PODCAST

I"m Aware That I"m Rare: the phaware® podcast

I"m Aware That I"m Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early

health & fitness medicine

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Hap Farber, MD - phaware® interview 511

I"m Aware That I"m Rare: the phaware® podcast ·

2025/03/11

Harrison "Hap" Farber, MD gives a recap of PHenomenal Hope 2024, emphasizing its patient-centered approach to pulmonary hypertension (PH) research. He highlights patient stories, particularly Eric Borstein's inspiring journey of recovery and advocacy, and underscores the importance of patient-provider collaboration. Additionally, he addresses challenges in PH care, such as inclusivity in clinical trials, the role of AI in medicine, and the complexities of treating patients with substance use

14:44

Episode 511 - Hap Farber, MD

I"m Aware That I"m Rare: the phaware® podcast ·

2025/03/10

Drs. Kevin and Heather Shannon - phaware® interview 510

I"m Aware That I"m Rare: the phaware® podcast ·

2025/03/04

Co-Founder and Board Member, Drs. Kevin and Heather Shannon share the inspiring story of Camp del Corazon — a transformative summer camp for children with heart disease. Hear how one patient’s journey ignited a movement to create a safe, empowering space where kids can embrace their scars, form lifelong friendships, and experience the joy of camp without limits. From the challenges of the first year to the life-changing moments that keep them going, the Shannons share how Camp del Corazon has

22:16

Episode 510 - Drs. Kevin and Heather Shannon

I"m Aware That I"m Rare: the phaware® podcast ·

2025/03/03

Jen Cueva - phaware® interview 509

I"m Aware That I"m Rare: the phaware® podcast ·

2025/02/25

Jen Cueva, a pulmonary hypertension patient of almost two decades, discusses her diagnosis, her advocacy work, and how she uses writing to support the pulmonary hypertension community. My name is Jen Cueva. I from San Diego. I am a pulmonary hypertension patient of almost two decades. Throughout my journey with pulmonary hypertension, I have met some incredible healthcare providers, friends and family and loved ones and others in the pulmonary hypertension community. Before I was diagnosed with

13:28

Episode 509 - Jen Cueva

I"m Aware That I"m Rare: the phaware® podcast ·

2025/02/24

Jen Cueva, a pulmonary hypertension patient of almost two decades, discusses her diagnosis, her advocacy work, and how she uses writing to support the pulmonary hypertension community. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Engage for a cure: www.phaware.global/donate #phaware Share your story: info@phaware.com Like, Subscribe and Follow us: www.phawarepodcast.com. @PulmonaryNews

Stephen Gariepy - phaware® interview 508

I"m Aware That I"m Rare: the phaware® podcast ·

2025/02/18

Canadian resident, Stephen Gariepy, was diagnosed with Chronic Thromboembolic Pulmonary Hypertension (CTEPH) in 2018. After initially being active in senior hockey, his condition worsened, leading to difficulty breathing and performing daily tasks. Gariepy continues to live with this rare and terminal disease, adapting to the limitations it imposes on his daily life. My name’s Stephen Gariepy. I’m from Edmonton Alberta in Canada. I was first diagnosed with CTEPH in 2018. What had happened was

08:39

Episode 508 - Stephen Gariepy

I"m Aware That I"m Rare: the phaware® podcast ·

2025/02/17

Canadian resident, Stephen Gariepy, was diagnosed with Chronic Thromboembolic Pulmonary Hypertension (CTEPH) in 2018. After initially being active in senior hockey, his condition worsened, leading to difficulty breathing and performing daily tasks. Gariepy continues to live with this rare and terminal disease, adapting to the limitations it imposes on his daily life. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Engage for a cure: www.phaware.global/donate

Jolie Lizana - phaware® interview 507

I"m Aware That I"m Rare: the phaware® podcast ·

2025/02/11

Jolie Lizana is a pulmonary hypertension (PH) survivor and advocate. Despite enduring severe heart failure and lengthy hospitalizations, Jolie credits her medical background, determination, and the love for her child for pushing her to survive and adapt. Jolie now raises awareness through her website, www.breathtakingawareness.com, and has contributed to creating EMS protocols for PH patients, showing her dedication to empowering others with hope and resources. My name is Jolie Lizana. I am in

