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PODCAST

Let"s Talk SADS Live

Canadian SADS Foundation

The Let’s Talk SADS Live Podcast intends to be a highly accessible and collaborative educational platform for patients and families navigating SADS conditions. Topics cover the spectrum of SADS conditions, fostering a well-informed and proactive patient community. Launched in January 2023, the Let’s Talk SADS Live Podcast features monthly live-streamed sessions led by prominent Canadian pediatric clinician/researcher, Dr. Shubhayan Sanatani, alongside globally recognized experts. To help us

health & fitness medicine

All Episodes

00:33:01

Ep. 46 Finding Your Story After a Life Changing...

Let"s Talk SADS Live ·

2026/03/10

Your story matters. And telling it might just help you heal.After surviving sudden cardiac arrest and a heart failure diagnosis herself, Dr. Sharon Bray discovered that writing wasn't just a creative outlet. It was a lifeline.In this week's Let's Talk SADS Live, Dr. Bray shares how expressive writing can help process trauma, build community, and remind us that we are not alone. Whether you write for five minutes or fifty years, putting words to your experience can change everything.Hear

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00:32:26

Ep. 45 Gene Therapy Is Rewriting the Future for Heart...

Let"s Talk SADS Live ·

2026/02/24

What if a single treatment could change the future of your heart?This #HeartMonth, we are bringing you a conversation filled with hope, science, and the power of persistence.We sit down with Dr. Sheikh, a Canadian-born scientist, who walks us through her groundbreaking gene therapy research targeting ARVC PKP2 mutations, what "potential reversibility" could mean for patients living with heart failure, and why she is now working toward mutation agnostic treatments that could help even more

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00:28:54

Ep 44. Navigating a Father's Grief and Leading After...

Let"s Talk SADS Live ·

2026/02/10

This #HeartMonth, we are honoured to share a deeply moving conversation with a very special friend of The Canadian SADS Foundation, Walker Frahm, CEO of The US SADS (Sudden Arrhythmia Death Syndromes) Foundation .Walker opens up with raw honesty about the sudden loss of his daughter, Lavinia, and how this tragedy reshaped his life’s path. He speaks to the unique experience of a father’s grief: the instinct to hold everything together, the delayed wave of emotion, and the choice to lean in and

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00:28:42

From Heart Failure to Heart Life: A Survivor's...

Let"s Talk SADS Live ·

2026/01/27

From unexpected heart failure at 23 to founding a national patient community. Today we are speaking with Marc Bains, co-founder of HeartLife Foundation. He shares his powerful journey from diagnosis to transplant and into advocacy. This episode explores how community, research, and patient partnership can transform life after a devastating cardiac diagnosis and why building support is critical for anyone living with heart disease.To hear the full story of resilience and how Heart Life was born,

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00:31:18

Ep 42. Transforming Exercise from Fear to Play

Let"s Talk SADS Live ·

2026/01/13

What if we rebranded exercise with a SADS condition as play?Join us as health coach Janet Omstead shares her joyful approach to building a sustainable movement and exercise routine. This episode dives into practical strategies to overcome fear, find motivation, and rediscover the pleasure of moving within your limits.To build a complete and safe foundation, we recommend listening to part 1 of this 2 part exercise series featuring pediatric cardiologist Dr. Robert Hamilton.Listen to this episode

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00:30:48

Ep 41. Rethinking Exercise Restrictions for Inherited...

Let"s Talk SADS Live ·

2025/12/30

What if your diagnosis didn't mean you had to give up the sports and activities you love? Pediatric cardiologist Dr. Robert Hamilton challenges decades of fear with a new, empowering message for the SADS community: "Complete restriction is just not healthy."Drawing from the latest patient data and his extensive clinical practice, Dr. Hamilton explains how exercise recommendations for inherited arrhythmia conditions have evolved. He provides clear, practical guidance on safely staying

