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PODCAST

Bendy Bodies with Dr. Linda Bluestein

Dr. Linda Bluestein

Whether you’re bendy with all the benefits or hurting in all the wrong places, you’ve come to the right place for all things hypermobility. Connective tissue disorders like Ehlers-Danlos Syndromes (EDS) are often dismissed or overlooked by healthcare providers as a cause of chronic pain. But if you or someone you care about struggles with the life-altering symptoms of hypermobility, you should know YOU ARE NOT ALONE! At the Bendy Bodies Podcast, we understand. Each week, join Dr. Linda Bluestein

health & fitness medicine

All Episodes

76:38

What to Treat First When Everything Is Flaring with...

Bendy Bodies with Dr. Linda Bluestein ·

2026/03/05

There is no magic treatment for Ehlers-Danlos Syndrome, POTS, or mast cell activation disorders, but there is strategy. In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dacre Knight, MD, founding Medical Director of the UVA Health EDS and Hypermobility Disorders Center, for a practical and deeply thoughtful conversation about how complex chronic conditions should actually be treated.Rather than chasing quick fixes, Dr. Bluestein and Dr. Knight explore sequencing. What to address

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63:05

When POTS Isn’t the Whole Story: What Doctors Often...

Bendy Bodies with Dr. Linda Bluestein ·

2026/02/26

POTS is a real diagnosis, but it isn’t always the whole story. In this episode of Bendy Bodies, Dr. Linda Bluestein takes a deep dive into POTS imitators: conditions that can mimic, worsen, or coexist with postural orthostatic tachycardia syndrome and quietly derail treatment progress. Inspired by listener questions and real-world clinical patterns, the episode explores why some people do “everything right” for POTS and still don’t improve.The conversation breaks down overlooked contributors like

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67:45

Why Doctors Miss EDS, POTS, and MCAS with Dr. Dacre...

Bendy Bodies with Dr. Linda Bluestein ·

2026/02/19

Why are people with Ehlers-Danlos syndromes, POTS, and mast cell disorders so frequently misdiagnosed, or dismissed entirely? In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dr. Dacre Knight, Medical Director of the UVA Health EDS and Hypermobility Disorders Center, for a wide-ranging conversation about why complex, multisystem conditions continue to fall through the cracks of modern medicine. Together, they explore how siloed healthcare systems, time-limited visits, and

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55:29

Pelvic Pain in EDS: What Doctors Miss and Why It...

Bendy Bodies with Dr. Linda Bluestein ·

2026/02/12

Pelvic pain, bladder symptoms, and sexual health concerns are incredibly common in people with Ehlers-Danlos Syndromes, yet they’re often misunderstood, dismissed, or treated in isolation.In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dr. Rachel Rubin, a board-certified urologist and nationally recognized leader in sexual medicine, to unpack why connective tissue disorders, mast cell activation, dysautonomia, and hormonal shifts so often collide in the pelvis. Together, they

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71:48

The Biggest Mistake in EDS Care and How to Fix It...

Bendy Bodies with Dr. Linda Bluestein ·

2026/02/05

What would it look like if people with Ehlers-Danlos Syndrome finally had a true medical home?In this episode of Bendy Bodies, Dr. Linda Bluestein is joined by Dr. Ina Stephens and Dr. Dacre Knight to share the story behind the newly launched University of Virginia Ehlers-Danlos Syndrome Center, how it came to be, why it was urgently needed, and what makes it fundamentally different from traditional models of care. The conversation explores the power of integrative, multidisciplinary care,

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93:15

Mast Cell Activation Syndrome: The Diagnosis Most...

Bendy Bodies with Dr. Linda Bluestein ·

2026/01/29

Mast Cell Activation Syndrome is one of the most misunderstood, and underrecognized, conditions in modern medicine. In this episode, Dr. Linda Bluestein is joined by Dr. Lawrence Afrin, one of the world’s leading experts on mast cell disease, to unpack why MCAS is so often missed, why tryptase alone is not enough to diagnose it, and how this condition may be driving chronic inflammation, neurologic symptoms, psychiatric symptoms, and even hypermobile Ehlers-Danlos Syndrome (hEDS) in some

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80:10

When Eye Exams Miss the Real Problem in EDS with Dr....

