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PODCAST

Heart to Heart with Anna

Revitalize your spirit and connect with the vibrant congenital heart defect (CHD) community through "Heart to Heart with Anna," the pioneering podcast that has been inspiring and informing listeners since 11-12-13. Join us as we dive deep into the personal journeys, triumphs, and challenges of Survivors, their loved ones, esteemed medical professionals, and other remarkable individuals within the CHD community.With unwavering dedication, our heartfelt conversations bring to light the stories that

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All Episodes

42:38

A Parent’s Guide To CHD, Neurodevelopment, And...

Heart to Heart with Anna ·

2025/12/28

Send us a text What if the most powerful lever for your child’s growth isn’t another appointment, but how you care for yourself? We sit down with neuropsychologist Dr. Dawn Ilardi to connect the dots between CHD, early brain development, medical trauma, and the everyday choices that help families thrive. From prenatal influences on cognition and behavior to the protective force of stable routines and responsive parenting, we translate research into practical moves you can make this week. We ...

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43:06

Connecting Hearts: The Science and Stories of...

Heart to Heart with Anna ·

2025/12/01

Send us a text A month of movement—across states, across continents, and across ideas—shapes this episode of Heart to Heart with Anna, where personal connection meets the frontiers of heart medicine. We begin with gratitude, travel, and family updates, then explore two breakthroughs shaping the future of congenital heart care: a major open-access study using whole-genome sequencing to forecast outcomes after CHD surgery, and nanotechnology that turns everyday implants into infection-resistant...

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40:42

ECMO To Ironman: Elmar Sprink's Story about Life...

Heart to Heart with Anna ·

2025/11/08

Send us a text What does it take to learn to sit again, then stand, then chase the horizon at the Ironman World Championship? We sit down with endurance athlete and keynote speaker Elmar Sprink to trace the steps from sudden cardiac arrest and seven months on ECMO to a disciplined, data‑driven comeback fueled by routine, empathy, and stubborn hope. Elmar opens up about the invisible work of recovery—why he treated hospital life like a training plan, how a visitor spreadsheet kept his spirits ...

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36:04

From Antidepressants To Arrhythmias: A Candid Guide...

Heart to Heart with Anna ·

2025/10/21

Send us a text We share community updates and new events, then sit down with Ayrton Beatty to unpack how an antidepressant triggered Long QT syndrome, what symptoms to watch for, and the everyday tactics that keep them safe while honoring Edward’s memory. The conversation blends hard science, lived experience, and practical steps anyone can use to advocate with confidence. • Red Hat Society join and conference highlights • Down syndrome and CHD awareness link • Upcoming Zoom listening sessio...

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46:23

CHD Connects Hearts: A Grandmother’s Mission to Unite...

Heart to Heart with Anna ·

2025/09/29

Send us a text What happens when a grandmother's love collides with a broken system? When Christy Pace's grandson Hunter was diagnosed with Hypoplastic Left Heart Syndrome before birth, she found herself thrust into an unexpected role – not just as a supportive grandmother, but eventually as a visionary determined to transform how the CHD community connects. Our conversation pulls back the curtain on the rarely discussed perspective of grandparents in the CHD journey. Christy's raw honesty a...

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47:19

Half a Heart, Whole Stories: Steven Hutchison,...

Heart to Heart with Anna ·

2025/09/10

Send us a text Steven Hutchison has defied expectations his entire life. Born with hypoplastic left heart syndrome (HLHS) nearly four decades ago, he is now a 38-year-old husband, father of three, and full-time worker who approaches each day with remarkable perspective and gratitude. Diagnosed at two weeks old, Steven underwent staged surgeries including the Glenn and Fontan procedures, and now lives with Fontan-associated liver disease, one of the long-term complications that requires carefu...

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46:35

Voices of Strength: Tyler Šajdák's HLHS Journey and...

Heart to Heart with Anna ·

2025/08/28

Send us a text Tyler Šajdák wasn't supposed to grow up. Born with hypoplastic left heart syndrome in 1993, he was part of a generation receiving experimental surgeries with uncertain outcomes. Today, at 31, he works as an academic advisor, pursues a master's degree, and serves as a powerful advocate for the adult congenital heart defect community. "I've been told by people that just by looking at me, they wouldn't know that I had a heart defect," Tyler shares during our conversation. This inv...

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46:05

Creating Change: The Heart Behind Embers of Love

Heart to Heart with Anna ·

2025/08/01

Send us a text What happens when a tiny heart warrior inspires a movement of love and advocacy? In this powerful conversation, I sit down with Haley Graham, whose daughter Emberly Dawn was born with multiple heart defects, including a rare Taussig-Bing anomaly. Haley takes us through the emotional journey from that first concerning ultrasound to the founding of Embers of Love, a nonprofit that's changing lives across Manitoba. Haley shares the raw truth of those early days—the quiet car ride...

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34:26

From Cape Town to Courage: Navigating CHD in South...

Heart to Heart with Anna ·

2025/07/30

Send us a text What happens when your child needs heart surgery, but the operation keeps getting postponed? How do you navigate a complex healthcare system while still supporting other families going through similar struggles? Candice Swartland takes us deep into this reality from Cape Town, South Africa. Candice's journey began when her son Riley was diagnosed with Tetralogy of Fallot shortly after birth—despite monthly ultrasounds during pregnancy that detected nothing wrong. Through three...

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34:09

One Voice: United Against Congenital Heart Disease...

