PODCAST

Sarc Fighter: Living with Sarcoidosis and other rare diseases

John Carlin

Fighting sarcoidosis as well as other rare diseases.

health & fitness medicine

All Episodes

61:01

Episode 156 | Janet Mockovciak has tried everything...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2026/01/26

Janet Mockovciak has been through the wringer. Her sarcoidosis has gone from bad to worse. She has tried all the medications that most patients have used, but they only seem to last for a brief period of time. Then they stop. In the meantime, the sarcoidosis spreads throughout her system. Despite that, she manages to walk two miles every day, and recently went skiing with an oxygen tank on her back! Listen as Janet describes all she has been through -- with the takeaway being that she is still

51:05

Episode 155 | Dr. Mark Mallozzi is researching a...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2026/01/12

Dr. Mark Mallozzi at National Jewish Health in Denver is examining the airborne particles or "particulate matter" that may play a role in triggering sarcoidosis. In this episode of the FSR Sarc Fighter Podcast, Dr. Mallozzi details some of the things in the air that we have no idea we are breathing. He looks at the evidence from the dust at 9-11, to burn pits for veterans to smoke from wildfires -- places where cases of sarcoidosis tend to spike.Show Notes More on Dr. Mark Mallozzi:

55:26

Episode 154 | 2025 Was a great year in the fight...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2025/12/27

Here at the end of 2025, it's time to measure our progress in the fight against Sarcoidosis -- and the news is good. In this episode of the FSR Sarc Fighter Podcast, Tricha Shivas, the Chief of Staff and Strategy at the Foundation for Sarcoidosis Research, joins me to talk about huge strides in research funding, building the support community, Veterans' support, and even progress with lawmakers in Washington, D.C. In short, this is a good time to be a sarc patient -- as more and more progress is

31:32

Episode 153 | A possible connection between Pulmonary...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2025/12/18

A new study out of India shows a bit of crossover between sarcoidosis and lung cancer. In this episode of the FSR Sarc Fighter podcast, I'll take a look at the study and what it reveals — including a new drug, Metformin, previously used to treat Type 2 Diabetes, that may show promise based on the study's findings. For what it's worth, I'll also share the terrors of surgery for my ruptured Achilles. Show Notes: Donate to FSR:

45:01

Episode 152 Basim Karim is fighting sarcoidosis while...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2025/12/01

Basim Karim is a fighter. He's battled HIV for more than two decades, has had COVID five times, and now has Sarcoidosis in multiple parts of his body. Doctors face a special problem with him because he cannot allow his immune system to be too depressed, or he faces consequences even greater than sarcoidosis. Basim joins me to tell his story.Show Notes Basim's Reddit thread: https://www.reddit.com/r/NewToSarcoidosis/s/pmNebor2Ve Sarcoidosis News Ohio State Study:

55:59

Episode 151 | Dr. Thomas Leung is using skin research...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2025/11/17

What if the cause and a potential cure for sarcoidosis were hidden in plain view -- on your skin? According to research by Dr. Thomad Leung in Philadelphia, that might be the case. In this episode of the FSR Sarc Fighter podcast, Dr. Leung explains how his team of researchers is using the skin to investigate how the body sends a homing signal to cells that create damaging granulomas in any part of the body, including the lungs, heart, and nervous system. Listen in as Dr. Leung describes breaking

56:21

Episode 150 | Chris Cermak has hypercalcemia caused...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2025/11/04

We've talked about a lot of different ways sarcoidosis can affect the body. But this is the first time we've talked to a patient who has hypercalcemia -- where there is too much calcium in the blood. And yes, it can be caused by sarcoidosis. It's a story Chris Cermak is living with, even though his blood calcium reached dangerously high levels.Show notes: More from the FSR Gala: https://www.stopsarcoidosis.org/25-gala/ Sarcoidosis News Article:

34:30

Episode 149 | A look at Sarcoidosis from 20,000 feet...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2025/10/21

A lot of people find the podcast because they are trying to figure out what's going on in their bodies. They know they have sarcoidosis, but they don't know what it is, how serious it is, or whether it will get worse or maybe - go away. Then there's the question of multi-organ involvement. How common is it and which organs are most often impacted? In this episode of the FSR Sarc Fighter podcast, a look at a new report from Sarcoidosis News that takes a deep dive on many of those questions. Also

53:55

Episode 148 | The FMLA Clarification Part 2 - A real...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2025/10/06

It's not always easy to participate in a clinical trial. Even if you want to, how do you get the time off from work? Starting in 2025, thanks to the Foundation for Sarcoidosis Research, there is a provision called the FMLA Clarification, which essentially states that you can participate without fear of losing your job. In this episode of the FSR Sarc Fighter Podcast, Dr. Ennis James, a sarcoidosis researcher and physician at the Medical University of South Carolina, and Tricha Shivas, Chief of

68:58

Episode 147 | The FMLA Clarification -- Part 1...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2025/09/22

Let's say you or a family member wants to participate in a clinical trial, but the boss doesn't want you to have the time off because of extra visits to the doctor's office. Under new rules spearheaded by the Foundation for Sarcoidosis Research, companies must now allow patients time away from the job without fear of losing their employment. In this special edition of the FSR Sarc Fighter Podcast, FSR CEO Mary McGowan joins me, along with Emily Dickens, Chief of Staff, Head of Government Affairs,

