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PODCAST

Parenting Severe Autism

Shannon Chamberlin

Parenting Severe Autism is a raw, unfiltered podcast for parents and caregivers raising children with Severe Autism. Hosted by Shannon Chamberlin - a parent, not a professional - this show is your emotional lifeline, real-talk resource, and reminder that you"re not alone.From early childhood to adulthood and beyond, Shannon shares honest stories, painful truths, small victories, and survival strategies for the families the world forgets.Whether you"re in crisis mode or just need someone who gets it,

kids & family parenting

All Episodes

31:23

EP. 77: Our Son, The Welcome Mat, And The Pants...

Parenting Severe Autism ·

2026/02/11

Send a text We open our hearts about caregiver fatigue, broken trust, and the sharp edges of life with severe autism while weighing practical options like group homes and community respite. Along the way we face language boundaries, public behaviors, new obsessions, and small moments of joy that keep us going. • caregiver stress after years without respite • loss of trust with family after neglect • emotional needs of severe autism, not stereotypes • dependence vs dignity and pacing independ...

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33:17

EP 76: Private Needs, Public Stress, And The Cost Of...

Parenting Severe Autism ·

2026/01/28

Send us a text Sleepless nights, decoding a taboo topic with compassion and clarity... Safety, dignity, and small wins guide the way while we keep reaching for calmer mornings and better tools. • naming severe autism risks and caregiver isolation • addressing startle responses • coping with sleep deprivation and night chaos • removing obsessional objects that spike aggression • setting consequences for self-injury on pizza day • discussing self-pleasure without shame while teaching hygiene ...

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33:54

EP 75: Morning Reset, Calmer Days, Regulating A...

Parenting Severe Autism ·

2026/01/14

Send us a text We share how escalating anxiety pushed our family to the edge, and how a simple morning reset brought peace back. Clear boundaries, a 20-minute quiet window, shifting behavior and energy fast. Also another item on the daily menu during the Summer of Hell. • closet destruction, failed fixes, safety locks • meds context • behavior as communication • mapping triggers • the non-negotiable • visible changes in anxiety, cannabis dose, and attention loops • family roles, energy, and ...

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25:49

EP.74: What Soundtrack Does Your Severe Autism Child...

Parenting Severe Autism ·

2025/12/31

Send us a text We pause the summer saga to share what’s been blocking us: relentless environmental triggers, family drop‑ins, and a birthday derailed by overstimulation. We draw a hard line on media, lock doors during the 20‑minute adjustment window, and lean on body‑based tools to bring the baseline down. • why the home soundtrack drives meltdowns • a betrayal trigger and weeks of fallout • birthday routines, arcade overload, and damage control • the 20‑minute medication window • boun...

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36:14

EP 73: From Chaos To Connection: Parenting Severe...

Parenting Severe Autism ·

2025/12/10

Send us a text We trace a season of sleepless nights, stomping floors, and bathroom chaos into two quiet breakthroughs: independent handwashing and a shared Soup Dance that reveals connection inside repetition. A harsh LED light becomes a surprising trigger, and a softer presence opens space for growth. • recognizing environmental triggers like harsh LED lighting • coping with insomnia, nighttime roaming, and sensory seeking • testing the idea that less praise can reduce pressure • finding c...

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24:30

EP 72: Bathroom Battles And A Glimmer Of Hope

Parenting Severe Autism ·

2025/11/26

Send us a text We share a hard summer of bathroom destruction, broken trust with family, and a support group that didn’t get it, then find relief in small wins: a playful de‑escalation, emerging words, and happy tears that we learned to name. • family boundary breaches and safety risks • obsessive bathroom behaviors and home damage • product lockdowns and supervision trade‑offs • safe medical sedation tip for procedures • a simple co‑regulation trick that worked • signs of speech retur...

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29:29

EP.71: He Destroyed Things Because He Was Hurting...

Parenting Severe Autism ·

2025/11/12

Send us a text We draw a hard line on boundaries after a “fun” day out breaks our son’s diet, a chaotic family visit disrupts routine, and grief surfaces through targeted destruction. We also name caregiver resentment without shame and share a simple tech tool that averted a meltdown. • fundraiser links, storefront resources, and coffee support • standing firm when family ignores diet rules • post-visit escalation and how we confronted it • targeted destruction as communication of loss • cle...

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43:28

EP 70: It's Only Applesauce - Severe Autism Therapy...

Parenting Severe Autism ·

2025/10/29

Send us a text A candid mention about staying when others say to leave, and how structure, safety, and short, clear language can turn daily chaos into small wins. From wall padding to therapy brushes to locks and applesauce mishaps, we share what worked, what failed, and why timing matters. • reducing attention-seeking by replacing constant input with predictable access • why soothing tools must be used before stress not during • protecting space and reducing hypervigilance • two to three wo...

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21:29

What if compassion—not credentials—keeps our severe...

Parenting Severe Autism ·

2025/10/15

Send us a textWe share a raw stretch of our severe autism journey: the camp that finally said yes, why patient volunteers sometimes trump credentials, and what it costs to hold your home together when your child unravels. Along the way, we ask for community help and outline what support should look like.• subscriber‑only truth‑telling episodes and why we lock some content• GoFundMe for Safer Lifestyles Respite communities and how sharing helps• the “word accident” memory and self‑awareness moments•

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27:45

When Home Hurts: Moving, Meltdowns, and the Search...

