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PODCAST

The Waiting Room Revolution

Hsien Seow and Samantha Winemaker

This podcast can help anyone dealing with serious illness. Over the years, we have cared for and interviewed thousands of patients and families who tell us they felt overwhelmed and ‘in the dark’ during their illness journey. Yet we sometimes heard stories where individuals felt prepared, in control and ‘in the know.’ What was the difference between these experiences? The answer is the 7 keys. Join your hosts Dr. Samantha Winemaker, palliative care doctor, and Dr. Hsien Seow, health care researcher,

health & fitness medicine

All Episodes

49:35

S11: Episode 125: Renee Moor

The Waiting Room Revolution ·

2025/12/16

In this episode, Renee Moor, psychotherapist, death doula, and founder of Journey Home Support, shares her personal journey through grief, the lessons learned from profound loss, and her mission to bring compassionate community support to end-of-life care. We discuss how embracing death and mourning can offer meaning, connection, and empowerment for individuals and families.To learn more about Renee's work visit: https://www.journeyhomesupport.com/ Our theme song is Maypole by Ketsa and is

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52:53

S11: Episode 124: Lucy Hone

The Waiting Room Revolution ·

2025/12/09

This episode features our conversation with resilience expert Dr. Lucy Hone. We discuss grief, living with loss, and practical tools for navigating tough times. Lucy shares personal stories and research-backed insights offering hope and empowering advice for anyone facing adversity.Learn more about Lucys work here: https://www.drlucyhone.com/ Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit our website to learn more about our work, check out the book and workbook,

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58:20

S11: Episode 123: Ashwin Kaniah

The Waiting Room Revolution ·

2025/12/02

This episode features our conversation with Dr. Ashwin Kaniah, an Australian general practitioner and palliative care consultant. Ashwin shares his journey from family medicine to palliative care, highlighting the importance of early, holistic, and individualized approaches for patients and families. We discuss the challenges and opportunities in making healthcare more inclusive, especially for LGBTQI+ communities, and discuss Ashwins award-winning research . Learn more about his work here:

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41:34

S11: Episode 122: Emma Clare

The Waiting Room Revolution ·

2025/11/25

This episode features our conversation with Dr. Emma Clare, end-of-life doula and CEO of End of Life Doula UK. Emma shares her journey, the evolving role of doulas, and the importance of compassion, communication, and community in end-of-life care. We explore how empowering patients and families, breaking down taboos around death, and building a more supportive culture can change life’s final chapter.Learn more about Emma's work and End of Life Doulas UK: https://eol-doula.uk Our theme song is

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56:54

S11: Episode 121: Stephanie Muskat

The Waiting Room Revolution ·

2025/11/18

This episode we welcome Stephanie Muskat, a registered Social Worker, therapist, and founder of Compassion in Caregiving. Stephanie shares her moving journey caring for her mother and grandmother. We discuss the emotional and logistical challenges families face, the importance of advocacy, and how her personal experience inspired her to support other caregivers.Find more of Stephanie's work here: https://compassionincaregiving.com/ Visit our website to learn more about our work, check out the book

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62:33

S11: Episode 120: Heike Fabig and Richard Boele

The Waiting Room Revolution ·

2025/11/11

In this heartfelt episode, Heike and Richard share their family’s journey through the end-of-life care of their two sons. Through stories of loss, advocacy, and resilience, they reveal hard-won lessons about love, hope, and what truly matters in life and healthcare. Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter:

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54:40

S11: Episode 119: Dr. Tammy Pegg & Jane Goodwin

The Waiting Room Revolution ·

2025/11/04

This episode features Dr. Tammy Pegg, a cardiologist, and Jane Goodwin, National Program Manager for advanced care planning in New Zealand. We discuss the evolution of CPR understanding, the importance of advanced care planning, and the challenges of aligning medical care with patient values. The episode delves into New Zealand’s national efforts to promote shared goals of care, empower patients and families, and support clinicians in having compassionate, person-centered discussions. Our theme

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53:07

S11: Episode 118: Stéphane Alexis, Terrance Ho &...

The Waiting Room Revolution ·

2025/10/28

This episode features our conversation with young caregivers Rosie Paulyk, Terrance Ho, and Stéphane Alexis. They share personal stories about caring for loved ones at a young age, how caregiving shaped their identities, careers, and relationships, and share their advice for supporting youth in similar roles. We also chat about the power of community, resilience, and the importance of recognizing young caregivers everywhere.Learn more about their work here: Terrance's website:

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55:39

S11: Episode 117: Bec Lyons

The Waiting Room Revolution ·

2025/10/21

This episode features our conversation with Funeral Director and End-of-Life Doula Bec Lyons, from Tasmania, Australia. We chat about her unique approach to death care, emphasizing home funeral service and natural burial methods. We also chat death literacy and reimagining funerals to be more personal and community focused. Learn more about Becs work HERE.Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit our website to learn more about our work, check out the book and

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57:54

S11: Episode 116: James Norris

The Waiting Room Revolution ·

2025/10/14

In this episode, we welcome James Norris, founder of the Digital Legacy Association and pioneer in end-of-life technology, to explore the vital topic of digital legacy. James shares the personal story that inspired his mission, explains why planning for our digital lives is more important than ever, and offers practical advice for safeguarding memories, messages, and digital assets. To learn more about James' work visit: https://www.jamesnorris.me Our theme song is Maypole by Ketsa and is

