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PODCAST

GOALS: An ALS United Podcast

ALS United Mid-Atlantic

Discussing issues important to the ALS community with views from people living with ALS and those supporting the ALS cause. Topics range from research to caregiving to advocacy and fundraising. Support the mission of ALS United Mid-Atlantic at www.alsmidatlantic.org

business non-profit

All Episodes

33:54

Mental Health Care and ALS with Alair Altiero, PhD,...

GOALS: An ALS United Podcast ·

2026/03/03

Alair Altiero, PhD, LPC, provides mental health support for people with ALS and caregivers as part of the multidisciplinary team at Penn State Health Hershey Medical Center. In this GOALS Podcast, Alair discusses the man aspects of mental health, when and how she offers her guidance, handling burnout, and how stress impacts caregiving.Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy,

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37:19

BioBank and Tissue Donation with Jefferson Weinberg...

GOALS: An ALS United Podcast ·

2026/02/24

Piera Pasinelli, PhD, Director, Weinberg ALS Center, and Gemma Krautzel, B.S., Clinical Research Coordinator, join the ALS United Mid-Atlantic GOALS Podcast to discuss the BioBank at the Jefferson Weinberg ALS Center in Philadelphia. In this podcast, they also talk about the process of post-mortem tissue donation, developing trust with ALS patients and families, multidisciplinary care, and collaboration with the ALS United Mid-Atlantic care team.To learn more about their research, visit:

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23:36

Accessible Living Solutions with RJ Adler and Alisa...

GOALS: An ALS United Podcast ·

2026/02/16

RJ Adler with Wheelpad joins the ALS United Mid-Atlantic GOALS Podcast to discuss accessible living solutions for people with ALS. In this episode, Alisa and RJ discuss how new technologies can help people by offering dignity and independence.Learn more about our programs and mission at www.alsmidatlantic.org

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38:45

Commitment to Care with Director of Care Services...

GOALS: An ALS United Podcast ·

2026/02/10

Director of Care Services Steve Spaulding, MA, joins the ALS United Mid-Atlantic GOALS Podcast to talk about the structure of our Care Services Department, the recent International ALS/MND Symposium, patient and family events, and more.Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United

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30:00

Living with ALS: A Teacher's Story. Bryan and Lisa...

GOALS: An ALS United Podcast ·

2026/02/02

Bryan Rosica is a teacher and father living with ALS. He now uses assistive technology to speak. In this ALS United Mid-Atlantic GOALS Podcast, Bryan and his wife Lisa discuss their ALS journey from diagnosis to today, including support from ALS United Mid-Atlantic care professionals, speaking at events like the Annual Celebration, and connecting with students to explain ALS.Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research

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19:10

A Family History with ALS - ALS United Mid-Atlantic...

GOALS: An ALS United Podcast ·

2026/01/27

Regina Shuster joins the ALS United Mid-Atlantic GOALS Podcast to discuss her family's history with ALS and her work at events such as the ALS United Walk.Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To

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25:24

Swallowing Issues and ALS - ALS United Mid-Atlantic...

GOALS: An ALS United Podcast ·

2026/01/20

Daniel Kelly joins Alisa Brownlee to discuss the important topic of Swallowing and ALS to address concerns, safety, and best practices. Daniel Kelly, MA, CCC-SLP, AT, is a speech-language pathologist and assistive technologist at the Jefferson Weinberg ALS Center in Philadelphia. With nearly two decades of experience in medical speech pathology, he’s focused on swallowing assessment, communication technology, and clinical training across hospital and academic settings. Daniel has taught nationally

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36:13

Respiratory Care and ALS - ALS United Mid-Atlantic...

GOALS: An ALS United Podcast ·

2026/01/13

Zachary Simmons, MD and Kathleen Twomey, MD join the ALS United Mid-Atlantic GOALS Podcast to share their work at Penn State Health Hershey Medical Center and their new innovations around respiratory care and ALS. Dr. Simmons has led the ALS Treatment Center at Penn State Health Hershey Medical Center for 30 years and Dr. Twomey is adding her expertise as a pulmonologist for ALS patients. Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold

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33:36

Grief and ALS with Mark VandeBraak, PhD, FT, MT-BC...

GOALS: An ALS United Podcast ·

2026/01/06

Mark VandeBraak, PhD, FT, MT-BC joins the ALS United Mid-Atlantic GOALS Podcast to discuss issues about processing grief for those impacted by ALS. Dr. Mark talks about the various forms of grief, expressing compassion and empathy, opening up about our concerns, and what help is available for everyone.Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care

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47:53

Tim and Jeff Kurkjian join the ALS United...

GOALS: An ALS United Podcast ·

2025/12/16

Tim Kurkjian and his son Jeff Kurkjian are hosts of the baseball podcast "Is This a Great Game or What?" They also share a strong support for the ALS cause after their family's loss of Tim's brother Matt to ALS.Tim is the proud recipient of the 2022 BBWAA Career Excellence Award for his work as a baseball writer and journalist. In this episode of the ALS United Mid-Atlantic GOALS Podcast, Tim and Jeff talk about their family's history with ALS, their love of baseball, the support from the

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38:12

Communication Issues Related to ALS. GOALS Podcast...

