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PODCAST

Beats by Social Work

Kristin and Tiffany

This podcast is intended for social workers that work in the field of transplant and/or LVAD. If you are a patient pursuing a transplant or LVAD or the caregiver of a patient, we welcome you here. Although we are transplant social workers we are not your transplant social workers. We hope topics discussed here may lead you to further discussions with your own transplant social worker. We want this to be a safe space to learn, be refueled, be heard, and feel understood. We want to challenge each

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All Episodes

38:19

Episode 23: Embracing Intimacy After Transplant: A...

Beats by Social Work ·

2023/11/08

In this episode, hosts Kristin and Tiffany delve into the taboo topic of sex, highlighting its significance in the lives of solid organ transplant recipients and LVAD patients. They stress the importance of normalizing conversations around intimacy, emphasizing its positive impact on emotional well-being and overall quality of life.Quote: Sex is both healthy and risky because sex connects us”. Matthias RobertsKey Points:Importance of Intimacy: Intimacy encompasses emotional, physical, and sexual

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34:37

Offbeat Episode 1

Beats by Social Work ·

2023/10/18

Today’s episode is one of our off-beat episodes, and we think it is one of our better ones. Kristin and Tiffany talk about their favorite topic… Being a Social Worker, the best and worst parts and all the between. Take a listen to this fun episode where Kristin surprises Tiffany with a different approach to the show flow. We also mention the Enneagram on today’s episode, we invite you to take the Enneagram quiz we included links below. Be on the lookout on our Instagram page as we plan to engage

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37:14

Episode 22: Emergency Preparedness

Beats by Social Work ·

2023/10/08

On today’s episode Tiffany and Kristin talk about the importance of emergency preparedness planning, especially for patients in: end stage organ failure, pre advanced therapies, post-transplant, and/or post implant. They share stories of their personal experiences helping patients through natural disasters while also navigating their own need. This episode includes resources and information based on their own experiences with natural disaster and accrediting boards. Quote: “when disaster strikes,

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43:13

Episode 21: Disenfranchised Grief

Beats by Social Work ·

2023/09/08

***This episode comes with a trigger warning. We discuss grief, loss, and death. If you are not in a place to listen we invite you to skip and tune in when you are ready or to our next episode ***Today Kristin and Tiffany talk about the heaviness of our work in transplant and LVAD; however really this can pertain to anyone that works with chronic illness, end stage organ failure, transplant and/or LVAD. We specially discuss disenfranchised grief: Ken Doka defines this as Losses that one experiences

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47:51

Episode 20: Assessing Medical History

Beats by Social Work ·

2023/07/31

of medical history from a psychosocial perspective. We dive into the why we look at medical history and how it ties into the psychosocial perspective. This ties into the transplant/lvad social work best practice of: Exploring the patient’s understanding of transplant process (Comprehension) and assessing for Self-Management with Medical Treatment (Compliance). We of course take some detours along the episode, but always find our way back on track. So buckle up and join us on today’s

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40:36

Episode 19: Psychosocial Intro to LVAD

Beats by Social Work ·

2023/07/20

In today's episode, we, Kristin and Tiffany, are diving into the world of Left Ventricular Assist Devices (LVADs). These innovative mechanical devices are designed to support individuals facing severe heart failure. LVADs assist the left ventricle, the heart's main pumping chamber, in efficiently circulating blood throughout the body. They can serve as a bridge-to-transplantation for patients awaiting a heart transplant or as a long-term treatment for those ineligible for transplant. By

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27:10

Episode 18: Biomatrix Interview

Beats by Social Work ·

2023/06/14

Join Tiffany and Kristin with exciting guest, Lisa Yoder from Biomatrix Specialty Pharmacy. "BioMatrix Specialty Pharmacy offers comprehensive nationwide specialty pharmacy services and digital health technology solutions for a range of chronic health conditions. Our growing family of companies unites leaders in the specialty pharmacy industry to improve health and empower patients to experience a higher quality of life."Lisa has worked within the transplant and LVAD community for many years

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45:30

Episode 17: Transplant Recipient Series with special...

Beats by Social Work ·

2023/05/26

This episode is dedicated to Liz On today’s episode Kristin and Tiffany get to chat with Murphy Swiedals (though in the medical community she is known as Murphy Stidham) as she openly shares her journey through transplant. Murphy received a double lung transplant when she was 24 after being diagnosed with COPA Syndrome at the age of 2. COPA (an inherited mutation in the coatomer subunit alpha gene) is a rare genetic autoimmune disorder that can affect multiple systems of the body, especially the

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33:19

Episode 16: Transplant Recipient Series with special...

Beats by Social Work ·

2023/05/12

Alisha Hiebert, Liver Recipient and Transplant Lyfe Community Manager joins Tiffany and Kristin as special guest to talk about her experience receiving a Liver transplant and what life has looked like since her transplant. Today a fun fact instead of a quote: You are 6x more likely to need an organ transplant than to become a deceased organ donor American Journal of Transplant “Lifetime probabilities of needing an organ transplant versus donating an organ after death; Shemie SD, Hornby L, Chandler

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40:37

Episode 15 National Donate Life Month: Interview with...

