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PODCAST

Amplifying the Patient Journey

Practical Neurology

The heart of clinical practice is the patient. In this series, we speak with both providers and patients about the clinical journey with a neurologic condition, and what recent advances mean for patients, their providers, and caregivers.

science life sciences

All Episodes

28:08

Learning, Laughing, and Living with Multiple Sclerosis

Amplifying the Patient Journey ·

2025/10/21

Ardra Shephard, a musician, author, fashion-show TV host, podcaster, and MS advocate, discusses her experiences living with MS, including how she uses her story to educate and encourage others living with MS. She is joined by Jiwon Oh, MD, Medical Director of the Barlo Multiple Sclerosis Program at St. Michael’s Hospital, Toronto, ON, who describes how advancements in the diagnosis and treatment of MS have improved outcomes for individuals living with this condition.

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24:51

Parkinson Disease Therapy: Lifestyle Interventions to...

Amplifying the Patient Journey ·

2025/10/21

Lisa Volenec, a patient advocate and General Manager of KMTV, Omaha, NE, shares how incorporating lifestyle modifications—such as diet, exercise, and community engagement—has enhanced her Parkinson disease treatment. She is joined by double-board-certified neurology and lifestyle medicine physician and fellowship-trained movement disorder specialist Rachel Dolhun, MD, DipABLM, principal medical advisor at The Michael J. Fox Foundation, who offers expert insights on integrating these strategies into

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13:05

Redefining the Doctor-Patient Partnership: What a...

Amplifying the Patient Journey ·

2025/10/17

How can neurologists partner with their patients living with Parkinson disease? Kathleen Blake, MD, MPH, Santa Fe, NM, Vice Chair of the Parkinson's Foundation People with Parkinson’s Advisory Council, discusses Parkinson disease care from her unique perspective as both a patient and former physician.

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25:14

Mastering Migraine

Amplifying the Patient Journey ·

2025/05/07

Melody Barthelemy, a human resources specialist, details her experiences living with migraine, including strategies for tracking episodes and thriving with a busy career. She is joined by Dawn C. Buse, PhD, Clinical Professor, Albert Einstein College of Medicine, New York, NY, who discusses recent research in the field.

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21:27

The Importance of Early Diagnosis and Treatment of...

Amplifying the Patient Journey ·

2025/01/22

Linda Shows, a semi-retired nurse who lives with mild cognitive impairment, and her physician, Wendell Helveston, MD, Hattiesburg Clinic, Hattiesburg, MS, discuss the importance of early diagnosis and treatment in Alzheimer disease, including other factors that can help patients thrive when living with this condition.

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23:42

Rehabilitation after Traumatic Brain Injury (TBI)

Amplifying the Patient Journey ·

2024/12/19

After an attack leading to multiple surgeries and a traumatic brain injury, survivor Kel Mabatah developed a rehabilitation scholarship that enables TBI patients to continue therapy after insurance runs out. Kel is joined by Alfreida Melvin, mother of Dontel, who is a recipient of the scholarship from the “Kel Strong” Mabatah Foundation.https://www.kelstrongfoundation.com/

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11:41

Redefining Life with Friedreich Ataxia

Amplifying the Patient Journey ·

2024/11/20

We speak with neuromuscular disease expert David Lynch, MD, PhD, attending neurologist in the Division of Neurology at Children's Hospital of Philadelphia and director of the Friedreich Ataxia Program, about the emerging treatment landscape for Friedeich Ataxia as well as Kiersten Riggs, who discusses the events leading to her Friedrich Ataxia diagnosis and how she has adapted to life with Friedrich ataxia.

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20:10

Young-Onset ALS: Diagnosis and Research

Amplifying the Patient Journey ·

2024/11/08

In this episode, Gwen Petersen discusses her long journey to receiving an ALS diagnosis at age 32, her contributions to a Cytokinetics book project, and the importance of clinical trial participation. We are also joined by Merit Cudkowicz, MD, MSc, Head of the Department of Neurology, Chief of Neurology, and Director of the Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital in Boston, MA who discusses the PLATFORM-ALS trial and the drugs currently in the clinical research and

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22:41

Rett Syndrome: Magnolia and Her Family's Experience.