GOALS: An ALS United Podcast ·

2025/12/09

In this podcast episode, Alisa Brownlee and Amanda Cuth discuss the challenges and strategies related to speech therapy for individuals with ALS. They explore the impact of ALS on communication, the importance of voice preservation techniques such as voice banking and cloning, and the role of technology in enhancing communication. The conversation also covers compensatory strategies for speech therapy, emergency communication needs, and the emotional aspects of dealing with communication changes

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20:56

ALS United Mid-Atlantic GOALS Podcast: Giving Tuesday...

GOALS: An ALS United Podcast ·

2025/12/02

Gale Ferranto and Buona Foods are uniting to match your donations for #GivingTuesday to ALS United Mid-Atlantic. In this GOALS Podcast, Gale discusses her mother's battle with ALS and her support for ALS care and research.Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic

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33:03

How BCI and AI can combine to help people with ALS:...

GOALS: An ALS United Podcast ·

2025/11/25

Charles Poeppelman joins the ALS United Mid-Atlantic GOALS Podcast to discuss how Synchron is developing Brain Computer Interface technology to improve the lives of people with ALS. In this podcast, we discuss how AI can enhance the power of BCI, how BCI can improve safety, and how this technology can address accessibility and communication.Learn more about the January 21st educational webinar at learnaboutbci.com Additional information at www.synchronbci.com Our mission is to unite and empower the

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15:12

Stair Glides and ALS - ALS United Mid-Atlantic GOALS...

GOALS: An ALS United Podcast ·

2025/11/18

Alisa Brownlee hosts this special ALS United Mid-Atlantic GOALS Podcast with guest Jamie Pace from ⁨@amRAMP⁩ about the benefits of stair glides for people with ALS. In this episode, Alisa and Jamie talk about the process of installing a stair glide and how it can be used to improve access in the home.Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care

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26:36

Veterans and ALS - ALS United Mid-Atlantic GOALS...

GOALS: An ALS United Podcast ·

2025/11/11

Bill O'Sullivan is a veteran living with ALS. He joins the ALS United Mid-Atlantic GOALS Podcast to talk about his family's history with ALS, his family's proud history of military service, his participation in ALS research, and his years of support for the ALS United Walk. Listen to his story and join our efforts today.Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing

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34:43

How AI could advance research into diseases like ALS...

GOALS: An ALS United Podcast ·

2025/11/04

Dr. Irene Rombel is the CEO, President, & Co-Founder of BioCurie. In this ALS United Mid-Atlantic GOALS Podcast, she talks about how AI can be a tool to advance research into diseases like ALS. Dr. Rombel also talks about how AI can reduce costs of research so more companies can invest in rare diseases, what therapies are working now, and what gives her hope in the future of medicine. Learn more about her work at www.biocurie.ai Our mission is to unite and empower the ALS community through a

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18:07

ALS United Mid-Atlantic GOALS Podcast 37 with Alisa...

GOALS: An ALS United Podcast ·

2025/10/28

Jamie from AMRAMP joins Alisa Brownlee on the ALS United Mid-Atlantic GOALS Podcast to discuss our ramping program and how it benefits people with ALS.Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To

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34:41

Genetic Counseling and ALS - ALS United Mid-Atlantic...

GOALS: An ALS United Podcast ·

2025/10/21

Courtney Fitch, MS, CGC, is a Certified/Licensed Genetic Counselor at the ALS Treatment Center at Lehigh Valley Health Network. In this ALS United Mid-Atlantic GOALS Podcast, Courtney explains the role of a Genetic Counselor, how she works with the clinic team, advances in genetic understanding and science, and offering support to ALS patients and families.The mission of ALS United Mid-Atlantic is to unite and empower the ALS community through a collaborative approach to fostering bold research

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43:05

ALS United Mid-Atlantic GOALS Podcast 35 with Chloe...

GOALS: An ALS United Podcast ·

2025/10/14

Chloe LaBella, SLP-CCC and Arianna Jarosinski, M.S. SLP-CCC join the ALS United Mid-Atlantic GOALS Podcast to discuss their work Hackensack Meridian Health Jersey Shore University Medical Center on Augmentative and Alternative Communication for people with ALS.In this podcast discussion, Chloe and Arianna share their expertise on AAC, how they introduce the concept of communication devices to a person diagnosed with ALS, advances in technology, and their collaboration with Dr. Mary Sedarous and

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28:23

ALS United Mid-Atlantic GOALS Podcast 34 with Mary...

GOALS: An ALS United Podcast ·

2025/10/07

Mary Grams is the new Executive Director at ALS United North Carolina. In this GOALS Podcast, Mary discusses her family's ALS story, progress in ALS care, the extensive research programs in North Carolina, and how the ALS United network collaborates to advance the ALS cause. To learn more about her work, visit www.alsnc.org Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and

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54 results

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