Parenting Severe Autism ·

2025/10/01

Send us a text We face the change in the story since moving back to Illinois: the first sign of aggression that changed everything between us. We also share GeneSite results, ask about Leucovorin, weigh group homes vs “never,” and find a quiet win by the river. • impact of the Illinois move on behavior and family strain • the car attack as a turning point in safety and trust • losing verbal leverage and rebuilding boundaries • GeneSite insights, med tweaks, and timelines • curiosity about Le...

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23:02

The Fight for Inclusion in a World of Exclusion...

Parenting Severe Autism ·

2025/09/10

Send us a text Moving to Illinois with our severely autistic son brought unexpected challenges, including his increasingly violent behavior and our struggle to find appropriate medical and community support. Rejection has become an abnormally normal occurrence, but this is where it started. • Our son developed concerning rage behaviors in public • Housing search • Parent support group silence • Theatre program • Despite rejections, our son continues to show creativity and new skills • We're e...

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23:55

Navigating Severe Autism: Our Family's Difficult...

Parenting Severe Autism ·

2025/08/20

Send us a text Shannon shares the challenging journey of relocating from Wisconsin to Illinois with her severely autistic son, highlighting the unexpected difficulties they faced and the small victories that kept them going through the transition. • Preparing requires extensive preparation, ideally with videos of new locations • Transitioning to living with grandparents created significant challenges, including disrupted sleep patterns • Learning the ropes of medical cannabis in Illinois for...

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62:07

EP. 64 When Teachers Don't Listen: A Parent's...

Parenting Severe Autism ·

2025/08/06

Send us a text Shannon continues sharing emails between herself and her son Jacob's teachers in Wisconsin, revealing the challenges of advocating for a child with severe autism in the school system. • Ongoing battles with teachers about using food as a motivator despite Shannon's opposition due to potential eating disorders and specific dietary restrictions • Frustration with teachers repeatedly asking for guidance already provided in Shannon's comprehensive instruction letter • Teachers dem...

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42:39

Your Child Is Not a Zoo Animal: Fighting for Dignity...

Parenting Severe Autism ·

2025/07/23

Send us a text I share our experience with the public school system when Jacob returned after a previous traumatic incident, revealing the challenges, frustrations, and occasional victories during this difficult period. • The school promised an "adulting program" for independent living skills but Jacob never got to participate • Jacob needed three-to-one support instead of one-to-one, which the school couldn't provide • We struggled with getting consistent communication about Jacob's daily a...

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34:48

When Schools Fail: Navigating Autism Education and...

Parenting Severe Autism ·

2025/07/09

Send us a text Shannon shares the experience of returning her son to school after he was abused, revealing the challenges of finding appropriate accommodations and fighting the system at every turn. • School couldn't handle her son's needs, requiring a reduced schedule to prevent overwhelm • Battle over using a communication notebook that had always worked as a behavior management tool • School failed to provide mandated therapy services due to transitions being too difficult • Discovery of ...

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33:00

When They Function Better Without You: The Parental...

Parenting Severe Autism ·

2025/06/25

Send us a text Severe autism presents unique challenges during summer months, particularly increased elopement risk and the need for constant vigilance. • Summer heat and reduced structure may trigger more elopement behaviors in autistic children • AngelSense GPS tracking device provides location tracking and two-way communication during elopement incidents • Children with severe autism sometimes function better when parents are not present • Schools often lack understanding of severe ...

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32:21

My Son Deserves Joy Too: Fighting for Inclusion in a...

Parenting Severe Autism ·

2025/06/11

Send us a text Shannon shares a pivotal moment when she realized her son's autism was considered "severe" after he was excluded from a Disney on Ice event that his autism therapy group organized without inviting him. • Communication strategies using Disney movie references help her son understand complex concepts like family members leaving • Learning that her son requires multiple staff members for support at his therapy program • The heartbreak of discovering her son wasn't invited to a Di...

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49:23

Healing From Within: How Self-Care Transforms Caregiving

Parenting Severe Autism ·

2025/05/28

Send us a text This one's about us. The caregivers. Not the children. After watching my health deteriorate despite years of consistent workouts and healthy eating attempts, I found myself drawn to a program focused on nervous system recalibration. What happened next shocked me. Through specialized therapy techniques and somatic healing, I experienced physical transformations as my body released stored trauma. Mysterious swelling disappeared, facial tension loosened, and for the first time in ...

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15:39

EP. 58 The Exorcist in Room Two: Our Journey Through...

Parenting Severe Autism ·

2025/05/14

Send us a text Shannon shares her experience stepping back from caregiving duties to focus on her mental health after 18 years of continuous care for her son with severe autism. • Taking a temporary break in a camper near home to restore mental health after reaching burnout • Applying for fiscal sponsorship to pursue the dream of creating supportive communities for families affected by severe autism • Jacob demonstrating remembered turn-taking skills despite lack of formal therapy • Discover...

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16:50

Building S.A.F.E.R. Lifestyles: A Vision for Severe...

Parenting Severe Autism ·

2025/04/30

Send us a text I'm developing a social equity project called S.A.F.E.R. Lifestyles, designed to create communities for families dealing with severe autism. My vision addresses how most of us lack support, with villages abandoning us when we need them most. Contact us at contact.parentingsevereautism@gmail.com if you'd like to learn more or support the S.A.F.E.R. Lifestyles movement. Support the show https://www.buzzsprout.com/1989825/supporters/newhttps://psa.buzzsprout.com Get Podcast...

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76 results

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