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PODCAST

Sharp Waves: ILAE"s epilepsy podcast

Epilepsy affects more than 50 million people. Every day. Sharp Waves brings you stories about people with epilepsy, physicians treating epilepsy, and researchers studying the condition. We"ll cover the latest research, challenges to diagnosis and treatment, and issues from around the world.

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All Episodes

23:21

ILAE Updated seizure classification Part 2: Prof....

Sharp Waves: ILAE"s epilepsy podcast ·

2026/02/16

Send comments and feedback We discuss the response to the updated classification of seizures with Prof. Eugen Trinka, including why the changes were made and how the changes are being explained and socialized. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice. Let us know how we're doing: podcast@ilae.org. The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working ...

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13:46

"Living with epilepsy should not be a secret": Jessie...

Sharp Waves: ILAE"s epilepsy podcast ·

2026/02/09

Send comments and feedback Celebrating International Epilepsy Day (Feb 9) with an episode of strength and hope! Jessie Nyirenda's seizures went undiagnosed for years. She was told she was misbehaving, possessed, and bewitched. She finally diagnosed herself after reading about epilepsy in a library. Taking anti-seizure medication and joining an epilepsy support group changed Jessie's life and made her realize she was no different from anyone else. Now a mother of three and a banking sector spe...

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30:51

EpiCARE: The European Reference Network for Rare and...

Sharp Waves: ILAE"s epilepsy podcast ·

2026/02/02

Send comments and feedback A network of more than 60 expert epilepsy teams across Europe: That's EpiCARE. The network aims to improve care for rare and complex epilepsies and reduce inequalities in access to the best diagnostic and treatment practices and investigational tools. Sharp Waves talked to EpiCARE coordinator Dr. Alexis Arzimanoglou about what EpiCARE is, what it isn't, and how it may contribute to changes in epilepsy care across the region and beyond. For more information: EpiCARE ...

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23:52

Intellectual disability and epilepsy: A...

Sharp Waves: ILAE"s epilepsy podcast ·

2026/01/19

Send comments and feedback About 1 in 5 people with an intellectual disability (ID) also have epilepsy; among those with profound ID, 1 in 2 also will have epilepsy. In general, people with an ID have higher mortality rates and more chronic conditions than people without an ID; they also face significant health care disparities. Researchers interviewed people with both epilepsy and an ID to understand what they knew about their epilepsy, how they accessed care, and what epilepsy-related infor...

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27:33

Acute symptomatic seizures: Dr. Marian Galovic

Sharp Waves: ILAE"s epilepsy podcast ·

2026/01/05

Send comments and feedback While as many as 1 in 3 first seizures are acute symptomatic seizures, these seizures receive relatively little attention during training. Dr. Ching Soong Khoo speaks with Dr. Marian Galovic about the etiology and management of acute symptomatic seizures and how they may inform outcomes and future epilepsy risk. Mentioned during the episode: The SeLECT Consortium predictepilepsy.com The SeLECT model of developing epilepsy after ischemic stroke The CAVE...

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27:29

Dravet Syndrome: Dr. Ingrid Scheffer

Sharp Waves: ILAE"s epilepsy podcast ·

2025/12/08

Send comments and feedback The latest on Dravet syndrome: Diagnosis, genetic testing, comorbidities, treatment, and more. Dr. Parthvi Ravat interviews Dr. Ingrid Scheffer. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice. Let us know how we're doing: podcast@ilae.org. The International League Against Epilepsy is the world's preeminent association of health professionals and scientists, working toward a world where no person's life is lim...

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32:36

Drug-resistant epilepsy: Dr. Patrick Kwan

Sharp Waves: ILAE"s epilepsy podcast ·

2025/11/24

Send comments and feedback About one-third of people with epilepsy will continue having seizures despite medications. What is the clinical definition of drug-resistant epilepsy? Why does it occur, and is it possible to predict? Dr. Cecilie Nome interviews Dr. Patrick Kwan. Relevant papers: Definition of drug resistant epilepsy: Consensus proposal by the ad hoc Task Force of the ILAE Commission on Therapeutic Strategies - Kwan - 2010 - Epilepsia - Wiley Online Library The costs of epilepsy in ...

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22:27

Normalizing depression in epilepsy: Screening,...

Sharp Waves: ILAE"s epilepsy podcast ·

2025/11/10

Send comments and feedback Nearly 1 in 4 people with epilepsy experiences depression, which affects quality of life, seizure control, and adherence to treatment. Depressive symptoms - including suicidality - are one of the strongest predictors of poor quality of life in people with epilepsy, and they can be overlooked or minimized both by people with epilepsy and by clinicians. Sharp Waves spoke with Dr. Rosa Michaelis about the role of neurologists in discussing, screening, diagnosing, and t...

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18:48

A novel patient-reported outcome measure for...

Sharp Waves: ILAE"s epilepsy podcast ·

2025/10/27

Send comments and feedback Is there a fast, simple way to measure whether someone with epilepsy is doing "better" or "worse" compared with a past clinic visit? Not really. Seizure count is often considered a standard, but multiple small seizures may have less impact on someone's life than a single generalized tonic-clonic seizure. In this episode, we talk with authors of a study on an outcome measure that factors the impact of seizures as well as the impact of treatments. The study: Validat...

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30:50

Social work in epilepsy: Closing the treatment gap...

Sharp Waves: ILAE"s epilepsy podcast ·

2025/10/13

Send comments and feedback Closing the epilepsy treatment gap relies heavily on social and cultural acceptance of epilepsy as a brain disorder that can be managed with medication or other therapies. Dr. Rugare Mugumbate discusses the five disadvantages faced by people with epilepsy, as well as the important role of social workers and the need to focus on lessons learned from previous pilot projects and awareness campaigns. Dr. Mugumbate's book - Epilepsy in Resource Limited Settings: Managing...

