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PODCAST

Patient Advocacy Now

Greater National Advocates

Come learn about the independent patient advocacy world and how the state of healthcare is changing in our country.

health & fitness medicine

All Episodes

36:03

Building Systems That Last: Rebeka Acosta on...

Patient Advocacy Now ·

2025/12/08

In this heartfelt episode, we welcome back pediatric advocate Rebeka Acosta, BCPA, for a deeply personal and inspiring conversation. Rebeka shares the emotional decision to step back from her advocacy practice to focus on her son’s health, while reflecting on the tremendous progress made for pediatric healthcare in Nevada. From her early work helping families navigate fragmented systems to the upcoming launch of the state’s first freestanding children’s hospital, she discusses the power of pe...

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43:01

Systems Insider to Board-Certified Advocate:...

Patient Advocacy Now ·

2025/12/01

Rachel J Nash traces her journey from rehabilitation counseling roles inside large systems (state vocational services, VA, Medicaid social work) to launching a private advocacy practice anchored in ethics, transparency, and patient empowerment. She explains why board certification matters to her—adherence to a code of ethics, continuing education, and clear boundaries such as not serving as a client’s POA—and how her work today focuses on adults, especially veterans and civilians with complex...

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35:19

The Power of Person Centered Care with Cynthia Overton

Patient Advocacy Now ·

2025/11/24

In this episode, we sit down with author and advocate Cynthia Overton to discuss her new book, The Clear Cane Chronicles, which explores what person-centered care really looks like in practice. Cynthia explains the evolution of models of care from traditional to patient-centered to person-centered and how the last one looks beyond the medical condition to the whole individual, considering lifestyle, relationships, and beliefs. She shares her personal journey of surviving spinal cord surgery i...

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30:24

Opening Skies for Sick Kids: How Miracle Flights...

Patient Advocacy Now ·

2025/11/17

In this episode, we speak with Dana Jarvis from MiracleFlights.org, a nonprofit that has provided more than 165,000 free flights over the past 40 years to help children access specialized medical care not available near home. Serving all 50 states, Miracle Flights covers commercial airfare for pediatric patients aged 17 and under who must travel for treatment of rare, chronic, or complex medical conditions. Dana explains that once a child flies with Miracle Flights even once before turning 18...

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31:15

Healthcare Powered by You: Self-Advocacy in a Broken...

Patient Advocacy Now ·

2025/11/12

Healthcare advocate Joyce Griggs shares her journey from navigating her partner’s dangerous post-surgery crisis to founding United States of Healthcare, a platform empowering patients to become their own advocates. Drawing on 20 years in healthcare communications, Joyce opens up about the assumptions that nearly caused tragedy, and why self-advocacy is as essential a life skill as financial literacy. She explains how preparation, asking the right questions, and challenging assumptions can cha...

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34:57

Your GPS in Healthcare: Navigating Medicine, Mindset,...

Patient Advocacy Now ·

2025/10/27

In this episode, Dr. Nicole Rochester shares her remarkable journey from practicing pediatric medicine to becoming a nationally recognized health advocate. Sparked by her experiences caring for her late father, Dr. Rochester realized how vital her medical knowledge and connections were in navigating a broken healthcare system. That realization inspired her to create Your GPS Doc in 2017, where she helps families and patients understand their diagnoses, bridge communication gaps, and make empo...

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34:42

Balancing Compassion and Medicine: From Hospice to...

Patient Advocacy Now ·

2025/10/20

In this episode, we sit down with Dr. Sherika Newman, a hospice and palliative medicine physician and founder of Doctor in the Family. Dr. Newman shares how her journey in patient care led her to launch a patient advocacy service and later expand into weight management. She explains why obesity is now understood as a chronic brain-based disease, the groundbreaking role of GLP-1 medications, and the concept of “food noise” that many patients struggle with. Dr. Newman also discusses her philoso...

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40:48

Fighting for Answers: The Journey from Patient to...

Patient Advocacy Now ·

2025/10/06

In this episode, Victoria Killian shares her decades-long journey navigating the medical system with chronic illnesses, beginning at age 12 with debilitating back pain. She describes her struggles with missed diagnoses, the eventual discovery of ankylosing spondylitis, setbacks from conflicting medical opinions, and the ongoing search for clarity around a potential connective tissue disorder. Victoria explains how her personal experiences led her to embrace advocacy, eventually becoming a Boa...

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40:16

Caring Before Crisis: Planning, Advocacy, and Aging Well

Patient Advocacy Now ·

2025/09/29

Social worker and aging life care manager Amy McWilliams shares her journey from caring her aging parents to founding Not Your Average Joe, an advocacy practice where she provides Personalized Senior Advocate Care Management and Services that help aging adults and their families navigate complex care systems. She opens up about balancing parents’ independence with safety, and the importance of planning. McWilliams also emphasizes how small acts of advocacy can transform lives and discusses bu...

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32:01

“Donna Sullivan on Rare Disease Advocacy and the...

Patient Advocacy Now ·

2025/08/27

In this emotional and revealing interview, Donna Sullivan shares how her experience as a mother to children with Ehlers-Danlos Syndrome (EDS) led her into full-time advocacy. When her children faced chronic pain, misunderstood diagnoses, and rejection from hospitals, she realized the problem was bigger than her own family. Families across the country were being dismissed, misdiagnosed, and even accused of medical child abuse when seeking help for rare conditions. After witnessing the tragic s...

