x

75% of people globally want unbiased news (Pew Research) but are concerned they're not getting that.

Get balanced coverage with Symby. See how stories are covered across diverse outlets and spot when one side covers a story the other skips.

PODCAST

Rare Mamas Rising: A Rare Disease Mom Podcast

Rare Mamas Rising is a podcast for mothers of children with rare diseases to find strategies, strength, support, and sisterhood! Hosted by Nikki McIntosh, founder of Rare Mamas, author of the book Rare Mamas: Empowering Strategies for Navigating Your Child"s Rare Disease, and a rare mom herself, each episode offers heartfelt reflections, practical tools, and empowering strategies to help you rise to the call of rare disease parenting. Catch an episode of Rare Mamas Rising and walk away encouraged,

kids & family parenting

All Episodes

17:56

Hoping Through the Holidays

Rare Mamas Rising: A Rare Disease Mom Podcast ·

2025/12/08

RARE MAMAS RISING- EPISODE 54 Hoping Through the Holidays Christmas is the season of hope. But hope can be complicated for rare disease parents navigating exhaustion, medical uncertainty, chronic stress, and the ache of unanswered prayers. In this episode of Rare Mamas Rising, we explore what hope really looks like for rare disease parents and caregivers during a season that can feel both beautiful and painfully complicated. This episode gently unpacks the realities of hoping in the hard:

en

19:39

Rhythms of Rising and Recovering

Rare Mamas Rising: A Rare Disease Mom Podcast ·

2025/10/29

RARE MAMAS RISING- EPISODE 53 Rhythms of Rising and Recovering As rare mamas, we're no strangers to effort. We plan, advocate, and persevere through every season. The calm seasons are fleeting, the storms arrive unannounced, and balance often feels impossible. So maybe it's time to stop waiting for life to slow down, and instead, learn to build recovery into the cracks and spaces of our real lives. In this episode, Nikki explores what it means to rest between the rising, to create a rhythm of

en

19:29

Rare Mamas Book Release Day + A Special Reading from...

Rare Mamas Rising: A Rare Disease Mom Podcast ·

2025/09/23

RARE MAMAS RISING- EPISODE 52 Rare Mamas Book Release + A Special Reading from the Introduction Today is the day! Nikki’s new book, Rare Mamas: Empowering Strategies for Navigating Your Child’s Rare Disease, is officially here. In this very special episode, Nikki celebrates release day by sharing the heartfelt introduction, giving you a first look at the hope, strength, and sisterhood at the heart of Rare Mamas. This book is a lifeline for rare moms, rare disease parents, and caregivers who are

en

19:42

The Making of Rare Mamas: Reflections on Writing and ...

Rare Mamas Rising: A Rare Disease Mom Podcast ·

2025/08/25

RARE MAMAS RISING- EPISODE 51 The Making of Rare Mamas: Reflections on Writing and Rare Parenting In this episode of Rare Mamas Rising, host Nikki takes listeners behind the pages of her upcoming book, Rare Mamas, to share how the writing journey mirrored the rare parenting journey in powerful and unexpected ways. Through honest storytelling, she unpacks the highs, the lows, and the lessons that connect directly to life as a rare mama. She covers: · The hardest and easiest chapters to

en

10:53

Introducing Rare Mamas: A Rare Disease Parenting Book...

Rare Mamas Rising: A Rare Disease Mom Podcast ·

2025/07/23

RARE MAMAS RISING- EPISODE 50 Introducing Rare Mamas: A Rare Disease Parenting Book by Nikki McIntosh Nikki McIntosh—rare disease mom, advocate, caregiver, and founder of Rare Mamas—shares her biggest news yet: the upcoming release of her debut book, Rare Mamas: Empowering Strategies for Navigating Your Child’s Rare Disease, launching September 23rd. This heartfelt and practical rare disease parenting book is written for mothers of children with rare diseases who are navigating the overwhelming

en

16:45

Holding On To Our Identity

Rare Mamas Rising: A Rare Disease Mom Podcast ·

2025/05/08

RARE MAMAS RISING- EPISODE 49 Holding On To Our Identity with Rare Mama Nikki McIntosh In this empowering Mother’s Day episode of Rare Mamas Rising, host Nikki invites listeners into a raw, tender conversation about what it means to hold on to your identity while parenting a child with a rare disease. From personal reflections to stories from fellow rare moms, this episode explores the invisible shifts in identity and small but powerful ways to reconnect with who you are. Because this Mother’s

en

16:27

Spring Cleaning - Letting Go of Things that No Longer...

Rare Mamas Rising: A Rare Disease Mom Podcast ·

2025/04/10

RARE MAMAS RISING- EPISODE 48 Spring Cleaning: Letting Go of Things That No Longer Serve Us with Rare Mama Nikki McIntosh In this uplifting episode of Rare Mamas Rising, Nikki invites you to embrace spring’s renewal by letting go of what no longer serves you—draining digital habits, old stress loops, unhelpful routines, and even relationships or thoughts that weigh you down. With personal insights and actionable steps, she guides Rare Mamas through clearing the clutter—mental, emotional, and

