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PODCAST

EAHAD

EAHAD - European Association for Haemophilia and Allied Disorders

Welcome to the official podcast of the European Association for Haemophilia and Allied Disorders (EAHAD). EAHAD is a multidisciplinary organization committed to improving the lives of people living with bleeding disorders in Europe. Our podcast is dedicated to providing valuable insights, discussions and updates on the latest developments in the field of haemophilia and allied disorders. Join us as we explore a wide range of topics including treatment, research, and patient care.

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All Episodes

00:05:06

Breaking Barriers: Pioneering Psychosocial Support...

EAHAD ·

2026/09/30

When we talk about bleeding disorders, care often begins with diagnosis, treatment, and the prevention of bleeding. But living with a bleeding disorder involves much more than managing a medical condition. It can affect emotional wellbeing, family life, relationships, education and everyday confidence. That is the starting point for Breaking Barriers: Pioneering Psychosocial Support for Bleeding Disorders in Kyrgyzstan, a new EAHAD project that puts psychosocial care at the centre of the

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00:18:07

100 Years of Von Willebrand Disease: Looking Back,...

EAHAD ·

2026/09/11

In this episode of EAHAD Insights, Riitta Lassila and Alberto Tosetto, Von Willebrand Disease experts, look back at 100 years of progress in VWD and discuss how historical milestones continue to shape clinical practice today.From the evolution of diagnosis and the role of bleeding assessment tools to the factors that can modify bleeding tendency beyond VWF levels, the conversation explores some of the nuances of VWD management. The discussion also considers the often-overlooked role of anaemia in

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00:16:46

Meet the Author Ep. 12: Haemophilia infants gross...

EAHAD ·

2026/09/01

Haemophilia infants’ gross motor development: are we supporting movement from the very beginning? How does haemophilia affect gross motor development during the first months of life, and could factors beyond the condition itself influence how infants learn to move and explore? In this podcast interview, we discuss the study “Haemophilia infants gross motor development: comparisons with full-term and preterm infants of the same nationality”, which assessed motor development in infants with

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00:15:02

Meet the Author Ep. 11: Predicting Recovery After...

EAHAD ·

2026/07/15

Based on the recent study Predicting Recovery After Joint Bleeding in Persons With Bleeding Disorders, we discuss the factors that influence recovery time, the importance of early clinical assessment, and how personalised follow-up may help optimise long-term musculoskeletal outcomes. Join us as we speak with one of the author Gijs Aertssen, about the implications of their findings for everyday clinical practice and the future of comprehensive haemophilia care.Read the full article:

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00:25:14

Revisiting the role of FVIII in Haemophilia A in 2026

EAHAD ·

2026/03/28

In this episode, Cedric Hermans sits down with Jan Blatný, Consultant Haematologist at Masaryk University and University Hospital Brno, EHCC and EuroBloodNet Centre, and former EAHAD President (2024–2026), to explore the evolving role of Factor VIII in the management of haemophilia A in 2026. As new therapies such as emicizumab, rebalancing agents, and gene therapy reshape the treatment landscape, this conversation revisits where FVIII remains essential.

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00:16:29

Meet the Author Ep. 10: The effects of traumatic pain...

EAHAD ·

2026/03/17

Pain is not always just physical; sometimes, it’s shaped by memory. In this episode, Merel Timmer explores a recent study by Anna Wells, Clinical Specialist Physiotherapist in Haemophilia and Allied Bleeding Disorders, on how traumatic pain memories may influence the experience of pain in the present. The research highlights a crucial but often overlooked dimension of care: the psychological and emotional layers of pain.Read the full article:

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00:13:24

E-Learning Ep. 14: Heavy Menstrual Bleeding in Women...

EAHAD ·

2026/01/21

Heavy menstrual bleeding (HMB) can have a profound impact on the quality of life of women and girls with very rare coagulation factor deficiencies (VRCFDs). Understanding its underlying mechanisms, clinical manifestations, and management strategies requires a multidisciplinary approach. In this episode, you will explore HMB in the context of VRCFDs from multiple perspectives and with a multidisciplinary approach.🎥 The full module is available on the EAHAD Academy:

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00:16:36

Meet the Author Ep. 9: The Developing Role of...

EAHAD ·

2026/01/07

In this episode, Paul McLaughlin talks to Claire Forde, a specialist Occupational Therapist working in bleeding disorders. Listen to them discuss Claire's unique job role and how the occupational therapist service started in the Belfast Comprehensive Care Centre.Learn more about the service review (presented at EAHAD 2025) that Claire undertook, and how the findings of that review identify who may benefit from occupational therapy input and what care provision may look like in the

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00:32:03

Meet the Author Ep. 8: A single centre experience...

EAHAD ·

2025/09/01

In this episode, Maj Friberg Birkedal, Chair of the EAHAD Nurses Committee and Paediatric Nurse in Thrombosis and Haemostasis, discusses how the Neria™ Guard infusion set may help reduce pain and distress for children receiving emicizumab. Drawing on real-world experience, she highlights why even small innovations can make a big difference in paediatric care.📰 Read the article: ⁠⁠⁠https://pubmed.ncbi.nlm.nih.gov/38462765/

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00:16:42

Meet the Author Ep.7: Acute neuromuscular and...

EAHAD ·

2025/06/16

In this episode of "Meet the Author", Daniel C. Ogrezeanu discusses his recent paper on "Acute neuromuscular and perceptual responses to blood flow restriction exercise in adults with severe haemophilia: a pilot study". Learn more about the safety and effects of blood flow restriction exercise in people with severe haemophilia. Read the full article: https://onlinelibrary.wiley.com/doi/10.1111/hae.15084Contact the author: daniel.ogrezeanu@uv.es

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00:23:58

Meet the Author Ep. 6: Exercise-based...