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56:00

S11: Episode 115: Shameem Kizar & Kerry Adams

The Waiting Room Revolution ·

2025/10/07

In this episode, we chat with Shameem and Kerry, a dynamic Dietitian and Speech-Language Pathologist duo who have spent nearly two decades working together in a multidisciplinary ALS clinic. In this episode, they share how humor, empathy, and proactive planning shape their approach to patient care. We also explore common misconceptions about their professions and how the “hope for the best, plan for the rest” philosophy guides their work. Our theme song is Maypole by Ketsa and is licensed under CC

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61:09

S11: Episode 114: Hospice Nurse Penny

The Waiting Room Revolution ·

2025/09/30

This episode features our conversation with influencer and author Hospice Nurse Penny aka Penny Smith. We chat about how she uses her platforms to advocate for normalizing death and addressing death anxiety. Learn more about her work here: https://www.hospicenursepenny.com/Our theme song is Maypole by Ketsa and is licensed under CC BY-NC-ND 4.0 Visit our website to learn more about our work, check out the book and workbook, view our resources and to join our newsletter:

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25:01

S10: Episode 113: The Future of the Revolution

The Waiting Room Revolution ·

2025/05/20

In the final episode of Season 10, we reflect on the journey and the success of the Waiting Room Revolution. We discuss the global resonance, the importance of self-advocacy, and the creation of our community. We also introduce the Applying the 7 Keys Workbook designed to help individuals navigate the healthcare system. We also introduce the "Workshop in a Box" for community educators to facilitate workshops and spread the message, aiming to empower patients and families worldwide.Our Workbook:

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28:38

S10: Episode 112: Invite Yourself

The Waiting Room Revolution ·

2025/05/13

In this episode we explore the final key, “Invite Yourself,” which encourages patients and families to become respectfully assertive in their healthcare journey. Rather than waiting to be asked, individuals are empowered to speak up, ask questions, and take an active role in their care. We discuss how this mindset shift can lead to better communication, improved understanding, and more meaningful experiences, especially for those who feel marginalized or overwhelmed. Through real stories and

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19:31

S10: Episode 111: Connect the Dots

The Waiting Room Revolution ·

2025/05/06

In this episode we talk about the key "Connect the Dots" - a crucial strategy for patients and families navigating complex healthcare systems. We explore how being the "illness manager" can transform healthcare experiences, the importance of having someone who can coordinate care, track medical information, and serve as the "glue" between different healthcare providers.Our Workbook: Applying the 7 Keys for Navigating a Life-Changing Diagnosis is available at select retailers now! Visit our

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27:31

S10: Episode 110: Anticipate Ripple Effects

The Waiting Room Revolution ·

2025/04/29

In this episode, we dive deep into the fifth key: Anticipate Ripple Effects. We discuss how serious illness impacts not just patients, but their entire support network. We share personal stories and insights about building strong support systems, caring for caregivers, and understanding the emotional journey of those surrounding a patient. We also give some tips to providers.Our Workbook: Applying the 7 Keys for Navigating a Life-Changing Diagnosis is available at select retailers now! Visit our

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25:36

S10: Episode 109: Customize Your Order

The Waiting Room Revolution ·

2025/04/22

In this episode we discuss the fourth key: Customize Your Order. We chat about how you can transform your illness experience from a one-size-fits-all approach to a personalized journey that truly reflects your values, preferences and unique self. We also talk about communicating what matters most to you, and why being treated as an individual-not just a diagnosis- is crucial to maintaining you sense of identity and dignity.Our Workbook: Applying the 7 Keys for Navigating a Life-Changing Diagnosis

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32:56

S10: Episode 108: Know Your Style

The Waiting Room Revolution ·

2025/04/15

In this episode of the Waiting Room Revolution, we explore the powerful third key: "Know Your Style." We discuss how understanding your unique personality can transform your healthcare experience, how learning practical strategies for navigating illness can reduce family conflict, and how knowing your style gives insight on approaching challenges. We also chat about how important this can be for Health Care Providers and provide some strategies on how to ask these questions. Our Workbook: Applying

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43:27

S10: Episode 107: Zoom Out

The Waiting Room Revolution ·

2025/04/08

In this episode we discuss the second key: Zoom Out. We discuss how information is a superpower, ways to get it, how to use it and how it can maintain hope all throughout an illness journey. We also discuss how everyone - patients, families, and healthcare providers - has a role in creating a more transparent, supportive healthcare experience.Our Workbook: Applying the 7 Keys for Navigating a Life-Changing Diagnosis is available at select retailers now! Visit our website for more information:

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35:53

S10: Episode 106: Walk Two Roads

The Waiting Room Revolution ·

2025/04/01

In this episode, we discuss the first of seven keys to navigating serious illness: Walk Two Roads. We chat about breaking through toxic positivity, communicating openly about illness, reducing uncertainty and maintaining personal agency during challenging times. We share stories and experiences that people have shared with us about why constant positivity can be harmful, how patients can find strength in embracing both hope and preparation and much more!Our Workbook: Applying the 7 Keys for

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