15:19

Episode 507 - Jolie Lizana

I"m Aware That I"m Rare: the phaware® podcast ·

2025/02/10

Allison Fenstra - phaware® interview 506

I"m Aware That I"m Rare: the phaware® podcast ·

2025/02/04

Allison Feenstra shares her transformative journey from being an active, independent young woman to navigating life with pulmonary hypertension (PH). She recounts how a sudden blackout led to hospital visits and the discovery of the condition, stemming from complications related to prolonged bed rest and birth control medication. Allison candidly discusses how she underwent a significant surgery and persevered through a high-risk pregnancy, ultimately becoming a mother. My name is Allison Feenstra

11:19

Episode 506 - Allison Feenstra

I"m Aware That I"m Rare: the phaware® podcast ·

2025/02/03

Jodi Berry - phaware® interview 505

I"m Aware That I"m Rare: the phaware® podcast ·

2025/01/28

On the 28th anniversary of her PH diagnosis, Jodi Berry shares her journey of living with pulmonary hypertension. Despite facing an initial prognosis of only a few years to live, Jodi’s determination and the support of her family, friends, and healthcare professionals helped her manage her condition while maintaining an active lifestyle. Over time, advancements in treatments and her proactive participation in clinical trials provided hope and improved her quality of life. I’m Jodi Berry. My

13:16

Episode 505 - Jodi Berry

I"m Aware That I"m Rare: the phaware® podcast ·

2025/01/27

Janette Reyes, NP - phaware® interview 504

I"m Aware That I"m Rare: the phaware® podcast ·

2025/01/21

Nurse Practitioner Janette Reyes from the Pulmonary Hypertension Program at the Hospital for Sick Children shares her extensive experience caring for pediatric patients with pulmonary hypertension. Reyes discusses the unique challenges and developmental considerations involved in treating children from infancy through their teenage years, as they transition to adulthood. Reyes also touches on the emotional and social struggles these young patients face, such as bullying and anxiety, and highlights

09:51

Episode 504 - Janette Reyes, NP

I"m Aware That I"m Rare: the phaware® podcast ·

2025/01/20

Nurse Practitioner, Janette Reyes, from the Pulmonary Hypertension Program at the Hospital for Sick Children shares her extensive experience caring for pediatric patients with pulmonary hypertension. Reyes discusses the unique challenges and developmental considerations involved in treating children from infancy through their teenage years, as they transition to adulthood. Reyes also touches on the emotional and social struggles these young patients face, such as bullying and anxiety, and highlights

Jennifer Howard - phaware® interview 503

I"m Aware That I"m Rare: the phaware® podcast ·

2025/01/14

Jennifer Howard’s inspiring story is one of resilience and hope in the face of immense challenges. Diagnosed with idiopathic pulmonary arterial hypertension (IPAH) in July 2019 after a long and frustrating path to answers, Jennifer faced the daunting reality of living with a chronic illness requiring continuous IV medication through a pump. Despite the overwhelming nature of her diagnosis, Jennifer discovered an inner strength she never knew she had. With a focus on living life to the fullest, she

08:49

Episode 503 - Jennifer Howard

I"m Aware That I"m Rare: the phaware® podcast ·

2025/01/13

Kaitlyn Salonga - phaware® interview 502

I"m Aware That I"m Rare: the phaware® podcast ·

2025/01/07

Kaitlyn Salonga shares her journey of resilience and advocacy while living with pulmonary hypertension (PH). Kaitlyn recounts her fight for personal autonomy, including a successful battle to secure surgery for her reproductive health after initial denials due to weight and health concerns. Through her triumphs, she highlights the importance of advocating for oneself in the face of medical and societal challenges. Her story is a powerful testament to embracing one’s identity, breaking down stigma,

09:04

Episode 502 - Kaitlyn Salonga

I"m Aware That I"m Rare: the phaware® podcast ·

2025/01/06

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I"m Aware That I"m Rare: the phaware® podcast

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