Rare Mind Talks

In this episode, I talk with Ada Lio, mum of Lukie, founder of lukie.org, and board member at the ZTTK Son-Shine Foundation. Joining me from Boston, Ada shares her perspective on hope and leadership in rare diseases, offering uncharted lessons from her journey as both a parent and a leader in the community.Together we explore how families define cure beyond medicine: as hope, dignity, and quality of life. Ada explains how parents, even without scientific training, hold vital knowledge that can

"Patient-Led AI for Better Health" is the focus of this powerful episode with Bruno Amaral, creator of Gregory, an AI-driven bot.Bruno, built Gregory to help patients find relevant, trustworthy research. The bot filters studies for better outcomes. More importantly, it helps patients, doctors and researchers save time by summarising complex findings into clear, useful insights. We also discuss how Gregory is open, customisable, and built with transparency at its core. Bruno balances life as a