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PODCAST

Thriving Over Surviving Multiple Sclerosis

Multiple sclerosis (MS) is an incurable autoimmune disease. Thriving Over Surviving shares the experiences of those living with MS who lean into their core values to live their best lives. Our host, Edie, was diagnosed with RRMS in 2015. In each episode, she chats it up with MS thrivers to learn and grow from each other"s experiences. Chronic illnesses such as MS can impact our lives in ways that may become overwhelming. It is nice to know that others out there who focus on thriving despite their

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All Episodes

37:08

112 Maintaining Hope When You Have MS

Thriving Over Surviving Multiple Sclerosis ·

2023/12/28

But let's be real, MS presents difficulties. Having hope that things will get better, that there is love and kindness in the world, and that hope is in each of us makes a difference for the good. We can not hope blindly. We have to choose a course of action and stick to it. Despite the delays and setbacks along the journey hope carries us along while ersisting with an adventurous course of action. I call it a gritty hope. These are the words of Justine Calcagno who was diagnosed with MS in 2016. She

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29:49

111 Choosing Self Over Fear When Wanting To Get...

Thriving Over Surviving Multiple Sclerosis ·

2023/11/21

What is your greatest fear? Before MS, mine was probably superficial. Fear is an unpleasant emotion caused by the belief that something or someone is dangerous and likely to cause pain (physical, emotional, etc.). Fear can be intense and sometimes overpower us if we don't have the tools to work through the emotions it brings. Mary Virgi does not let fear hold her back! She leans into her core values of family and faith to climb out of negative spaces. At the time we recorded this, Mary was 14 weeks

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34:52

110 Finding A Safe Space When Multiple Sclerosis...

Thriving Over Surviving Multiple Sclerosis ·

2023/11/14

Did you know that approximately 50% of people diagnosed with multiple sclerosis are also diagnosed with depression? This is 3X more likely than in the general population. Managing mental health can be complicated especially when you also have an unpredictable autoimmune disease. Alyssa Gonzalez bravely shares her journey with MS and mental health. She was diagnosed with pediatric Multiple Sclerosis and just that process alone was overwhelming. There is so much to chat about with this gorgeous and

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30:43

109 The Crap Gap With Multiple Sclerosis Treatments

Thriving Over Surviving Multiple Sclerosis ·

2023/11/07

Have you ever experienced Crap Gap? You may know it as the end of dosing interval or the weaning-off effect. This refers to the period of time between Ocrevus infusions when you might feel a worsening of MS symptoms. This may include things such as Fatigue, cognitive fog, motor function or balance problems. You know... all the things! Kellie Batts, who has had MS since 2016 shares her experience with Crap Gap as well as her experience over the last seven years with Relapsing-Remitting Multiple

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36:20

108 Just Multiple Sclerosis

Thriving Over Surviving Multiple Sclerosis ·

2023/10/24

Has your multiple sclerosis diagnosis influenced the course of your life? Has it shifted your passions in a certain direction? Many people say that everything happens for a reason. Would being diagnosed with a chronic illness happen for a reason? Justin Loizos believes his MS diagnosis has further grown his passions. Let's chat it up with Justin. www.justcompassion.ca justmsshow.buzzsprout.com Instagram: @justinmloizos, @justcompassioncannabis, @justmultiplesclerosis

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42:37

107 Benefits of Massage For People Who Have Multiple...

Thriving Over Surviving Multiple Sclerosis ·

2023/10/17

Have you ever had a massage? Not one from a friend or lover, I'm talking from a professional masseuse? For many, massage becomes a regular part of their health routine. Massage can help with anxiety, depression, digestive disorders, fibromyalgia, headaches, insomnia, nerve issues, muscle stiffness, inflammation, and more! Angela Landeros shares how massage therapy became her passion. As someone diagnosed with MS and a massage therapist, she knows firsthand how therapeutic it can be. This equestrian