Bendy Bodies with Dr. Linda Bluestein ·

2026/01/22

In this episode, Dr. Linda Bluestein is joined by Dr. Eric Singman, a neuro-ophthalmologist who lives at the intersection of the eyes, the brain, and the complex symptoms so many people with Ehlers-Danlos Syndrome experience. They dig into why EDS patients often struggle with vision even when everything looks “normal,” why convergence problems and visual fatigue are so common, and how conditions like POTS, mast cell activation, Chiari malformation, and cervical instability quietly affect how we

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78:50

Chronic Pain, Focus, and the Brain Shift Psychedelics...

Bendy Bodies with Dr. Linda Bluestein ·

2026/01/15

In this expansive and deeply affirming conversation, Linda Bluestein and Shimi Kang explore a powerful idea: true healing comes from connection, not control—especially when living with chronic pain, nervous system dysregulation, or complex, overlapping conditions.They unpack the neuroscience of emotional regulation and why chronic pain so often disrupts attention, focus, and cognitive flexibility—issues frequently labeled as “brain fog” or misattributed solely to mood or motivation. The discussion

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74:36

What If It’s Not IBS or Anxiety? A Vascular Surgeon...

Bendy Bodies with Dr. Linda Bluestein ·

2026/01/08

What if your chronic pain, bloating, or fatigue wasn’t in your head, but in your blood vessels? In this episode, Dr. Linda Bluestein sits down with vascular surgeon Dr. Robert Hacker, who’s on the front lines of diagnosing and treating complex conditions like MALS (Median Arcuate Ligament Syndrome), Nutcracker Syndrome, May-Thurner Syndrome, and pelvic venous congestion syndrome, conditions that disproportionately affect women and often go undiagnosed for years.Together, they dive into the

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47:22

Rectal Prolapse, Dyscalculia & Dyspraxia: The...

Bendy Bodies with Dr. Linda Bluestein ·

2025/12/30

In this Office Hours episode, Dr. Linda Bluestein tackles some of the most challenging questions from our listeners and dive deep into the overlooked intersections of hypermobility, surgical complications, and neurodiversity. What happens when five rectal prolapse surgeries fail? Dr. Bluestein breaks down why so many surgical interventions fall short for people with hypermobile Ehlers-Danlos Syndrome (hEDS) and what you must consider before your next procedure, including essential imaging,

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66:12

The Roadmap That Could Change EDS Forever with Lara...

Bendy Bodies with Dr. Linda Bluestein ·

2025/12/23

In this episode, Dr. Linda Bluestein sits down with Lara Bloom, President and CEO of The Ehlers-Danlos Society, for a revealing look behind the curtain of the Society’s ambitious global roadmap to 2026. What will it take to finally change the trajectory for people with EDS (Ehlers-Danlos Syndromes) and HSD (Hypermobility Spectrum Disorders)? Why have progress and awareness lagged for so long? And what is happening right now around the world that could shift everything?Together, they unpack the

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71:29

POTS Revisited: Embolization, GLP-1 & Daily...

Bendy Bodies with Dr. Linda Bluestein ·

2025/12/18

In this info-packed episode, Dr. Linda Bluestein sits down with cardiologist Dr. Alexis Cutchins, an expert in pelvic venous disease (PVD) and POTS (postural orthostatic tachycardia syndrome), to tackle one of the most misunderstood vascular conditions in complex patients. From treatment options and expected outcomes to what really happens after embolization procedures, they unpack the physiology and the myths. Plus, they dive into GLP-1 medications like semaglutide and tirzepatide, long COVID

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49:26

What No One Tells You About Pregnancy with EDS |...

Bendy Bodies with Dr. Linda Bluestein ·

2025/12/11

Think EDS and pregnancy is a straightforward conversation? Think again. In this jam-packed Office Hours episode, I dig into everything I wish someone had told me and everything I’ve since learned from patients, research, and my own pregnancies. From racing heart rates and failed epidurals to postpartum complications and misunderstood mental health shifts, we’re laying it all out. We explore rapid labor, prolapse risk, anesthetic resistance, dysautonomia flares, pelvic floor fragility, and why some

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77:41

Why Are So Many People Misdiagnosed With TMJ...