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43:16

Healing Chronic Pain: The Hidden Link Between Trauma...

Patient Advocacy Now ·

2025/08/25

In this insightful interview, Andrew Gill, LPC, shares his unique approach to counseling clients with chronic pain, emphasizing the profound intersection between physical suffering and mental health. Drawing from years of experience, Gill highlights how anxiety, depression, and even trauma often accompany long-term physical pain, especially in patients navigating fragmented and impersonal medical systems. He advocates for a holistic framework that includes somatic therapy, mindfulness, and mo...

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46:51

The Truth About EDS: A Doctor’s Experience with...

Patient Advocacy Now ·

2025/08/22

Dr. Linda Bluestein shares her extraordinary medical and personal journey through the underrecognized world of connective tissue disorders, particularly hypermobile Ehlers-Danlos syndrome (hEDS) and hypermobility spectrum disorders (HSD). Initially trained as an anesthesiologist, Dr. Bluestein faced a lifetime of unexplained symptoms—ranging from joint pain and allergies to abdominal issues and severe fatigue—before being properly diagnosed in her 40s. After experiencing medical gasligh...

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31:50

Shelbey Arevalo: Bridging the gap between patients...

Patient Advocacy Now ·

2025/08/19

In this episode, Shelbey Arevalo shares her powerful mission as a national dental advocate and consultant. She has spent over 15 years in the dental industry and now dedicates herself to bridging the communication and access gap between patients and dental providers. Through her nonprofit, National Dental Advocacy, she offers services that include virtual consultations, billing and coding support, and direct advocacy in complex dental cases. Shelbey explains how misunderstandings between prov...

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43:18

Kristen Miller: A Guiding MedStar for the Patient’s...

Patient Advocacy Now ·

2025/08/01

Kristen Miller is a healthcare delivery researcher with nearly two decades of experience working with MedStar Health. Her work focuses on improving how care is delivered across all phases of the patient journey, from preparation before appointments to follow-up after visits. Unlike traditional bench science, her research emphasizes real-world tools and systems designed to help providers and patients make safer, more informed decisions. She emphasizes the importance of tools tailored to variou...

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39:16

Inside the life of a Personal Medical Strategist with...

Patient Advocacy Now ·

2025/07/03

In this compelling interview, Kayla Thompson-Riviere, RN and Board Certified Patient Advocate, shares her journey from burned-out ICU nurse to the first and only independent advocate on Maryland’s Eastern Shore. Confronted with the confusion surrounding the term "patient advocate"—often associated with hospital employees or free services—Kayla rebranded herself as a personal medical strategist. The new title not only clarifies her role but also subtly signals a paid, professional service. Wit...

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40:55

Why Nurses Are Leaving Healthcare – And How...

Patient Advocacy Now ·

2025/05/06

In this episode of Patient Advocacy Now, we sit down with Teri Frykenberg, a nationally recognized leader in patient advocacy and patient safety. With a background as an ICU nurse, a three-time author, a newspaper columnist, and a serial entrepreneur in the patient advocacy space, Teri brings a wealth of experience and insight into the evolving challenges of healthcare. Teri shares her personal journey into patient advocacy, which began with a near-tragic medical emergency involving her own f...

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28:44

From Cardiologist to Advocate in Crisis featuring...

Patient Advocacy Now ·

2024/12/03

In this heartfelt episode of Patient Advocacy Now, Dr. Chris Price, a retired cardiologist turned patient advocate, shares his incredible journey of resilience, service, and transformation. Known for his calm demeanor during medical emergencies, Dr. Chris discusses how his health struggles, including autoimmune challenges, inspired him to deepen his commitment to patient advocacy.Drawing from over two decades in cardiology, he offers a unique perspective on empowering patients, navigating the...

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34:27

Navigating Solo Aging and Inspiring Elder Orphans...

Patient Advocacy Now ·

2024/12/03

In this thought-provoking episode of Patient Advocacy Now, we sit down with Nancy Ruffner, a trailblazer in patient advocacy and a passionate advocate for solo agers. Nancy shares her inspiring journey from social work to private patient advocacy, reflecting on how personal caregiving experiences shaped her mission to guide others through the complex healthcare system. With a sharp focus on aging without traditional caregivers, Nancy unpacks critical issues like medical missteps, legal p...

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45:08

Guiding Lives Through Advocacy With Sensitivity...

Patient Advocacy Now ·

2024/12/03

In this powerful episode of Patient Advocacy Now, Lisa Berry Blackstock, founder of Soul Sherpa, shares her remarkable journey from estate administrator to trailblazing patient advocate. Lisa opens up about her personal battle with misdiagnosis and debilitating chronic pain, culminating in life-changing brain surgery that transformed her perspective on healthcare. Drawing from her legal and medical advocacy expertise, she discusses the importance of life care planning, navigating insuran...

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29:16

Legal Nurse Consulting Meets Patient Advocacy...

Patient Advocacy Now ·

2024/11/19

In this enlightening episode of Patient Advocacy Now, we explore the vital intersection of healthcare, legal expertise, and patient advocacy with Barbara Gaynor, a seasoned registered nurse and Legal Nurse Consultant (LNC). With over 25 years of experience spanning various medical disciplines, Barbara offers a unique perspective on how LNCs can bridge gaps in patient care and legal processes. From advocating for vulnerable patients in hospitals to ensuring comprehensive post-discharge su...

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48 results

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