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00:33:24

Ep 40. Giving the Gift of an End-of-Life Plan

Let"s Talk SADS Live ·

2025/12/09

What if the greatest gift for your family wasn't something you could wrap? Yvonne Heath, author of "Live Your Life to Death", explains why preparing for the end of life is an essential act of love. She shares powerful stories from the bedside, revealing the profound peace that comes with planning and the heartbreaking conflict that arises without it.This conversation is a powerful call to normalize end-of-life planning, to "just show up" for ourselves and our loved ones, and

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00:26:56

Ep 39. An NHL Career Redirected by Sudden Cardiac Arrest

Let"s Talk SADS Live ·

2025/11/25

Having your life's dream taken away in an instant is a reality Brett MacLean faced at 23. A professional hockey player who had just scored in the NHL, Brett's career ended with a sudden cardiac arrest on the ice. In this powerful conversation, he shares his story of survival, from waking up with no memory of his hockey career to grappling with the profound loss of his identity. This conversation is a powerful testament to the importance of CPR/AED training and the human capacity for

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00:33:05

Ep 38. A Sister's Legacy Turned Into a Lifetime of...

Let"s Talk SADS Live ·

2025/11/11

For Lia Olmsted, the discovery that her children had Brugada Syndrome came after the devastating loss of her 21-month-old daughter, Reese. In this heartfelt conversation, Lia shares the realities of parenting a child with a life-altering condition, the critical importance of CPR awareness, and how she channels her love for Reese into a foundation that supports and brings smiles to children in her community.This episode is a powerful testament to a family's strength and a mother's

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00:32:00

Ep 37. Heart Disease Doesn't Care How Old You Are

Let"s Talk SADS Live ·

2025/10/28

Meet Hannah Keime from HeartCharged. Diagnosed with a genetic heart condition at just 14, Hannah gets real about the challenges of an invisible illness and explains why she started HeartCharged. She opens up about showing her scars and sharing the raw, unfiltered truth of her patient journey to build a supportive global community for young people.Her story is a powerful blend of vulnerability, resilience, and life-saving advocacy. Find Hannah and Bethany's work ⁠ @heartcharged ⁠ on Instagram

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00:34:40

Ep 36. The Journey to Recovery after a Cardiac Storm

Let"s Talk SADS Live ·

2025/10/14

The Road to Recovery after a Cardiac StormIn this powerful first episode of the new patient-driven Let’s Talk SADS Live, Sally Gilbert shares her journey of living with exercise-induced ARVC and the emotional aftermath of surviving multiple ICD shocks during a cardiac event earlier this year.Sally opens up about the fear and uncertainty that followed, and how she’s learned to cope, rebuild her confidence, and move forward one day at a time. Her story is one of strength, resilience, and the

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00:45:28

Let's Talk SADS Live Episode 35: Past to Present and...

Let"s Talk SADS Live ·

2025/09/16

Join the Canadian SADS Foundation for the 35th episode of Let’s Talk SADS Live with Dr. Andrew Krahn, as we take a closer look at Long QT Syndrome and what it means for patients and families.This episode will explore the latest understanding of Long QT Syndrome, from diagnosis and risk assessment to management and family screening. Dr. Krahn will share insights from his clinical and research experience on how we can better identify individuals at risk, prevent sudden cardiac events, and support

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00:40:28

Episode 34. What Gene Therapy Means for Families...

Let"s Talk SADS Live ·

2025/08/19

Join us for our first pre-recorded episode! In episode 34 of Let’s Talk SADS Live, we sit down with Dr. Andrew Landstrom to explore the promise and progress of gene therapy for inherited arrhythmia syndromes. This episode dives into how gene therapies are being developed to treat conditions such as Long QT Syndrome, CPVT, and Brugada Syndrome, and what this means for families affected by SADS. From understanding how these therapies work to what’s on the horizon in clinical research, Dr. Landstrom

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00:45:10

Episode 33. Preparing for the Next Chapter as a...

