of Hospice Podcast ·

2024/11/18

After a 40 year hospice career, Barbara Karnes knows a thing or two about end of life care. Today’s special episode is part 3 of our 4 part series in honor of National Family Caregivers Month and National Hospice and Palliative Care Month. Barbara calls her introduction to working with the dying “divine intervention” that occurred because of a random connection with a hospice worker. She spent five years working at the bedside, eventually moving into administrative positions and management.

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00:40:21

This Innovative Product Is Helping Us Do Death Care...

The Heart of Hospice Podcast ·

2024/11/15

Cuddle Cots and Cuddle Blankets allow families to spend more time with a loved one after a death, providing an opportunity for end of life workers to do death care better. Danielle Franck of Flexmort shares her personal experience with a Cuddle Cot in this interview. *Warning - This episode contains a description of the loss of a stillborn infant. It may not be for all listeners. Please take care of yourself.Danielle is the Business Development Executive of the US at Flexmort, a company

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00:42:32

The Rich History of Hospice: How We Got Here

The Heart of Hospice Podcast ·

2024/11/11

In episode two of our special four part series, hospice icon Barbara Karnes shares what it was like working in hospice in the early days, before there was a model for working with the dying. Barbara has worked in end of life care for over 40 years, educating and supporting end of life workers and family caregivers alike. In this conversation, we talk about what hospice work was like early in her career.Here are some highlights from this episode: Barbara shares how they cared for patients,

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00:49:47

How to Organize Your Life to Make Death Easier

The Heart of Hospice Podcast ·

2024/11/08

When his dad died, Adam Zuckerman created a highly organized kit for managing his estate. As founder of Buried in Work, he helps people get their end-of-life preparation in place. Adam’s family learned the ins and outs of hospice as they supported his dad at the end of his battle with leukemia. Although their time using hospice care was short, Adam saw the benefits of end of life care first hand.Adam's mission is to empower individuals of all ages to navigate the intricacies of estate

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00:45:22

Starting Out in the End: Talking With Barbara Karnes

The Heart of Hospice Podcast ·

2024/11/04

In honor of National Hospice and Palliative Care Month - and National Family Caregivers Month - we’re featuring a special 4-part series with special guest Barbara Karnes, Hospice Nurse and End of Life Educator. In the first episode of the series, Barbara shares how she got started in end of life care back before the Medicare hospice benefit was established in the 1980’s.Here are some highlights of this special episode: Barbara thinks she should have been a social worker but her mother

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00:46:05

How to Improve Death Literacy in a Community

The Heart of Hospice Podcast ·

2024/11/01

Death educator Lee Warren believes preparing for death in advance makes a good death possible. Over a period of two years, she experienced several deaths in her small community of 125 people, teaching her the best lessons about death as she cared for them. Those deaths, and the generous people who experienced them, offered an incredible opportunity for Lee to reweave a more holistic approach to end-of-life than the one generally offered to us in the U.S. The outcome of stewarding those

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00:36:01

Grandpad Has Made Innovative AI Available to Older...

The Heart of Hospice Podcast ·

2024/10/25

Serious illness and caregiving can be isolating. GrandPad’s AI technology keeps seniors safely connected to loved ones. Isaac Lien and his dad Scott co-founded GrandPad to meet the needs they saw in Scott’s mom. Their new AI app Grandie offers audio interaction for the user without requiring a certain format, and even learns the user’s voice and way of speaking. Because GrandPad’s network is private and encrypted, users can share photos or videos and make video calls without worrying about

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00:49:13

Honoring the Dead with Beautiful Burial Shrouds

The Heart of Hospice Podcast ·

2024/10/18

Virginia Marcolin’s background in fashion and textiles led her to start designing burial shrouds, experimenting with luxurious natural fabrics and vegetable dyes. The result was Sanctum, a brand of high-end scented burial shrouds for the natural funeral industry. Virginia sources a variety of high-quality organic fabrics which are soft to the touch and biodegradable. Fabrics are colored with non-toxic plant dyes and infused with a proprietary plant-based antibacterial formula, which inhibits

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00:48:31

Quality Care is the Goal at Residential Hospice Homes

The Heart of Hospice Podcast ·

2024/10/11

My guest Susan Hearn is talking about how she is moved and motivated by her work as executive director of a residential hospice home, and why she stays in this industry. #hospice #endoflife #death #dying #caregiver #caregivinghttps://pod.co/the-heart-of-hospice-podcast/quality-care-is-the-goal-at-residential-hospice-homes Residential hospice homes provide compassionate caregiving support for the dying. My guest Susan Hearn is talking about how she is moved and motivated by her work as

