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PODCAST

Lewy Body and Mindful Caregiving

Krystal Jakosky

Lewy Body and Mindful Caregiving is a weekly podcast hosted by yours truly, Krystal Jakosky. I’ve always been open to discussing death and the end-of-life challenges we will all face. Yet, in November of 2023, my Mom was diagnosed with Lewy Body Dementia, and suddenly everything became a LOT more real. My aim is to bring awareness and understanding of the rollercoaster specific to Lewy Body. If you are supporting someone or know of someone who is dealing with dementia in any way, I hope this

education self-improvement

All Episodes

00:13:28

Projections and Assumptions

Lewy Body and Mindful Caregiving ·

2025/02/13

Just returned from a rejuvenating weekend away, and I'm here to dive deep into a topic that's been on my heart—projections and assumptions in caregiving. ✨ Join me as I unravel the emotions hidden beneath my mom's words, like her oft-repeated "you're so busy," which speaks volumes about her loneliness and desire for connection. In this episode, I'll share personal insights into understanding these cues, embracing patience, and finding ways to create meaningful moments amidst the

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00:09:17

The Importance of Having a Medical Log

Lewy Body and Mindful Caregiving ·

2025/01/30

Today, I’m diving deep into the importance of maintaining a detailed medication log for our loved ones. Having juggled numerous meds for my mom, I've learned the hard way about the significance of recording not just the 'what,' but the 'why' of every shift. This log has become my lifesaver in tracking changes and managing side effects. Plus, always make time for a little self-care! We're in this journey together.

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00:09:17

The Importance of Having a Medical Log

Lewy Body and Mindful Caregiving ·

2025/01/30

Today, I’m diving deep into the importance of maintaining a detailed medication log for our loved ones. Having juggled numerous meds for my mom, I've learned the hard way about the significance of recording not just the 'what,' but the 'why' of every shift. This log has become my lifesaver in tracking changes and managing side effects. Plus, always make time for a little self-care! We're in this journey together.

en

00:13:13

Navigating Holiday Traditions: Mindful Caregiving for...

Lewy Body and Mindful Caregiving ·

2024/12/19

In this heartwarming episode, I guide you through the holiday season, offering practical tips on balancing cherished traditions with mindful caregiving for your loved ones with dementia. Join me as we explore ways to honor and celebrate together while nurturing our own well-being, ensuring a joyful and peaceful holiday season for us all. Tune in for inspiration and support on this meaningful journey.

en

00:13:13

Navigating Holiday Traditions: Mindful Caregiving for...

Lewy Body and Mindful Caregiving ·

2024/12/19

In this heartwarming episode, I guide you through the holiday season, offering practical tips on balancing cherished traditions with mindful caregiving for your loved ones with dementia. Join me as we explore ways to honor and celebrate together while nurturing our own well-being, ensuring a joyful and peaceful holiday season for us all. Tune in for inspiration and support on this meaningful journey.

en

00:20:14

Caregiving Lessons We Wish We Knew

Lewy Body and Mindful Caregiving ·

2024/12/12

In this heartfelt episode, I dive deep into the invaluable lessons and reflections shared by fellow caregivers on what they wish they'd known sooner. Join me as I explore the emotional nuances of caregiving, from self-care strategies to navigating the tough road of regrets and making peace with them. Let’s embrace this journey together and find joy amidst the challenges.

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00:20:14

Caregiving Lessons We Wish We Knew

Lewy Body and Mindful Caregiving ·

2024/12/12

In this heartfelt episode, I dive deep into the invaluable lessons and reflections shared by fellow caregivers on what they wish they'd known sooner. Join me as I explore the emotional nuances of caregiving, from self-care strategies to navigating the tough road of regrets and making peace with them. Let’s embrace this journey together and find joy amidst the challenges.

en

00:21:37

Honoring Her Wishes: A Journey Through Comfort and...

Lewy Body and Mindful Caregiving ·

2024/11/28

In this heartfelt episode of Lewy Body and Mindful Caregiving, I open up about the emotional and physical challenges of navigating my mom's declining health. From the guilt of missing a call in the night to honoring her wishes for comfort care, join me as I share the tough decisions and moments of self-care that define this caregiving journey. Your support and understanding mean the world to me as I advocate for her with love and compassion. *In this podcast, I mention My mom is

en

00:21:37

Honoring Her Wishes: A Journey Through Comfort and...

Lewy Body and Mindful Caregiving ·

2024/11/28

In this heartfelt episode of Lewy Body and Mindful Caregiving, I open up about the emotional and physical challenges of navigating my mom's declining health. From the guilt of missing a call in the night to honoring her wishes for comfort care, join me as I share the tough decisions and moments of self-care that define this caregiving journey. Your support and understanding mean the world to me as I advocate for her with love and compassion. *In this podcast, I mention My mom is

en

00:16:40

Balancing Self-Care and Caregiving: The Lifeline of...

Lewy Body and Mindful Caregiving ·

2024/11/21

I'm taking you on a deeply personal journey. Caring for my mom since 2018 has been both a blessing and a challenge, especially as her condition has evolved. This episode digs into my struggle with caregiver burnout, those sleepless nights worrying about her safety, and the emotional toll it took on me. I open up about reaching a breaking point where I felt shattered and overwhelmed, despite my best efforts at self-care. You'll hear how I came to the realization that I couldn’t

en

00:16:40

Balancing Self-Care and Caregiving: The Lifeline of...

