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PODCAST

Retina UK

Retina UK supports people affected by inherited progressive sight loss and invests in medical research to ensure that people an lead a fulfilling life, now and in the future.

business non-profit

All Episodes

00:07:48

E-Newsletter May 2024

Retina UK ·

2024/05/10

The latest e-Newsletter from Retain UK. Please consider donating to Retina UK through a monthly or quartely direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www.RetinaUK.org.uk/regular-giving to sign up, or, if you prefer, call us on 01280 821334.

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00:56:59

Webinar: How your donations make a difference...in...

Retina UK ·

2024/04/12

Join Research Development Manager, Kate Arkell as she speaks to our latest research grantees about their projects.PhD studentship: Dr Matteo Rizzi, UCL Institute of OphthalmologyInvestigating photopsia and photophobia in Stargardt disease. PhD studentship: Chloe Brotherton, Edinburgh UniversityUnderstanding why different RPGR gene mutations can lead to different diagnosis. PhD studentship: Gabriel Velichkova, UCL Institute of OphthalmologyInvestigating Stargardt disease as a target for gene

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00:09:53

e-Newsletter April 2024

Retina UK ·

2024/04/10

The latest e-Newsletter from Retina UK. If you would prefer to receive this content by email, please subscribe via our website: Join our mailing list - Retina UK

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00:14:08

Find out more about the Retina UK Weekly Lottery

Retina UK ·

2024/04/09

Join the fun and support a great cause. Our Weekly Lottery has now arrived. This podcast aims to answer any questions you may have and encourage you to take part. RetinaUK.org.uk/lottery

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00:48:28

Webinar: Fitness, blisters and fundraising ... being...

Retina UK ·

2024/03/22

This webinar was broadcast live on Thursday 21 March 2024. It is available in video format on our YouTube channel: https://youtu.be/oF5DP6XUsXk Have you ever been tempted to take part in the TCS London Marathon? In 2022 the TCS London Marathon raised £58.3 million for charity so it’s a vital source of income. Our Events and Community Fundraising Manager, James Clarke, talks to three of our 2024 runners about: - their motivation for taking part - their connection to Retina UK - the different

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00:57:18

Look Forward - Spring 2024 - Issue 182

Retina UK ·

2024/03/15

This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2024 (Issue 182). You can download a copy in PDF and Word format on the Retina UK website: ⁠⁠RetinaUK.org.uk/resources⁠⁠.The short piano music at the beginning of this recording is a tribute to Norman Pampel FCA for his much acclaimed role as honorary treasurer of the British Retinitis Pigmentosa Society for many years during the mid 1970s. It was composed by Mark Pampel, his son. Contents in this edition are as

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00:09:46

e-Newsletter February 2024

Retina UK ·

2024/02/15

The latest e-Newsletter from Retina UK. If you would prefer to receive this content by email, please subscribe via our website: ⁠⁠RetinaUK.org.uk/get-involved/mailing-list/⁠⁠.

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00:18:24

Cataract surgery for people living with inherited...

Retina UK ·

2024/02/02

Cataracts occur fairly frequently and at a relatively early age within the Retina UK community of people with inherited retinal conditions. A question that comes up over and over again is whether or not to have cataract surgery. People seem to come across conflicting advice from medical professionals, and there is understandably a lot of concern around whether the potential benefits outweigh any possible risks to remaining vision.Kate Arkell, Research Development Manager at Retina UK, is joined on

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00:50:23

Webinar: A family’s experience of clinical trial...

Retina UK ·

2024/01/26

This webinar was broadcast live on Thursday 25 January 2024. It is available in video format on our YouTube channel: https://youtu.be/3kTVF8SoA0w. With more treatments coming through the development pipeline, we are all hopeful that more of those living with inherited sight loss will be offered the opportunity to take part in clinical trials in the years to come. But what’s it like to be a participant? What do you need to consider before you commit? And how does it feel as a parent to allow your

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00:11:29

e-Newsletter - January 2024

Retina UK ·

2024/01/12

The latest e-Newsletter from Retina UK. If you would prefer to receive this content by email, please subscribe via our website: ⁠RetinaUK.org.uk/get-involved/mailing-list/⁠. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit ⁠⁠RetinaUK.org.uk/get-involved/donate/⁠⁠ to sign up, or, if you prefer, call us on 01280 821334.