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31:31

Somatic genetic epilepsies: Dr. Christian Bosselmann

Sharp Waves: ILAE"s epilepsy podcast ·

2025/09/29

Send comments and feedback Somatic genetic epilepsies arise from mutations that occur early in fetal development. They are usually only detectable by genetic sequencing of tissue. For these epilepsies, the timing of the mutation is key: For example, research has shown that focal cortical dysplasia type IIB and hemimegaloencephaly are genetically the same disease, but arise from somatic mutations at different developmental time points. This relatively new area of research is discussed by Dr. A...

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12:54

Research recap: Empiric immunotherapy for highly...

Sharp Waves: ILAE"s epilepsy podcast ·

2025/09/08

Send comments and feedback In a retrospective study of 31 patients with highly refractory epilepsy, 29% had more than a 50% reduction in seizures for at least 12 months after being treated with immunotherapy. Three of these patients became seizure free. Other than a trend toward a diagnosis of focal epilepsy, researchers did not identify any specific features predictive of treatment response. Sharp Waves spoke with the first author about the study and its implications. The study was published...

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34:22

Genetic testing: Variants of uncertain significance...

Sharp Waves: ILAE"s epilepsy podcast ·

2025/08/18

Send comments and feedback What are variants of uncertain significance (VUS) in epilepsy genetic testing? How are they defined, and can those definitions change over time? Sharp Waves talks with Dr. Gemma Carvill as part of our genetic testing series. RESOURCES Standards for interpreting variants (American College of Medical Genetics) Gene Reviews ClinVar GeneMatcher Gnomad ClinGen ILAE genetic literacy series EpiPred website for STXBP1 (developed by EpiMVP project - will be final by end of J...

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46:49

What's new in status epilepticus: Dr. Eugen Trinka

Sharp Waves: ILAE"s epilepsy podcast ·

2025/08/04

Send comments and feedback This episode covers a wide scope of issues, including treatment options, treatment response, prognosis and the role of seizures versus the underlying etiology, most common etiologies for different age groups, new-onset refractory status (NORSE), and the prevalence and special considerations of non-convulsive status epilepticus. ILAE's International Epilepsy Congress will be held in Lisbon, Portugal, from 30 August to 3 September 2025. We welcome you to join us! Sh...

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22:28

Valproate and reproductive risks in women and men...

Sharp Waves: ILAE"s epilepsy podcast ·

2025/07/21

Send comments and feedback In use since the 1970s, valproate is highly effective for genetic generalized epilepsies and some forms of pediatric epilepsy. The medication also is associated with a 10% risk of birth defects in children exposed to it in utero, as well as a 30% to 40% risk of neurodevelopmental issues, including autism. Sharp Waves spoke with Dr. Tony Marson about the reproductive risks for women and men taking valproate, discussing UK policies meant to ensure appropriate prescrip...

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13:01

ILAE Updated seizure classification: Dr. Sandor Beniczky

Sharp Waves: ILAE"s epilepsy podcast ·

2025/07/07

Send comments and feedback ILAE's updated seizure classification position paper was published in Epilepsia in April 2025. Sharp Waves talked with Dr. Sandor Beniczky about the updates and how they will impact research and clinical care. The position paper is open access and available online. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice. Let us know how we're doing: podcast@ilae.org. The International League Against Epilepsy is the wo...

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15:03

Documentary filmmaker confronts epilepsy in a new...

Sharp Waves: ILAE"s epilepsy podcast ·

2025/06/23

Send comments and feedback Seizures cost Stacia Kalinoski her career in broadcast journalism and forced her to give up running. In her new memoir, Kalinoski recounts her journey from first seizure in college to epilepsy surgery years later, describing her seizures, struggles with medication, and challenges coming to terms with her epilepsy. Kalinoski's book, Racing Uphill, is available July 1, 2025 and can be ordered or pre-ordered online. Stacia Kalinoski is an Emmy Award–winning TV news jou...

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22:21

Work-life balance: Dr. Sheryl Haut

Sharp Waves: ILAE"s epilepsy podcast ·

2025/06/09

Work-related stress and burnout are common in physicians, with rates of burnout estimated between 25% and 60%. These stresses impact physician health, patient care, and health care systems as a whole. Sharp Waves spoke with Dr. Sheryl Haut about strategies to identify work stress and mitigate burnout. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice. Let us know how we're doing: podcast@ilae.org. The International League Against Epilepsy...

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19:03

The role of microglia in epilepsy: Hero, villain, or...

Sharp Waves: ILAE"s epilepsy podcast ·

2025/05/27

Microglia can have protective and also potentially harmful effects in the brain. They seem to be involved in dampening the nervous system during acute seizures – but also appear to play a role in neuronal loss and cortical thinning. Dr. Cecilie Nome spoke with Dr. Amy Brewster about the many faces of microglia and the current understanding of their role in epilepsy and seizures. Sharp Waves episodes are meant for informational purposes only, and not as clinical or medical advice. Let us...

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31:59

Language models reveal concerns of people with...

Sharp Waves: ILAE"s epilepsy podcast ·

2025/05/12

Many of the most common concerns of people with epilepsy are topics they don't usually talk about with physicians. This is one of many findings of a study using AI to analyze more than 55,000 posts about epilepsy on Reddit. Sharp Waves spoke with the study's first author and two epilepsy advocates about the results and how they could help initiate important patient-provider conversations. PLEASE NOTE: This episode includes discussion of suicidal ideation. If you are in crisis, call your...

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