30:23

Episode 146 | A solid dose of perspective and are...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2025/09/08

In this episode of the FSR Sarc Fighter Podcast, it's time to think. Borrowing some thoughts from a man who faced a possibly fatal brain condition, I look at how similar his case is to our own -- bearing in mind that he expresses his case so much better than most people can or could. Also, Sarcoidosis News is out with a study showing that Black Women are more likely to develop kidney stones than other groups. Show Notes Eric Markowitz's Essay:

01:06:26

Episode 145 | Scarlett is the youngest sarc patient yet

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2025/08/25

Scarlette Washlock was diagnosed with sarcoidosis when she was just 12 years old. Her mother, Kelly McBride, had to raise her daughter with all the anguish and uncertainties that come with Sarcoidosis, compounded by Scarlett's youth and her desire to stay active at school. Together they succeeded. Scarlette had a good high school experience and joins me on the podcast from her new freshman digs at Ohio State University, where she hopes a pre-med path is the one she can take. Listen in as

01:07:30

Episode 144 | Cathleen Terrano dances on despite...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2025/08/06

Cathleen Terrano has sarcoidosis. It's in her kidneys. In her heart. In her lungs. On her spinal cord. Other places too. And yet she has danced with some famous people and keeps on dancing and teaching dance to people who might otherwise miss out on life's precious moments -- like a father-daughter dance at a wedding. Cathleen rocks bright purple hair so people will ask her about it -- and open a pathway to talk about sarcoidosis. In this episode of the FSR Sarc fighter podcast hear

56:19

Episode 143 | Why Sarc patients MUST exercise and the...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2025/07/21

On Episode 143 of the FSR Sarc Fighter Podcast, I have two guests. Taylor Harwood, Senior Research Coordinator for FSR, joins me to explain the new and improved patient registry. Even if you've already registered, there is a small step you need to take to ensure researchers can find and use your valuable information. Also joining me is physical therapist Marion Paetznik, who will tell you why it's so important to get or stay moving if you have sarcoidosis. Show Notes FSR Patient Registry

01:03:51

Episode 142 | Dr. Courtney Montgomery is looking for...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2025/07/07

Dr. Courtney Montgomery wants to know what causes sarcoidosis. She's convinced it's in your genes. Working in the clinic at the Oklahoma Medical Research Foundation, she sees patients every week, while she studies the potential link between Sarcoidosis and a person's genetic code. In this episode of the FSR Sarc Fighter Podcast, she goes over the reasons she believes that certain people are more likely than others to develop this rare disease.Show Notes More on Dr. Courtney Montgomery:

38:53

Episode141| A tough patch for me and Royce Roberston...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2025/06/23

In this episode Royce Robertson joins me to talk about how he's raising money to make it easier for Sarcoidosis patients to travel to and from their appointments. It can be expensive to travel great distances to the right doctor, as he knows first-hand. Royce and I are also part of a panel discussion on exercise and sarcoidosis coming up at the FSR Summit on June 28. I will also share some personal details about a bit of a difficult time I'm experiencing at a personal level. #sarcoidosis

49:42

Episode 140 | Getting your questions answered at the...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2025/06/09

If there is one place to meet other sarcoidosis patients and to get your questions answered, from insurance denials to sex after sarc, it's at the 2025 FSR Global Virtual Sarcoidosis Summit. The Summit is happening on June 28th and 29th. And the deadline to sign up is June 14. Joining me on the show today are Elise Hoover, VP for Research at FSR, and Kristen Vargas, who is the Planning Lead for the event. Together, they will tell you everything you need to know and what to expect at this year's

46:25

Episode 139 | Dr. Sotonye Imadojemu talks about...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2025/05/26

In this Episode of the FSR Sarc Fighter Podcast Dr. Sotonye Imadojemu joins me to talk about sarcoidosis of the skin or cutaneous sarcoidosis. It's very common, but we don't always talk about it. sometimes it is it's own problem, and often it represents a hidden issue with sarcoidosis concerning additional organ involvement. Dr. I is an expert working in Boston at Brigham and Women's Hospital.Show Notes Sign up for the FSR Annual Summit on June 28, 29

01:10:10

Episode 138 | Katie Pantea had a hard time even...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2025/05/15

Katie Pantea has multi-organ involvement of sarcoidosis. But when it struck her nervous system, doctors struggled to diagnose her as she began to lose her memory of daily events. In this episode of the FSR Sarc Fighter Podcast, Katie talks about how she's been able to fight back and piece together events that initially she could not recall. It also helped that she is a nurse who lives near a sarcoidosis center that could give her the treatment she needed.Show Notes Sign up for the FSR Annual

01:01:20

Episode 137 | Dr. Brandon Moss of the Cleveland...

Sarc Fighter: Living with Sarcoidosis and other rare... ·

2025/04/28

In this Episode of the FSR Sarc Fighter podcast, Dr. Brandon Moss, Director of the Neuro Sarcoidosis Clinic at the Cleveland Clinic, talks about the unique challenges of neuro sarcoidosis. Dr. Moss also happens to be my doctor. I've told him he can use my situation as a case study for the sake of this discussion. So you may hear a lot about my spinal cord. Hey! It's all for the greater good. also in this episode, it's time to give to FSR. You can participate in a study by NORD -- dealing with

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Sarc Fighter: Living with Sarcoidosis and other rare diseases

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