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00:36:11

Blindingly Chatty - Episode 5

Retina UK ·

2024/01/12

In this last episode of Blindingly Chatty, Laura Tyler is interviewed by Paula McGrath about her internship at Retina UK, her journey before it, and all that she’s gained from her time in the organisation. Laura worked as a Communications Intern at Retina UK from February - November 2023.

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00:37:08

Blindingly Chatty - Episode 4

Retina UK ·

2024/01/11

In this month’s edition of Blindingly Chatty, Laura Tyler and Mark Pampel follow on from the subject of musical instruments and discuss composition, improvisation and performance. Mark tells us how he got into music, along with giving some tips for those who are thinking of taking music to that next level.

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00:58:12

Webinar: Artificial Intelligence (AI) with Dr Nikolas...

Retina UK ·

2023/12/07

This webinar was broadcast live on Thursday 7 December 2023. It is available in video format on our YouTube channel: https://youtu.be/x7ZyVxmla7I Nikolas is a bioinformatician, who uses computer power to tackle medical research challenges. He will be talking about his project to develop AI that will identify the genetic cause of an inherited retinal conditions from scans, without the need for a genetic test, and other ways that AI can help us with eye disease. Dr Nikolas Pontikos is a group leader

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00:53:25

Look Forward - Winter 2023 - Issue 181

Retina UK ·

2023/11/23

This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2023 (Issue 181). You can download a copy in PDF and Word format on the Retina UK website: ⁠RetinaUK.org.uk/resources⁠. Contents in this edition are as follows: Track 2: Reflecting back and looking forward (Tina Garvey) Track 3: Harnessing the power of AI Track 4: Searching for the cause of Charles Bonnet Syndrome Track 5: Thank you Track 6: 'Everything happens for a reason' Track 7: Therapy development

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01:03:33

Webinar: Support through Access to Work - World Sight...

Retina UK ·

2023/10/13

A video version of this Webinar is available on our YouTube channel: https://youtu.be/0s1C3kXnXWc Join us for a brief overview of the Government’s Access to Work scheme, learn how it could support you at work, and hear the experiences of a number of people with inherited sight loss who receive an Access to Work grant. We will be joined by Josh Freehan, Head of Internships at TPT. Josh has worked closely with Access to Work on their Get Set Progress Internship programme, so can provide some

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00:07:26

e-Newsletter October 2023

Retina UK ·

2023/10/11

The latest e-Newsletter from Retina UK. If you would prefer to receive this content by email, please subscribe via our website: https://retinauk.org.uk/get-involved/mailing-list/. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit ⁠RetinaUK.org.uk/get-involved/donate/⁠ to sign up, or, if you prefer, call us on 01280 821334.

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00:49:35

The Blind Poet, Dave Steele

Retina UK ·

2023/10/11

The Blind Poet, Dave Steele, talks candidly about his diagnosis, his poetry and his optimistic mindset. https://www.theblindpoet.net/

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00:27:31

QTVI, ECLO, ROVI - what do they mean?

Retina UK ·

2023/10/02

This podcast covers the most important professionals who work with the sight loss community, along with their abbreviations and what they do to improve people’s lives.

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00:59:08

Ask the Expert: Samantha de Silva

Retina UK ·

2023/09/29

We were joined for this popular ‘Ask the expert’ session by Samantha de Silva, a consultant ophthalmic surgeon at Oxford Universities Hospital Trust. She answered a wide variety of questions relating to inherited retinal dystrophies. If you would prefer to watch a video of the Webinar, it is available on our YouTube Channel: https://youtu.be/f_1UEV7M8jQ

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00:09:21

e-Newsletter September 2023

Retina UK ·

2023/09/21

The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit ⁠RetinaUK.org.uk/get-involved/donate/⁠ to sign up, or, if you prefer, call us on 01280 821334.

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