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00:44:40

How Death Teaches the Best Life Lessons

The Heart of Hospice Podcast ·

2024/10/04

The last conversation you want to have shouldn’t be the last one you do have. Filmmaker Johanna Lunn is using her lifelong curiosity about death to bring documentaries about "What happens when we die," to life. She’s the co-founder of the When You Die Project which hosts a resource-rich website, podcast, and documentary trilogy. The When You Die Project is here to facilitate a cultural dialogue most often avoided — one that begins at the end. From existential afterlife questions such as

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00:59:10

The Best Advice From a Devoted Dementia Caregiver

The Heart of Hospice Podcast ·

2024/09/27

Rosanne Corcoran, host of Daughter the Podcast is sharing her best advice about being a caregiver for a person dealing with dementia. As caregiver to her mother for 12 years, Rosanne learned how to navigate the healthcare system as an advocate, deal with sleep deprivation, and to care for herself along the way.Rosanne Corcoran is the creator and host of Daughterhood the Podcast. She is also a Daughterhood Circle leader and their Director of Content. She cared for her mother through her

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00:49:19

Get the Help You Need to Navigate a Hospice Journey

The Heart of Hospice Podcast ·

2024/09/20

Hospice nurse and End of Life Doula Gabby Jimenez of The Hospice Heart is our guest host for today’s episode, featuring a discussion of Hospice Navigation Services. When you’re looking at making decisions about end of life care for yourself or someone you love, things can seem frightening and confusing. Hospice Navigation Services can help you figure things out. We can help you feel just a little less lost. Hospice Navigation Services was founded by Hospice and Palliative Certified RN Helen

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00:45:14

How to Train Your Doctor with Dr. Matthew Tyler

The Heart of Hospice Podcast ·

2024/09/13

Hospice and palliative physician Dr. Matthew Tyler is teaching us how to have conversations with your healthcare team about what matters most to you. In addition to his work as medical director of palliative care services, Matthew educates the public about having meaningful discussions with their healthcare teams, especially the doctor. He calls it “How to Train Your Doctor”. People with serious illnesses, along with their decision-makers, can get better care if they know how to communicate

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00:51:48

How to be a Great End of Life Advocate

The Heart of Hospice Podcast ·

2024/09/06

Being an advocate for someone in hospice care is a big job. MSW Jacob Kendall of Demystifying Healthcare is teaching us how to do it well. Advocacy for his own healthcare needs has taught him how to communicate with a healthcare team to get the best care possible. Jacob teaches about the various aspects that influence that care that’s available for patients, including time and communication. He’s also looking from a 30,000 foot view as well, acknowledging that geography, poverty, time, and

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01:03:46

How to Plan for Your End of Life

The Heart of Hospice Podcast ·

2024/08/30

As co-founder of Empowered Endings, Dr. Bob Uslander, is working to shift the paradigm of End of Life Care by supporting, guiding, and teaching an empowered approach to Palliative and End of Life Care. He became aware of the gaps in hospice and palliative care that cause patients to struggle. The deaths of his parents and a dear friend provided a personal perspective into caregiving that formed Bob’s determination to meet the needs of people with serious illness in a better way. Empowered

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00:36:26

Grief Coach Shelby Forsythia on How to Grow Through...

The Heart of Hospice Podcast ·

2024/08/23

In part 2 of our grief series with Grief Coach Shelby Forsythia, Shelby talks about identifying your grief allies, different grief styles, and how to create continuing bonds with the ones you’ve lost. As founder of Life After Loss Academy, she uses what she’s learned in the years after her mother’s death to help other grievers make their way through a grief journey. Shelby uses mindfulness techniques and open-ended questions to guide her clients to welcome grief as a teacher. Shelby’s work

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00:44:53

Grief Coach Shelby Forsythia on How to Grow Through...

The Heart of Hospice Podcast ·

2024/08/16

Grief Coach Shelby Forsythia is teaching us how it’s possible to grow through grief. As founder of Life After Loss Academy, she uses what she’s learned in the years after her mother’s death to help other grievers make their way through a grief journey. Shelby uses mindfulness techniques and open-ended questions to guide her clients to welcome grief as a teacher. Shelby’s work has been featured in Huffington Post, Bustle, and The Oprah Magazine. Her heart and compassion is palpable in her

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