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34:17

106 The Importance of Staying Curious When You Have...

Thriving Over Surviving Multiple Sclerosis ·

2023/10/10

Remaining curious is essential, especially when seeking answers to improve our health. Asking questions is necessary, but challenging when we don't know what questions to ask. Empowering ourselves with the knowledge and strength required to tackle our daily struggles with chronic illness. Fitness Coach Marnie Bothmer, who thrives with MS, knows that curiosity is necessary to open her mind to other ways of viewing the world. Let's chat it up with Marnie! marniebothmer@gmail.com Instagram:

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29:53

105 Fear Of The Unknown With An Multiple Sclerosis...

Thriving Over Surviving Multiple Sclerosis ·

2023/09/26

When have you felt the most fear in your life? Did you know there are seven deadly fears? Fear of being alone Fear of connecting (lack of) Fear of abandonment Fear of self-assertion Fear of lack of recognition Fear of failure and success Fear of being fully alive Rachel Larsen shares how she moved beyond fear and anger to embrace vulnerability and live her best life. She removed herself from isolation and now fully enjoys her life with or without MS. Let's chat it up with Rachel.

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40:28

104 Our Emotional Health With Multiple Sclerosis

Thriving Over Surviving Multiple Sclerosis ·

2023/09/19

Would you consider yourself emotionally well? Do we even know what that feels like or should feel like? Jane Gould has found what emotional wellness is for her. She shares with us her 20-year journey with MS, what she has learned about herself, and how she finds peace in her every day life. Let's chat it up with Jane! Twitter: @ABCsofMS Substack: https://abcms.substack.com Instagram: @thrivingoversurvivingpodcast https://thrivingoversurvivingpodcast.com

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26:06

103 Knowledge Is Power With MS, But What's Next?

Thriving Over Surviving Multiple Sclerosis ·

2023/09/12

Many of us searched for answers for a long time before finding out we have multiple sclerosis. Once you had the knowledge, what did you do with it? Knowing is just the first step. Alex Sokoloff uses his core value of self-discipline to stick to his routines after learning many lessons throughout his MS experience. Let's chat it up with Alex! www.facebook.com/alexsokoloff.me/ Instagram: @thrivingoversurvivingpodcast https://thrivingoversurvivingpodcast.com

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30:32

102 It's A Marathon, Not A Sprint With Multiple...

Thriving Over Surviving Multiple Sclerosis ·

2023/09/05

What is one change in your life you would like to make? Just one change that would improve the quality of your life. One change that would make you proud of yourself. Maybe this episode with Gillian Crooks will inspire you to do just that. Or maybe you have already made a change and you can relate. Once wheelchair-bound, this marathon runner has a lot to share about having high expectations and focusing on things within our control. Let's chat it up with Gillian! Instagram: @gillian.eattobeatms

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37:00

101 Being Kind To Yourself When You Have Multiple...

Thriving Over Surviving Multiple Sclerosis ·

2023/08/29

Being kind to yourself even if you don't have MS is a struggle for many people. I am super hard on myself. But it is so important to treat yourself with kindness when diagnosed with a chronic illness. We can not blame ourselves! Joanna Bolouri is a bestselling rom-com author. Her cat Twitch reluctantly allows her and her daughter to live with him in Glasgow, Scotland. She advocates for kindness. Let's chat it up with Joanna. Twitter: @scribbles78 Facebook page: jbolouri Instagram: @joannabolouri

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27:37

100 Researchers Are Making Breakthroughs in the MS Field

Thriving Over Surviving Multiple Sclerosis ·

2023/08/22

Episode 100! And who better to talk to than Dr. Terry Wahls! A board certified internal medicine physician who conducts clinical trials testing the efficacy of diet lifestyle to treat multiple sclerosis. She is the author of The Wahls Protocol: A Way to Treat All Chronic Autoimmune Conditions Using Paleo Principles. Sign up for Dr. Wahls newsletter and get the one page summary of the diet that is used in her clinics and clinical trials to restore cellular health. Great for the refrigerator.