EAHAD ·

2025/03/10

This episode features Paul Mclaughlin and Paula Loughnane interviewing him about his recent paper "Exercise-based telerehabilitation for the management of chronic pain in people with severe haemophilia: a mixed-methods feasibility study".📰 Read the article: ⁠⁠https://pilotfeasibilitystudies.biomedcentral.com/articles/10.1186/s40814-024-01550-z

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00:12:13

Meet the Author Ep. 5: A Clinical Practice Guideline...

EAHAD ·

2024/12/02

This episode features Johan Blokzijl and Paula Loughnane interviewing him about his recent paper "A Clinical Practice Guideline for Primary Care Physiotherapy in Patients with Haemophilia".📰 Read the article on the EAHAD Website: ⁠https://www.eahad.org/eahad-projects/physiotherapists-committee-projects/ 🎥 Watch the episode on the EAHAD Academy: https://academy.eahad.org/eahad/2024/meet-the-author-series-johan-blokzijl/4150266

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00:25:08

E-Learning Ep. 13: Surgery in patients with...

EAHAD ·

2024/10/17

Welcome to our podcast series, today we interview Maria Elisa Mancuso, Senior Hematology Consultant Center for Thrombosis and Hemorrhagic Diseases, IRCCS Humanitas Research Hospital Milan, and Yesim Dargaud, head of the Clinical Haemostasis Unit at Lyon University Hospitals and the coordinator of the French reference centre for haemophilia to discuss the critical topic of managing surgery in haemophilia patients with inhibitors. Major surgeries for this unique patient population demand specialized

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00:16:06

E-Learning Ep. 13.1: Surgery in patients with...

EAHAD ·

2024/09/02

Welcome to our podcast series, today we interview Maria Elisa Mancuso, Senior Hematology Consultant Center for Thrombosis and Hemorrhagic Diseases, IRCCS Humanitas Research Hospital Milan, and Yesim Dargaud, head of the Clinical Haemostasis Unit at Lyon University Hospitals and the coordinator of the French reference centre for haemophilia to discuss the best practices for managing surgery in patients with haemophilia. 🎥 The full module will available on the EAHAD Academy on Tuesday 10th

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00:22:44

Meet the Author Ep. 4: ACTIVLIM-Hemo: A new...

EAHAD ·

2024/08/03

This episode features Sébastien Lobet who is currently a Physiotherapist and Researcher at the Haemostasis and Thrombosis Unit at the Cliniques Universitaires Saint-Luc at Université Catholique de Louvain in Brussels, Belgium. He was also chair of the EAHAD Physiotherapists Committee.Paul Mclaughlin will interview him about his recent paper titled "ACTIVLIM-Hemo: A new self-reported, unidimensional and linear measure of activity limitations in persons with haemophilia".📰 Read the full

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00:20:47

E-Learning Ep. 11: How can we improve the efficacy...

EAHAD ·

2024/07/23

Welcome to our podcast series, today we interview Prof. Thierry VandenDriessche to discuss how to enhance the efficacy and safety of gene therapy for haemophilia A and B. Despite achieving multiyear therapeutic levels of factor VIII and factor IX in patients, challenges remain. Variability in expression, gradual decline of factor VIII levels, and frequent incidence of transaminitis present ongoing hurdles.In this episode, we delve into these challenges and discuss strategies to overcome them, with

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00:20:47

E-Learning Ep. 10: Clinical Experience in Haemophilia...

EAHAD ·

2024/07/09

Dive deep into understanding the Clinical Experience in Haemophilia Gene Therapy with Johnny Mahlangu.🎥 Watch the full module on the EAHAD Academy: ⁠https://academy.eahad.org/eahad/2024/module-11-clinical-experience-in-haemophilia-gene/417335⁠

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00:21:02

E-Learning Ep. 9: Basic Science of Haemophilia Gene...

EAHAD ·

2024/07/01

This new episode on the Basic Science of Haemophilia Gene Therapy with Paul Batty introduces the science underlying this new therapy. Itprovides an overview of different gene therapy approaches, focussing on adeno-associated viral (AAV) vectors that are used for the treatment of haemophilia. 🎥 Watch the full module on the EAHAD Academy: https://academy.eahad.org/eahad/2024/module-10-basic-science-of-haemophilia-gene-thera/411461

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00:23:31

E-Learning Ep. 8: Peripartum management of women with...

EAHAD ·

2024/06/13

In this episode, we explore the complexities of managing Von Willebrand Disease in women during childbirth. This in-depth discussion goes beyond the basics, addressing the unique challenges faced by women and highlighting the essential considerations for providing optimal care. This presentation refers to all people with the ability to menstruate. 🎥 Watch the full module on the EAHAD Academy: https://academy.eahad.org/eahad/2024/module-9-peripartum-management-of-women-with-von/408873

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00:09:22

Meet the Author Ep. 3: Physical activity, physical...

EAHAD ·

2024/06/03

This episode features Megan Kennedy talking with Paula Loughnane, a member of the EAHAD Physiotherapists Committee, about her recent research on the physical well-being of adults with moderate and severe haemophilia. The study delves into the realms of physical activity, fitness, and cardiometabolic risks among this population. 📰 Read the full article on the Haemophilia Journal: https://onlinelibrary.wiley.com/doi/full/10.1111/hae.14653 🎥 Watch the episode on the EAHAD Academy:

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