Bendy Bodies with Dr. Linda Bluestein ·

2025/12/04

In this episode, Dr. Linda Bluestein is joined by Professor Tara Renton, a globally recognized expert in orofacial pain, to explore the nuanced world of facial pain, temporomandibular joint (TMJ) dysfunction, and migraine disorders. Together, they unpack why so many patients suffer from persistent facial, jaw, or head pain despite “normal” scans and what magnetic resonance neurography (MRN) can reveal that traditional imaging might miss. They also dig into local anesthetic reactions, the limitations

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75:37

The Truth About Ballet Bodies with ABTs Skylar Brandt

Bendy Bodies with Dr. Linda Bluestein ·

2025/11/25

In this raw and uncompromising conversation, Dr. Linda Bluestein and co-host Jennifer Milner sit down with Skylar Brandt, principal dancer with American Ballet Theatre, for a gripping look at what it truly takes to perform at the highest level. Skylar pulls back the curtain on the physical and psychological demands of elite ballet—the toll it takes, the constant adaptations required to avoid breakdown, and the pressure of sustaining a career where your body, your art, and your livelihood are

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41:35

From Nitrous to Nerves: MTHFR, CRPS & Cervical...

Bendy Bodies with Dr. Linda Bluestein ·

2025/11/20

In this solo episode, Dr. Linda Bluestein brings on her producers to help unpack the hidden complications that can follow seemingly routine medical procedures. From the lingering effects of breast surgery to the controversial use of nitrous oxide, Dr. Bluestein explores how standard treatments can backfire, especially for patients with EDS, MCAS, or complex regional pain syndrome (CRPS). She also dives into the surprising risks of cervical collars, and why something that feels stabilizing may

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40:15

When Surgery Isn’t Simple: What hEDS Patients Should...

Bendy Bodies with Dr. Linda Bluestein ·

2025/11/13

In this solo episode, Dr. Linda Bluestein brings on her producers to ask your most pressing questions about what it’s really like to live with and treat Ehlers-Danlos Syndromes (EDS) and Mast Cell Activation Syndrome (MCAS). From the pitfalls of internet misinformation to the hidden ways MCAS impacts medication tolerance, Dr. Bluestein shares her unique perspective as both a physician and a patient. With honesty and a touch of humor, she tackles everything from her least favorite diagnosis to how

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72:17

Could Psychiatric Symptoms Be Hiding a Physical...

Bendy Bodies with Dr. Linda Bluestein ·

2025/11/06

In this eye-opening conversation, Dr. Linda Bluestein sits down with psychiatrist Dr. Janet Settle to unpack the medical mystery that is mast cell activation syndrome (MCAS) and why it may be hiding in plain sight as depression, anxiety, panic attacks, or even psychosis. Together, they explore how immune system dysregulation can masquerade as psychiatric illness, and why so many patients are misdiagnosed, medicated, and misunderstood. With deep expertise in trauma-informed psychiatry, Dr. Settle

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81:36

From Palliative Care to Purpose: The Tilly Rose Story...

Bendy Bodies with Dr. Linda Bluestein ·

2025/10/30

In this emotionally charged episode, Dr. Linda Bluestein talks with Tilly Rose, the founder of That Oxford Girl and the author of Be Patient, about what it’s like to face palliative care as a young adult and come out the other side fighting for change. They explore how Tilly transformed her private pain into public advocacy, why chronic illness is so often misunderstood in young people, and what happens when you rewrite your identity in the face of a diagnosis. This is a story of resilience,

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53:39

The Diagnosis Hiding In Your Pelvis with Dr. Alexis...

Bendy Bodies with Dr. Linda Bluestein ·

2025/10/23

In this eye-opening episode, Dr. Linda Bluestein speaks with Dr. Alexis Cutchins, a cardiologist passionate about uncovering missed and misunderstood diagnoses. One of those? Pelvic Venous Disease, a condition affecting countless patients but rarely identified. They explore how PVD can mimic or exacerbate conditions like dysautonomia, MCAS, and chronic pelvic pain and how many patients are left cycling through specialists without answers. From diagnostic challenges to emerging treatments, this

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