Let"s Talk SADS Live ·

2025/07/16

Join the Canadian SADS Foundation for the 33rd episode of Let’s Talk SADS Live, where we’ll be joined by Dr. Danna Spears to explore Managing Pregnancy with a SADS Condition. This episode will focus on the unique challenges and important considerations for individuals with inherited arrhythmia syndromes as they plan for and go through pregnancy. From risk assessment to delivery planning, we’ll take a closer look at how to support safe and informed decision-making throughout the process.Dr. Danna

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00:42:53

Ep 32. The Impact of SADS Conditions on Mental Health...

Let"s Talk SADS Live ·

2025/06/18

Join the Canadian SADS Foundation for the 32nd episode of Let’s Talk SADS Live, where we’ll be joined by Dr. Lauren Schneider to explore the Impact of SADS Conditions on Mental Health and Wellbeing. This episode will highlight how anxiety, trauma, and uncertainty can affect overall wellbeing, and why integrating mental health support into cardiac care is so critical.Dr. Lauren Mikula Schneider is a Clinical Professor of Psychiatry and Behavioral Sciences and Pediatrics at Stanford University, and a

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00:47:48

Ep 31. The Evolving Story of ARVC in Clinical Care...

Let"s Talk SADS Live ·

2025/05/23

Join the Canadian SADS Foundation Live for the 31st episode of Let’s Talk SADS Live, hosted by Dr. Shubhayan Sanatani. In this episode, we’ll be speaking with Dr. Dominic Abrams about Arrhythmogenic Right Ventricular Cardiomyopathy, exploring how genetics, exercise, and evolving diagnostic strategies play a role in identifying and managing this complex inherited heart condition.Dr. Dominic Abrams is a pediatric electrophysiologist at Boston Children’s Hospital and an Associate Professor of

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00:43:40

Ep 30. The Autonomic Nervous System and Its Effects...

Let"s Talk SADS Live ·

2025/04/17

In this episode, we will be speaking with Dr. Victoria Claydon on the Autonomic Nervous System and fainting spells (or syncopal episodes) and whether, in rare cases, it can contribute to irregular heart beats associated with a phenomenon known as “autonomic conflict”.Dr. Victoria Claydon is a professor in the Department of Biomedical Physiology and Kinesiology at Simon Fraser University (SFU). She earned her B.Sc. (Hons) in Physiology in 1998 and completed her Ph.D. in Cardiovascular Physiology in

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00:44:21

Ep 29. The Role of AI in the Future of SADS Conditions

Let"s Talk SADS Live ·

2025/03/18

Join us for the 29th episode of Let's Talk SADS Live, hosted by Dr. Shubhayan Sanatani. In this episode, we will be speaking with Dr. Robert Avram on the uses of AI in healthcare, and how this will affect the future of SADS conditions. Dr. Avram has completed an AI fellowship at UCSF and an Interventional Cardiology fellowship in Ottawa. He is currently a clinician and researcher at the Montreal Heart Institute affiliated with the University of Montreal where he leads the Heartwise.ai laboratory

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00:50:01

Ep 28. Challenges in the Diagnosis and Management of...

Let"s Talk SADS Live ·

2025/02/11

Join us on Episode 28 of Let's Talk SADS Live with guest Dr. Georgia Brugada of SJD Barcelona Children’s Hospital. Dr Georgia Brugada is a specialist in pediatric arrhythmias, family cardiology, and sudden death at the Cardiology Department of the SJD Barcelona Children's Hospital. For a number of years, she was an attending physician in congenital heart diseases at the Hôpital Necker Enfants Malades and at the Hospital Européen George Pompidou, in Paris.Our Let's Talk SADS Live Series

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00:43:15

Ep 27. New Developments in The treatment of...

Let"s Talk SADS Live ·

2025/01/21

This Let's Talk SADS Live guest, Dr. Jason Roberts, discusses the evolution of treatment strategies, provide an overview about findings in recent pre-clinical research data, and shed light on novel therapeutic approaches under study for arrhythmogenic cardiomyopathies. He will also provide an overview of an exciting upcoming clinical trial available here in Canada as well as offer insights for patients who want to enroll in a clinical trial.Our Let's Talk SADS Live Series is provided at no

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