Heart to Heart with Anna ·

2025/07/01

Send us a text Monique Kemp's world turned upside down when her unborn son was diagnosed with an interrupted aortic arch at seven months of pregnancy. What followed was a harrowing journey through six open-heart surgeries, months of hospitalization, and the birth of something unexpected – a powerful vision for supporting other families facing similar challenges. From those early days sitting beside her newborn's hospital bed to founding Heart of Hope-Cape Town, Monique shares with raw honest...

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36:53

Building a Legacy: Transforming CHD Care in Pakistan

Heart to Heart with Anna ·

2025/06/23

Send us a text From a family vacation that turned tragic to the creation of Pakistan's first specialized children's heart hospital, Ana Tanveer Abdullah's journey illustrates how profound loss can spark transformative change. When Ana's athletic, academically gifted brother Daniel collapsed unexpectedly at age 15, no one suspected a heart condition. Despite receiving a pacemaker after being diagnosed with cardiomyopathy, Danial passed away at 16 while awaiting a heart transplant in India. Th...

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54:10

No Cure, Just Courage: Navigating Life with...

Heart to Heart with Anna ·

2025/05/31

Send us a text What happens when you've spent your whole life thinking your heart condition was "fixed," only to discover it's actually a lifelong journey? Elle Pendrick shares this profound revelation that came after her fourth open-heart surgery, forever changing how she understood her congenital heart disease. Born in 1983 with complex CHD in rural Australia, Elle's early years were defined by long journeys to Sydney for medical care. Growing up as the only person with a serious cardiac c...

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37:31

Putting Around for a Purpose: Golf, Heart Warriors,...

Heart to Heart with Anna ·

2025/05/11

Send us a text A broken wrist serves as an unexpected metaphor for the heart warrior's journey in this illuminating conversation with fundraiser and podcaster Amy Earhart. When Anna's recent accident left her with a titanium plate and a new perspective on recovery, it highlighted the resilience that characterizes the CHD community—adapting when our bodies say "enough" and finding creative ways forward. Amy Erhart brings this resilience to life through her remarkable story. Born with hypoplas...

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26:55

Marinas Reise mit angeborenem Herzfehler

Heart to Heart with Anna ·

2025/04/30

Send us a text In dieser speziellen deutschsprachigen Episode von 'Herz zu Herz mit Anna' spricht Jodi Alderfel mit Marina Lohri, die mit Trikuspidalatresie, ASD und VSD geboren wurde und eine modifizierte Fontan-Operation überlebte. Marina teilt ihre lebenslange Reise, von ihrer Herzoperation als Baby bis hin zu ihrer Karriere bei atHeart Medical, einem Unternehmen, das Geräte zur Behandlung von ASD entwickelt. Die Episode erörtert auch Marinas Erfahrungen mit Vorhofflimmern und einer Ablati...

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56:37

When Hearts and Minds Unite: Navigating...

Heart to Heart with Anna ·

2025/04/01

Send us a text The journey of raising a child with a critical congenital heart defect (CCHD) involves navigating far more than just medical challenges. Behind every heart surgery and cardiology appointment lies a complex web of developmental considerations that can profoundly shape a child's future. Dr. Dawn Ilardi, a clinical neuropsychologist with over 16 years of experience in cardiac neurodevelopment, brings clarity to this often-overlooked aspect of heart care. Unlike typical developmen...

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45:48

From Tetralogy of Fallot to Changing State Law: Sara...

Heart to Heart with Anna ·

2025/03/19

Send us a text When Sara Bonneau's newborn son was diagnosed with Tetralogy of Fallot, she had no roadmap for the journey ahead. In this raw and powerful conversation, she takes us through the evolution of parenting a child with a serious heart defect—from the terrifying early days without social media support groups to watching her son become a competitive high school basketball player. Sara's candor about her mental health struggles resonates deeply as she shares her delayed PTSD diagnosis...

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61:15

How Research is Reshaping Lives in Congenital Heart...

Heart to Heart with Anna ·

2025/02/27

Send us a text In this engaging episode of Heart to Heart with Anna, we dive into the significant strides made in pediatric cardiology, focusing on hypoplastic left heart syndrome (HLHS) and the inspiring journey of dedicated professionals like Dr. Paul Grossfeld. This episode highlights the complex nature of congenital heart disease, exploring not just the technical advancements in surgical techniques and post-operative care, but also the emotional journeys faced by families. Dr. Grossfeld s...

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43:36

Navigating Personal Advocacy: Empowering Journeys in...

Heart to Heart with Anna ·

2025/02/05

Send us a text Support the show Anna's Buzzsprout Affiliate Link Baby Blue Sound Collective Social Media Pages: Apple Podcasts Facebook Instagram MeWe Twitter YouTube Website

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34:12

Uniting Communities for Better Heart Care Outcomes...

Heart to Heart with Anna ·

2025/01/24

Send us a textAfter facing the heart-wrenching loss of a beloved family matriarch to a once-benign heart condition, I am reminded of the fragile nature of life and the critical importance of heart health. Join me as we explore these deeply personal connections to heart disease and the heartfelt stories of families who navigate these challenges with resilience and love. This episode kicks off with a touching account of a family who urged me to share their loss hoping it might help another fami...

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21:08

2024 Top Ten "Heart to Heart with Anna" Episodes & More!

Heart to Heart with Anna ·

2025/01/08

Send us a textCan an unexpected adventure in Kraków teach you about resilience and support? Join me, Anna Jaworski, as I recount a thrilling axe-throwing escapade with my husband, Frank, which became an unexpected metaphor for our family's journey with our courageous daughter, Hope, who battles a congenital heart defect. In this episode of Heart to Heart with Anna, we spotlight the power of belief and community support, drawing parallels between personal adventures and the challenges of raisi...

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