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PODCAST

Help 4 HD Live!

Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington"s disease community on a weekly basis. Help 4 HD Live! broadcasts every week providing vital information and inspiration to our Huntington"s community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Katie Jackson each week for incredible programming and don’t forget to share

health & fitness health

All Episodes

00:34:00

HD Resources Review: Grief & Loss

Help 4 HD Live! ·

2024/12/19

Pay What You Can: www.paywhatyoucanpeersupport.com/faqs Alliance of Hope: www.allianceofhope.org or phone number is 847-868-3313 National Suicide Hotline: If you live in the US, contact the National Suicide Prevention Lifeline by calling 988 or texting “Hello” to 741741. Their website is www.988lifeline.org They also have a chat option and services for deaf/HoH For other countries, visit this website: www.allianceofhope.org/feeling-suicidal HDSA

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01:10:00

Hospice For End Of Life Care Explained

Help 4 HD Live! ·

2024/12/12

Erika (HD Reach) and Lauren (Help4HD Podcast) talk with Clinical Social Worker and Hospice Supervisor Shivani Borah about Hospice and the end-of-life process. We discuss medications, advanced directives, and the myths and misunderstandings surrounding Hospice care. Join us as we dive into a very difficult topic openly and honestly.The link to the webinar can be found here: https://www.youtube.com/watch?v=e1CxsZP5f8o

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00:38:00

HD Uncut: Days of Our Lives

Help 4 HD Live! ·

2024/12/05

HD Uncut: Days of Our Lives

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00:31:00

HD Resources Review: Help 4 the Holidays with Anna &...

Help 4 HD Live! ·

2024/11/28

The Help 4 HD Resource Database has a resource called mRelief, which is a nonprofit that helps you determine eligibility and sign up for SNAP and other supplemental programs by using a quick survey via text message. You can text the word “Food” to 74544 to complete the screening survey over text or visit their website at www.mrelief.com. www.hungerfreeamerica.org Full Cart, which is a national food assistance program available to individuals and families who are facing financial hardships and

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00:31:00

Update about Sage Therapeutics with Lauren Holder

Help 4 HD Live! ·

2024/11/21

Update about Sage Therapeutics with Lauren Holder

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00:17:00

HD Uncut: Right to Choose with Lauren Holder

Help 4 HD Live! ·

2024/11/07

If you'd like to check out the video, here's the link: https://youtu.be/NTiqiAeBMOw

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00:34:00

Rare Patient Voice with Wes Michael

Help 4 HD Live! ·

2024/10/24

Please visit the Rare Patient Voice website for more information, or reach out to Lauren Holder at lauren@help4hd.orgWES MICHAEL Founder and President, Rare Patient Voice Wes Michael founded Rare Patient Voice in 2013 to give patients and family caregivers the opportunity to voice their opinions through taking part in research studies. Rare Patient Voice has now recruited for thousands of studies and rewarded patients and family caregivers with over $13 million for their participation. Many

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01:16:00

Breaking Down Barriers: A Conversation Around Access...

Help 4 HD Live! ·

2024/10/17

Lauren Holder recently did a webinar with HDYO's Jenna Heilman, Prof. Hugh Rickards, and HDYO Ambassador Molly about breaking down barriers when it comes to access to a potential treatment. You can watch the full video here: https://www.youtube.com/watch?v=y6CrrVGfBTkBreaking Down Barriers is sponsored by Roche, Sage Therapeutics, Teva Pharmaceutical, uniQure, Wave Life Sciences, The Griffin Foundation, Neurocrine Biosciences and PTC Therapeutics.

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00:32:00

Our Lived Experience (Panel from Help 4 HD Symposium)

Help 4 HD Live! ·

2024/10/10

Our Lived Experience (Panel from Help 4 HD Symposium)

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00:35:00

Are You Prepared for a Disaster?

Help 4 HD Live! ·

2024/10/03

Helpful information on being prepared for a disaster: https://www.ready.gov/disabilityInformation about FEMA: https://www.disasterassistance.gov/ Here are some tips for people with disabilities to prepare for disasters: Make a plan Create a network of people who can help you in an emergency, and keep their contact information in a safe place. You can also consider giving a trusted person a key to your home. Prepare for evacuation Make sure your home's exits are wheelchair accessible, and

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00:29:00

HD Uncut: Thoughts from Strasbourg

Help 4 HD Live! ·

2024/09/19

HD Uncut: Thoughts from Strasbourg

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00:42:00

End of Life: The Caregiver Perspective, Part 2

Help 4 HD Live! ·

2024/09/05

End of Life: The Caregiver Perspective, Part 2

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00:24:00

UF Fixel Institute for HD Patients with Dr. Nick...

Help 4 HD Live! ·

2024/08/29

For more information about the UF Fixel Institute located in Gainesville, FL, please click here.

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00:23:00

HDYO Ambassador: Molly

Help 4 HD Live! ·

2024/08/08

HDYO Ambassador: Molly

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00:29:00

We are at War with HD

Help 4 HD Live! ·

2024/08/02

To read the blog post BJ Viau wrote, please click here

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00:52:00

HDYO Ambassador: Gemma

Help 4 HD Live! ·

2024/07/19

HDYO Ambassador Gemma

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00:47:00

HD Uncut: Being Gene-Positive & a Scientist

Help 4 HD Live! ·

2024/07/11

"Bri" joins me to discuss what it's like being gene-positive for HD and a scientist doing HD research.

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00:25:00

End of Life: The Caregiver Perspective

Help 4 HD Live! ·

2024/07/05

End of Life: The Caregiver Perspective

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00:25:00

Stronger Together

Help 4 HD Live! ·

2024/06/27

We are Stronger Together

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00:16:00

HDYO Ambassadors Series: Carly

Help 4 HD Live! ·

2024/06/20

Please contact Jenna Heilman if you're interested in learning more about the HDYO Ambassadors program.

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