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PODCAST

The Encephalitis Podcast

Encephalitis International

The Encephalitis Podcast is brought to you by Encephalitis International and covers everything to do surrounding inflammation of the brain. Interviews with neurologists, psychiatrists, survivors and in-depth looks at different aspects of encephalitis. For more information about encephalitis, visit www.encephalitis.info

health & fitness medicine

All Episodes

52:00

Ep 61 - Contagion on Screen: Science, Storytelling,...

The Encephalitis Podcast ·

2026/01/30

Encephalitis Podcast Ep 62In this episode of the Encephalitis Podcast, Prav is joined by award-winning screenwriter and director Scott Z. Burns to discuss the depiction of encephalitis in films and explore the science, humanity, and lasting impact of the 2011 film Contagion. Inspired by real-world viruses such as Nipah and SARS, the film gained renewed relevance during the COVID-19 pandemic for its portrayal of a global outbreak with neurological consequences. Nipah virus factsheet -

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36:52

Ep 61 - Emotions, pain and unspoken dreams - Denis'...

The Encephalitis Podcast ·

2026/01/21

In this powerful and emotive podcast episode Denis shares his journey of living with viral encephalitis from his life as an aeronautical engineer through the sudden onset of illness, hospitalisation, and a long, complex recovery. He discusses memory loss, intense emotions, vivid and distressing 'encephalitis dreams'. Denis also explains the coping strategies, psychological support, and practical techniques that helped him regain stability, including working with a neuropsychologist and learning

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34:05

Ep 60 - Sleep and Encephalitis with Dr David Lee

The Encephalitis Podcast ·

2025/11/26

The Encephalitis Podcast Ep 60This podcast episode is about sleep and encephalitis. Sleep difficulties can be a symptom of encephalitis as well as a potentially long-term after-effect. Prav is joined by Dr. David Lee. Dr Lee is a chartered psychologist and chartered scientist who has been researching sleep and the psycho-behavioral treatment of insomnia for the last 20 years. He holds memberships with the World Sleep Society, the British Sleep Society, the Institute of Occupational Safety and

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19:39

Ep 59 - Wady's Story of Music and Autoimmune...

The Encephalitis Podcast ·

2025/10/29

In this episode, Prav talks to Wady a patient advocate, music educator, singer-songwriter and survivor of anti-NMDA receptor encephalitis.Here is a link to Wady's music https://youtu.be/btoaGoXLi1k -------------------------------------------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our

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24:59

Ep 58 - Neurological physiotherapy and encephalitis...

The Encephalitis Podcast ·

2025/10/15

Encephalitis Podcast Episode 58In this episode, Prav talks to Kenny Thoms the Co-Founder, Director & Specialist at NeuroPhysio in Glasgow. Kenny works with individuals recovering from neurological events or those managing long-term neurological conditions. They discuss neurological physiotherapy and rehabilitation including the specific neurological challenges that encephalitis survivors face. -------------------------------------------------------------------------------------------------- If

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34:26

Ep 57 - Milkshakes for Marleigh - Kate Fisher

The Encephalitis Podcast ·

2025/09/17

In this episode, Prav is joined by a mother who is changing the world! Not just for her own child, but for so many others. Kate Fisher, the founder of Milkshakes for Marleigh - a blood donation initiative in Australia - talks about her daughter's experience of encephalitis and how she now commits her life to blood donor advocacy.Kate founded Milkshakes for Marleigh after her daughter was diagnosed with seronegative paediatric autoimmune encephalitis and relied on blood donors for her treatment. You

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22:05

The Encephalitis Podcast Ep 56 - Genetics in...

The Encephalitis Podcast ·

2025/09/04

In this episode, Prav talks to Dr Sophie Binks about genetics and DNA in relation to autoimmune encephalitis. Asking the question 'can genetics play a part in the prevalence of encephalitis?'Sophie is a Clinical Lecturer and Honorary Neurology SpR at Nuffield Department of Clinical Neurosciences, University of Oxford. She is also on the Scientific Advisory Panel for Encephalitis International. Her research focuses on clinical and genetic aspects of autoimmune encephalitis. If you have been

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30:53

The Encephalitis Podcast Ep 55 - Relationships after...

The Encephalitis Podcast ·

2025/07/21

The Encephalitis Podcast Ep 55 - Relationships after encephalitis with Dr Giles YeatsIn this episode, Prav talks about relationships after encephalitis with Doctor Giles Yeates. Relationships sit at the intersection of our personal and professional lives, shaping our identity, providing support during times of isolation, and often significantly transformed after encephalitis. Dr Yeates is a consultant clinical neuropsychologist with over 20 years of experience in neuro rehabilitation. He has worked

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47:20

The Encephalitis Podcast Ep 54 - LGi1 Autoimmune...

The Encephalitis Podcast ·

2025/07/09

In this lived experience episode of the Encephalitis Podcast, Prav talks to Pauline - a volunteer for Encephalitis International.Pauline shares her own story of LGi1 encephalitis, life as a nurse and about being a support volunteer for the online peer groups. If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here:

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22:14

The Encephalitis Podcast Ep 53 - Discussing...