Beats by Social Work ·

2023/04/30

On today’s episode Tiffany and Kristin get the opportunity to chat with President and CEO of Donate Life America- David Fleming. We talk about the history of Donate Life America, the current state of DLA, and the goals for the future. We also learn more about the Donate Life Logo and symbolism.Over the past 30 years, Donate Life America has driven the efforts to increase organ, eye and tissue donation – both publicly and within the professional donation and transplantation community. Through wisdom

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61:37

Episode 14: The Domino Effect of Transplant

Beats by Social Work ·

2023/04/14

Trigger warning: this episode is raw and talks about loss and grief, if you are not in a place to hear that we understand and give you a moment to turn this episode off.We always say we all got into transplant in one way or another and usually there is a personal story associated with it and we as your hosts are no different. So today’s episode we are we are going to switch things up a little bit. Kristin chats with cohost Tiffany and Alex, former transplant social worker as they share their story

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30:38

Episode 13: Finances and Transplant Series: COTA

Beats by Social Work ·

2023/04/10

On today’s episode Kristin and Tiffany chat with the President and CEO of Children’s Organ Transplant Association, Rick Lofgren. Rick talks about his over 24 years of stories working within the transplant community. As promised our goal is to humanize the world of transplant/LVAD from a social work perspective as well as provide resources and education. Take a listen to learn more about this organization. Below is general link for COTA as well as resources for transplant professionals. Childrens

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35:29

Episode 12: Finances and Transplant Series: Help Hope...

Beats by Social Work ·

2023/04/06

Join Kristin and Tiffany with special guest Kate Lacouture, Outreach Representative with Help Hope Live.Kate is one of the many wonderful contacts at Help Hope Live that help families and social workers in the transplant community. She likes hiking, running, skiing, the beach, concerts, watching the NY Jets and Philadelphia Eagles every Sunday, and spending time with my family and friends. She is quoted by Help Hope Live to say, "I am grateful for the opportunity to educate people about the

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18:38

Episode 11: Finance Series: National Foundation for...

Beats by Social Work ·

2023/03/27

On today’s episode Kristin and Tiffany are excited to chat with Ben Jabbour is a lawyer turned bilingual fundraising consultant for National Foundation for Transplant (NFT). Ben shares his passion for the advocating for the Hispanic population as well as tips and tricks related to transplant fundraising. Take a listen to learn more about this organization. Below is a link to their website to learn more.National Foundation for Transplant: Home ~ National Foundation for Transplants Check out our

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70:19

Episode 10: Facing Stigma and Chronic Illness:...

Beats by Social Work ·

2023/03/21

On today’s episode Kristin and Tiffany are excited to chat with José Ramirez, Jr. and Magdalena Jr. on Hansen's Disease and the impact of facing the stigmatizing nature of disease and chronic illness. Jose and Magdalena are husband and wife but also both social workers who have dedicated their lives to the social work profession and advocating for the chronically ill. We could not think of anyone better to interview in honor of International Social Work Day!José Ramirez, Jr. is a LCSW who also

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40:36

Episode 9.3 Part Two of Family Systems Theory

Beats by Social Work ·

2023/02/27

On today’s episode Tiffany and Kristin continue their discussion on Family System’s Theory as it relates to the world of transplant and LVAD social worker.This is the second part of a multi-part series diving into the importance of exploring the patient’s family history and the impact it may have on patient present day. In this episode we continue to unpack Bowen’s Family Systems Theory.“Deep inside us we know what every family therapist knows; the problems between the parents become the problems

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48:41

Episode 9.2: Family Systems Guest Speaker: Wonders...

Beats by Social Work ·

2023/02/25

In today’s episode Kristin and Tiffany had fun chatting with Danielle Coleman and Kim Fryar, two Certified Child Life Specialists from Wonders and Worries. Wonders & Worries provides free, professional support for children and teenagers through a parent’s serious illness, so that they can reach their full potential. Their experts provide the foundation children and teenagers need to reach their full potential even though their parent is ill. Through individual and group therapy sessions, kids

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35:07

Episode 9.1: Family Systems Theory and Transplant/LVAD

Beats by Social Work ·

2023/02/17

Join Kristin and Tiffany as they discuss a classic social work theory: Family Systems Theory and how it is incorporated into the world of transplant/LVAD social work.This will be part one of a multi-part series diving into why transplant and LVAD social workers assess and explore the family of a patient and introduce its important to overall health and wellbeing by incorporating the entire family.Be sure to check out Beats by Social Work's website: https://beatsbysw.onpodium.com for additional

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48:39

Episode 8: Advocacy, Bias and Health Literacy with...

Beats by Social Work ·

2023/01/20

Join us as we interview Nikki Montgomery, Executive Director of Madvocator Educational and Healthcare Advocacy Training. We discuss bias, advocacy and health literacy in the hospital setting. “Sometimes you have to get a little mad to change the world.” – Nikki Montgomery This interview does count as credit for credentialing through The Society of Transplant Social Workers (STSW) for your CCTSW credentials. Please complete the survey found at https://www.surveymonkey.com/r/WS69FZM to complete your

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36:37

Episode 7: Advocacy

Beats by Social Work ·

2022/12/20

Join Kristin and Tiffany in an off beat episode on advocacy and social work in the world of transplant and LVAD. Be sure to take a look at our website / blog post for additional resources and links mentioned in today's episode. Website: https://beatsbysw.onpodium.com/ Instagram: @beatsbyswpodcast Email: beatsbysw@gmail.comDisclaimer: The information shared on this podcast is for informational and/or entertainment purposes only and is HIPPA compliant. The information shared on this podcast comes

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