Amplifying the Patient Journey ·

2024/10/31

AJ Tesler shares the story of his daughter, Magnolia, who is living with Rett syndrome. As a parent and caregiver, AJ provides his perspective throughout the diagnostic and therapeutic journey for Rett syndrome and is joined by Rett syndrome expert Carey Fu, MD, Pediatric Neurologist at Vanderbilt University Medical Center in Nashville, TN.

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18:06

PD GENEration and Barriers to Parkinson Diagnosis -...

Amplifying the Patient Journey ·

2024/08/23

Richard Huckabee is a patient living with Parkinson disease and a Parkinson’s Foundation "Aware in Care" ambassador and research advocate. Mr. Huckabee is enrolled in the PD GENEration study, a national initiative offering no-cost genetic testing and counseling for people with Parkinson disease, and he discusses some of the barriers he faced in receiving a diagnosis of Parkinson disease.

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18:35

PD GENEration and Barriers to Parkinson Diagnosis -...

Amplifying the Patient Journey ·

2024/08/13

Chantale Branson, MD, Associate Professor of Neurology at Morehouse School of Medicine, Atlanta, GA, is a researcher working on the pivotal PD GENEration study, which aims to improve treatment options through the identification of clinically relevant genes linked to Parkinson disease. In this episode, Dr. Branson provides context for the social barriers faced by people of color who have Parkinson disease.

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20:21

The Influence of Family Health History on the...

Amplifying the Patient Journey ·

2024/06/27

Bernice Bennett, genealogist, health education specialist, and co-founder and faculty member of the Midwest African American Genealogy Institute, discusses the Family Health History Road Trip, which emphasizes the important role family health history can play in driving earlier diagnosis of hATTR amyloidosis. Bernice is joined by Giselle, a program participant living with hATTR amyloidosis who shares her experiences with amyloidosis and how she approached conversations with her family about this

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26:38

Beyond Brain Injury

Amplifying the Patient Journey ·

2024/05/02

Elisabeth Beraquit, a Philadelphian, CPA, and former bakery owner, recounts her painstaking journey of recovery from a traumatic brain injury due to a 30 foot fall.

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30:48

Surviving Stroke: 2 Surgeons Experience with Recovery

Amplifying the Patient Journey ·

2024/02/08

Siva Murugappan, MD, General Surgeon, Chatham-Kent Health Alliance, Ontario, Canada, shares his own experiences as a patient recovering from an ischemic stroke. He is joined by his wife and caregiver, Dr. Prema Samy, Otolaryngologist, Chatham-Kent Health Alliance, Ontario, Canada, as they both discuss their transition from physician, to their respective roles as patient and caregiver in the recovery journey.

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30:47

Ping Pong and Parkinson Disease

Amplifying the Patient Journey ·

2023/12/28

PingPongParkinson founder, Nenad Bach, discusses why he started PingPong Parkinson. He is joined by Gabe Elkinson and Ryan Dong, two high school students who started a PingPongParkinson chapter in Georgia, and Pierre Russell, a PingPongParkinson participant.

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28:50

Epilepsy Caregiving

Amplifying the Patient Journey ·

2023/12/05

Caregivers play an important part in the patient journey, especially with conditions such as epilepsy. Actor and podcast host of "Talk About It!" Greg Grunberg discusses how caregivers can educate themselves and their loved ones about how best to thrive.

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50:25

SMA Experience: Episode 2

Amplifying the Patient Journey ·

2023/11/21

Neuromusclar disease expert Diana Bharucha-Goebel, MD, PhD chats with Traci High, mother of two patients with SMA about how the SMA treatment landscape, and her childens' lives, have changed over the past 15 years.

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17:33

SMA Experience: Episode 1

Amplifying the Patient Journey ·

2023/11/13

Neuromuscular disease expert Charlotte Sumner, MD chats with her patient Nicole Moore about some of her life goals and how recent treatment options have changed the conversations between them.

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18 results

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