The Encephalitis Podcast ·

2025/06/24

It this episode of The Encephalitis Podcast, Prav is asking Professor Sarosh Irani the question 'What's new in autoimmune encephalitis?'Professor Irani is Professor of Neurology and Neurosciences at the Mayo Clinic, Florida, former professor of Autoimmune Neurology at the University of Oxford, and adjunct professor at the University of Southern Denmark. He was part of the team that discovered LGI1 and CASPR2 antibodies and has cared for many patients with LGI1, CASPR2 NMDA, and other forms of

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31:28

The Encephalitis Podcast Ep 52 - Trevor: Lived...

The Encephalitis Podcast ·

2025/05/28

In this episode, Prav talks to Trevor and his mum, Lois from Sydney. Trevor shares his lived experience of herpes simplex virus encephalitis. If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis

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33:21

The Encephalitis Podcast Ep 51 - Travel Health and...

The Encephalitis Podcast ·

2025/05/14

In this episode, Prav talks to Katy Peters about travel health and encephalitis. Katy is an immunisation and travel health specialist nurse who founded 360 Health Limited, a London vaccination clinic in 2013. A member of the Faculty of Travel Medicine at the Royal College of Physicians and Surgeons in Glasgow, where she qualified with with distinction and was awarded the Cameron Lockie Prize for Academic Excellence. Katy was previously chairwoman of the British Global Travel Health Association. And

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24:35

The Encephalitis Podcast Ep 50 - Sue Ann: Lived...

The Encephalitis Podcast ·

2025/04/26

In this episode, Prav talks to Sue Ann who was diagnosed with West Nile Virus encephalitis in 2023. She shares her lived experience story.If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by

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32:46

The Encephalitis Podcast Ep 49 - Leaving a Legacy:...

The Encephalitis Podcast ·

2025/04/22

In this special Legacy episode of the Encephalitis Podcast, Prav talks to our lived experience and community member Wunmi. Wunmi had encephalitis in 2017. Here, she shares her story and talks about legacies and leaving a gift in her will. To learn more about wills or leaving a legacy gift to Encephalitis International visit: https://www.encephalitis.info/gift-in-will/. This page also contains information about how UK residents can write their will for free, with our partners at Farewill

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56:31

The Encephalitis Podcast Ep 48 - Clinical Trials with...

The Encephalitis Podcast ·

2025/03/19

In this episode, Prav - Senior Medical Writer for Encephalitis International - talks to Dr Stacy Clardy about clinical trials to to find out more about this important aspect of developing treatments for encephalitis. Doctor Clardy is both clinical and research faculty in the Division of Neuroimmunology and Autoimmune Neurology within the Department of Neurology at the University of Utah and the Salt Lake City Veterans Affairs Hospital. Her clinical specialisation and research focus is in the field

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40:17

The Encephalitis Podcast Ep 47 - Brain Infectious...

The Encephalitis Podcast ·

2025/03/12

In this episode Dr Ava Easton is joined by Dr Bhagteshwar Singh talking about improving the diagnosis and treatment of encephalitis in low to middle income countries. Dr Bhagteshwar Singh is back in the UK, having been based at Christian Medical College in Vallor, India, and Queen Elizabeth Central Hospital in Blantyre, Malawi in the last year. He's also a clinical research fellow and specialty registrar in infectious diseases and general internal medicine at the University of Liverpool in the UK

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23:22

The Encephalitis Podcast Ep 46 - Patient and Public...

The Encephalitis Podcast ·

2025/03/10

In this episode, Emma Collins, Patient and Public Involvement Manager at Encephalitis International, talks to Dr Ava Easton, CEO at Encephalitis International and Chair of the PPI panel, about improving the work of patient and public involvement (PPI) driven by Encephalitis International in a study that looked at improving diagnosis and treatment of encephalitis in low-to-middle income countries.If you have been affected by encephalitis and are in need of some support, please visit

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18:18

The Encephalitis Podcast Ep 45 - Diane: Lived...

The Encephalitis Podcast ·

2025/03/05

In this community story episode of The Encephalitis Podcast, Prav, Senior Medical Writer, meets with Team Encephalitis Volunteer, Diane. Diane, 22, from London. is a final year Psychology with Cognitive Neuroscience undergraduate student, aspiring clinical neuropsychologist, speaker, social entrepreneur, encephalitis overcomer and volunteer. Diane had auto-immune encephalitis in 2018, when she was 15 which encompassed months in a semi-coma state where she couldn’t talk, walk, eat or see due to

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21:50

The Encephalitis Podcast Ep 44 - Dr Lipunga:...

The Encephalitis Podcast ·

2025/02/26

In this podcast, Prav Prathapan from Encephalitis International is joined by Dr Gareth Lipunga, from Malawi. They will be talking about the challenges that low to middle income countries (LMIC) face when it comes to encephalitis. Dr Lipunga is a medical doctor trained at the University of Malawi's College of Medicine with a postgraduate MSC in Integrated Immunology from the University of Oxford.If you have been affected by encephalitis and are in need of some support, please visit

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18:58

The Encephalitis Podcast Ep 43 - WHO technical brief...

The Encephalitis Podcast ·

2025/02/19

In this World Encephalitis Day special, Dr Ava Easton is joined by Doctor Tarun Dua, head of the Brain Health Unit at the World Health Organization (WHO). In exciting news for World Encephalitis Day 2025, the World Health Organization are releasing a technical brief on encephalitis. Dr Dua is here to discuss this and a bit more on the work of the World Health Organization. Useful Link - the WHO Intersectoral Global Action Plan (IGAP) on epilepsy and other neurological disorders -

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62 results

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