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25:26

99 Adopting Children When You Have Multiple Sclerosis

Thriving Over Surviving Multiple Sclerosis ·

2023/08/22

There are many opportunities to have children when you have multiple sclersosis. For many, natural childbirth is definitely an option. For those who it is not, adoption is another viable option. Melissa joins us for an update on her MS journey. She is still raising awareness and donations through Bike MS, but she also has some personal news to share with us as well. Let's chat it up with Melissa. Instagram: thrivingoversurvivingpodcast http://thrivingoversurvivingpodcast.com

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38:46

98 The Golden Rule of Multiple Sclerosis

Thriving Over Surviving Multiple Sclerosis ·

2023/08/15

Is the outcome of our multiple sclerosis diagnosis all about luck? It is difficult to think that we have no control over whether or not our disease progresses. Dominic "Dom" Shadbolt believes just that though. Whatever he believes about the progression of his own MS, he lives his life by a particular rule; Treat others the way you want to be treated, period. Can't we all just be good people and be kind to one another? At least how we treat others is within our control. Let's also treat ourselves

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29:46

97 Everyone With MS Deserves A Hero

Thriving Over Surviving Multiple Sclerosis ·

2023/08/08

Julie Stamm first joined us in Episode 17, almost two years ago. I thank Julie for her vulnerability as she shared her updates in Episode 98. Julie advocates for all of us to talk about our difficulties. Don't hold back. Julie also shares a new project she co-developed. 52 Essential Inclusion Skills - A to Z Guide to Kindness, Compassion, Respect for Diversity and Disabilities is available on Amazon by Clicking the link below. This collaboration with Harvard Educator and Health Advocate Dr. Jenny

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26:01

96 Meeting Friends In The Multiple Sclerosis Community

Thriving Over Surviving Multiple Sclerosis ·

2023/08/08

Alexis Martinez first appeared on TOSP in Episode 71. She shared what it was like for her to manage her own MS and care for her mother who has early onset Alzheimers. This time we discussed her new job and how taking on something new has impacted her daily life and self-worth. Now that I've gotten to meet Alexis in person, it no longer felt like an interview. It was more like catching up with my friend. Instagram: @itsallinmyhead Instagram: @thrivingoversurvivingpodcast

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46:02

95 MS Challenges Are An Opportunity To Learn About...

Thriving Over Surviving Multiple Sclerosis ·

2022/11/29

Ah, the optimist's perspective is one many strive to achieve. When dealing with challenges brought on by MS, it is a lot more work to stay optimistic. But the work is well worth it! Matt Knaggs possesses all the qualities of an optimist. He is self-motivated, always around the most motivated people, he believes in possibilities, he is full of joy and finds ways to express gratitude in all things. Yup, we can all learn a thing or two from Matt. Instagram: @runningwithms_official FB group: Running

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30:55

94 Vitality Over Vanity When Living With An MS Diagnosis

Thriving Over Surviving Multiple Sclerosis ·

2022/11/22

Sleep, nutrition, exercise, mindset, stress management... oh my! We cover all the things in this episode, but most importantly we discuss vitality and gratitude. Vitality is a word we use sparingly in everyday conversation because it sometimes seems unattainable. Laura Leigh may have the secret to gaining this perspective. Let's chat it up! Instagram: @wellnesswithLL FB: Wellness with LL www.wellnesswithLL.com Instagram: @thrivingoversurvivingpodcast https://thrivingoversurvivingpodcast.com/

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38:49

93 Feeling Grateful As A Single Mom Living With MS

Thriving Over Surviving Multiple Sclerosis ·

2022/11/08

The love from a child is special and the bond between mother and daughter is one of a kind. Roni shares how her daughter Grey makes it easy for her to lean into her core value of family with ease. Let's chat it up! https://www.youtube.com/baestationtv Instagram: @ronigraham https://thrivingoversurvivingpodcast.com Instagram: @thrivingoversurvivingpodcast

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