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PODCAST

HypoPara Unscripted

hypoparaunscripted

HypoPara Unscripted brings together experts and patients for meaningful, honest, candid conversations about living with hypoparathroidism, a rare condition of the hypoparathyroid glands (4 tiny endocrine glands in the neck) which which make a hormone that regulates calcuim and phosphorus levels in the blood. From treatments and advances to real life challenges and resilience, the goal of this podcast is simple: to educate, empower and connect the hypopara community. Hosted by Patty Keating, patient

science life sciences

All Episodes

20:15

Biotech, Clinical Trials & the Patient Voice

HypoPara Unscripted ·

2026/09/30

In this episode of HypoPara Unscripted, Patty sits down for a gripping conversation with industry veteran Stewart Hallett to speak about the difference between biotech and big pharma. Thanks to his notable experience, Stewart reveals the complex journey of drug development, how clinical trials work, as well as the billions in cost and just how long it takes to successfully bring a drug to market. Stewart and Patty also uncover the undisputed importance of the patient voice as an integral part of the

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26:47

You’re Not Alone: Megan’s Journey with Hypopara

HypoPara Unscripted ·

2026/09/01

What happens when a surgery described as “routine” changes your life? For Megan, thyroid removal led to hypoparathyroidism and left her with severe hypocalcemia, exhaustion, anxiety, cognitive struggles and pain, not to mention years of trying to get doctors to understand what had happened to her.In this episode of Hypopara Unscripted, Megan gets real about the hardest parts of living with hypopara, including ER visits where no one seemed to know how to treat her, her struggle to continue to work,

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29:36

Debz: Being Rare in Ireland - a Journey of Hope and...

HypoPara Unscripted ·

2026/07/31

What if doctors told you the difficult symptoms you had been experiencing for 28 years was just…anxiety. Only to finally uncover that you were actually living with a rare, genetic, life-threatening disease?For years, Debz fought for answers while her body fought to survive. She endured countless hospitalizations, heartbreaking setbacks and still to this day lives with the constant fear that the treatment keeping her alive could be taken away at any moment. But somehow, through it all, Debz refuses

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23:20

More Than a Pharmacy; The Team Behind Your Treatment

HypoPara Unscripted ·

2026/06/30

What makes specialty pharmacy so special? In this episode of HypoPara Unscripted, Patty speaks with Katie Gillick, patient advocate at Orsini Specialty Pharmacy living with HypoPara, and pharmacist Michelle Hamblin to show us how they get the only FDA approved HypoPara treatment in the hands of patients. Together, Katie and Michelle tell us how specialty pharmacies are different from retail drug stores, including patient support, monitoring for side effects and working with insurance companies,

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23:48

Name It, Claim It, Tame It: Heather Novak’s HypoPara...

HypoPara Unscripted ·

2026/05/31

In honor of World Hypopara Day, Patty sits down with patient advocate and award-winning author Heather Novak for an inspiring conversation about finding purpose while living with the challenges of a rare disease. Heather shares her remarkable journey as a teenager with unexplained broken bones to a diagnosis of hyperparathyroidism, until after she had surgery, when she woke up with hypoparathyroidism.Heather opens up to Patty about how she was misunderstood for so many years. Medical professionals

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29:38

One Diagnosis, Three Lives, One Powerful Pivot

HypoPara Unscripted ·

2026/04/30

In this episode of Hypopara Unscripted, Patty welcomes a cast of characters; three inspiring women who share how hypoparathyroidism brought them together and changed their lives forever. If you have ever felt alone in your diagnosis, this episode is a reminder that through the power of friendship and connection you are not.From shocking diagnoses to a true sisterhood; Liz, Chrissy, and Lisa’s bond, love and support of each other have countered their worries, fears and challenges of living with

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27:48

More Than What the Labs Show - a Conversation with...

HypoPara Unscripted ·

2026/03/26

In this second episode of HypoPara Unscripted, Patty sits down with expert Dr. Rubin about all things hypopara. From the “SHINE” study (a research history examination of participating hypopara patients), to the real-life challenges patients live with every day, Dr. Rubin explains the effects hypopara has on bone health, brain fog, fatigue, and cognitive function. Join Patty and Dr. Rubin as she shares heartfelt advice about self advocacy, how you can still “not feel right” even though lab results

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23:01

Hope, Hormones and Hypopara: A Candid Conversation...

HypoPara Unscripted ·

2026/02/26

In this premiere episode of HypoPara Unscripted, your host Patty Keating, Executive Director of the Hypoparathyroidism Association as well as a post-surgical hypopara patient herself, talks with world-renowned endocrinologist Dr. Michael Mannstadt. Together, they uncover how hypoparathyroidism care has evolved, the breakthroughs in genetics, PTH therapy improvements and why validation and respect mean so much to hypopara patients. This honest, hopeful and compelling first episode of Hypopara

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8 results

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