Lewy Body and Mindful Caregiving ·

2024/11/21

I'm taking you on a deeply personal journey. Caring for my mom since 2018 has been both a blessing and a challenge, especially as her condition has evolved. This episode digs into my struggle with caregiver burnout, those sleepless nights worrying about her safety, and the emotional toll it took on me. I open up about reaching a breaking point where I felt shattered and overwhelmed, despite my best efforts at self-care. You'll hear how I came to the realization that I couldn’t

en

00:11:03

Emotional Check-In for Caregivers of Lewy Body Dementia

Lewy Body and Mindful Caregiving ·

2024/11/14

Today, I delve into the nuanced differences between "how are you doing?" and "how are you feeling?" This conversation is vital for caregivers like us who often mask our true emotions. But first, let's talk self-care. With the first snow here, I cozied up with a warm blanket, a book, and tea for half a day - a much-needed pause. Throughout this episode, I share insights from a pivotal discussion with my therapist, examining how acknowledging our feelings and recognizing our

en

00:11:03

Emotional Check-In for Caregivers of Lewy Body Dementia

Lewy Body and Mindful Caregiving ·

2024/11/14

Today, I delve into the nuanced differences between "how are you doing?" and "how are you feeling?" This conversation is vital for caregivers like us who often mask our true emotions. But first, let's talk self-care. With the first snow here, I cozied up with a warm blanket, a book, and tea for half a day - a much-needed pause. Throughout this episode, I share insights from a pivotal discussion with my therapist, examining how acknowledging our feelings and recognizing our

en

00:10:23

Coping with Hallucinations: Support for Dementia...

Lewy Body and Mindful Caregiving ·

2024/11/07

In this episode of Lewy Body and Mindful Caregiving, I delve into the world of hallucinations that accompany Lewy Body Dementia. Join me as I share personal insights on understanding and navigating these experiences, while offering heartfelt strategies to maintain peace and connection with our loved ones. Let's journey through this challenging path together, finding moments of calm and compassion along the way.

en

00:10:23

Coping with Hallucinations: Support for Dementia...

Lewy Body and Mindful Caregiving ·

2024/11/07

In this episode of Lewy Body and Mindful Caregiving, I delve into the world of hallucinations that accompany Lewy Body Dementia. Join me as I share personal insights on understanding and navigating these experiences, while offering heartfelt strategies to maintain peace and connection with our loved ones. Let's journey through this challenging path together, finding moments of calm and compassion along the way.

en

00:11:19

56: The Emotions of Lewy Body

Lewy Body and Mindful Caregiving ·

2024/11/04

Join me on this week's episode of "Lewy Body and Mindful Caregiving" as I dive into the emotional landscape shaped by Lewy Body Dementia. I share personal insights from caring for my mom, whose emotions often mimic those of a child—joyful, sudden, raw. We'll explore managing these emotional waves and the crucial role of self-care in maintaining balance. Whether you're soaking in this knowledge for yourself or your loved one, may it offer comfort and empower your caregiving

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00:08:09

55: Navigating Sleep Disturbances in Lewy Body Dementia

Lewy Body and Mindful Caregiving ·

2024/10/24

Join me, Krystal, as we delve into the world of Lewy body dementia and its ties to sleep disturbances. From night wanderings to sleep eating, I'm sharing practical tips to ensure both you and your loved one find a peaceful night’s rest. Learn from my own journey with my mom—a simple CPAP changed our lives. Remember, your self-care is just as crucial. Let's tackle these challenges together. Tune in and let's find peace in mindful caregiving. #LewyBodyDementia #MindfulCaregiving

en

00:08:09

55: Navigating Sleep Disturbances in Lewy Body Dementia

Lewy Body and Mindful Caregiving ·

2024/10/24

Join me, Krystal, as we delve into the world of Lewy body dementia and its ties to sleep disturbances. From night wanderings to sleep eating, I'm sharing practical tips to ensure both you and your loved one find a peaceful night’s rest. Learn from my own journey with my mom—a simple CPAP changed our lives. Remember, your self-care is just as crucial. Let's tackle these challenges together. Tune in and let's find peace in mindful caregiving. #LewyBodyDementia #MindfulCaregiving

en

00:16:21

54: Your Unique Caregiving Journey: Embrace Your Path

Lewy Body and Mindful Caregiving ·

2024/10/17

In this episode of "Lewy Body and Mind for Caregiving," I open up about the deeply personal and unique journey of caregiving and the weight of making difficult decisions for our loved ones. I share how pottery has been my solace and self-care, a space where I can let go and create. We delve into the importance of personalized choices and understanding that every path is unique—whether it’s about medication decisions or care arrangements. It's a raw, honest conversation about the

en

00:16:21

54: Your Unique Caregiving Journey: Embrace Your Path

Lewy Body and Mindful Caregiving ·

2024/10/17

In this episode of "Lewy Body and Mind for Caregiving," I open up about the deeply personal and unique journey of caregiving and the weight of making difficult decisions for our loved ones. I share how pottery has been my solace and self-care, a space where I can let go and create. We delve into the importance of personalized choices and understanding that every path is unique—whether it’s about medication decisions or care arrangements. It's a raw, honest conversation about the

en

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