en

12:07

EP 47 - Tackling Therapy Burnout

Rare Mamas Rising: A Rare Disease Mom Podcast ·

2025/03/20

RARE MAMAS RISING- EPISODE 47 Tackling Therapy Burnout with Rare Mama Nikki McIntosh In this episode, Nikki dives into the all-too-real challenge of therapy burnout—when the endless cycle of PT, OT, and more leaves both Rare Mamas and their kids feeling overwhelmed. Explore how to spot the signs of burnout, practical ways to lighten the load with help from therapists, and when to hit pause for a much-needed reset. It's all about staying attuned to our kids’ and our own emotional well-being,

en

14:06

Sharing Our Stories to Create Change

Rare Mamas Rising: A Rare Disease Mom Podcast ·

2025/02/12

RARE MAMAS RISING- EPISODE 46 Sharing Our Stories to Create Change In this special Rare Disease Day episode of Rare Mamas Rising, host Nikki McIntosh explores the power of storytelling in the rare disease community. She shares why speaking up—whether through advocacy, education, or personal connection—can drive awareness, inspire action, and create lasting change. From helping newly diagnosed families feel less alone to influencing policies that improve care, our voices matter more than

en

20:46

Episode 45 - Building Endurance in the New Year

Rare Mamas Rising: A Rare Disease Mom Podcast ·

2025/01/15

RARE MAMAS RISING- EPISODE 45 Building Endurance for the New Year In this episode of Rare Mamas Rising, we’re diving into strategies behind building endurance for the year ahead. From balancing effort with recovery and planning for moments of rejuvenation, this episode is packed with practical tips to help you avoid burnout and sustain your energy. We explore how to align your actions with your capacity, the importance of creating a rhythm of effort and restoration, and why saying no is

en

11:58

Holidaying Your Way

Rare Mamas Rising: A Rare Disease Mom Podcast ·

2024/12/04

RARE MAMAS RISING- EPISODE 44 Holidaying Your Way with Rare Mama Nikki McIntosh The holiday season can feel overwhelming for families raising children with rare diseases, but it doesn’t have to be. In this episode, we explore how to create meaningful traditions and plans that work for your unique family. From letting go of guilt and unrealistic expectations to finding simple, joyful ways to connect, this episode is packed with practical tips and ideas for savoring the season. Discover how to

en

13:59

Growing Our Gratitude

Rare Mamas Rising: A Rare Disease Mom Podcast ·

2024/11/20

RARE MAMAS RISING- EPISODE 43 Growing Our Gratitude with Rare Mama Nikki McIntosh This Thanksgiving, join us to explore the powerful impact gratitude can have on our rare journeys. We’ll dive into how simple acts of thanks can elevate our spirits, strengthen our health, and deepen our relationships with the incredible providers who support us every day. We’ll uncover the science behind gratitude’s high-vibrational energy and share practical ways to honor the people who make a difference in our

en

10:46

Adapting Halloween Traditions

Rare Mamas Rising: A Rare Disease Mom Podcast ·

2024/10/24

RARE MAMAS RISING- EPISODE 42 In this special Halloween episode of Rare Mamas Rising, we explore how to make Halloween fun, inclusive, and accessible for children with rare diseases. Nikki shares personal stories and practical tips, including creative trick-or-treating alternatives, sensory-friendly activities, and adaptive costume ideas. Whether your child uses a wheelchair, has sensory sensitivities, or faces other challenges, this episode offers ideas to help you celebrate the spooky season in

en

45:15

Loving With Every Breath with Breath Taking Author...

Rare Mamas Rising: A Rare Disease Mom Podcast ·

2024/09/18

RARE MAMAS RISING- EPISODE 41 Loving with Every Breath with Breath Taking Author Jessica Fein Jessica Fein is the author of Breath Taking: A Memoir of Family, Dreams, and Broken Genes and host of the "I Don't Know How You Do It” podcast, which features people whose lives seem unimaginable and who triumph over seemingly impossible challenges. Her writing has appeared in Newsweek, Psychology Today, The Boston Globe, HuffPost, Scary Mommy, Zibby Mag, Kveller, and more. Jessica is a relentless

en

20:49

Preparing for a Planned Hospital Stay

Rare Mamas Rising: A Rare Disease Mom Podcast ·

2024/08/07

RARE MAMAS RISING- EPISODE 40 Preparing for a Planned Hospital Stay with Rare Mama Nikki McIntosh In this episode of Rare Mamas Rising, host Nikki dives into the vital preparations for managing your child’s upcoming surgery or medical procedure. Nikki, sharing from her own experience with her son Miles, offers a comprehensive guide to help you navigate the emotional and logistical challenges of hospital stays. From educating yourself and organizing support to practical tips for during and after

en

40:42

Blazing Trails to Cure and Care with The Charlotte...

Rare Mamas Rising: A Rare Disease Mom Podcast ·

2024/07/03

RARE MAMAS RISING- EPISODE 39 Blazing Trails to Cure and Care with The Charlotte and Gwenyth Gray Foundation to Cure Batten Disease Founder Kristen Gray Kristen Gray is an extraordinary mom of four incredible children: Charlotte, Gwenyth, Callan, and Gavin. From the moment her eldest two, Charlotte and Gwenyth, were diagnosed with Batten Disease, she embarked on a courageous journey blazing trails in rare disease advocacy. She founded The Charlotte & Gwenyth Gray Foundation to Cure Batten

en

13:32

Mother’s Day Episode: On Bonding and Being There

Rare Mamas Rising: A Rare Disease Mom Podcast ·

2024/05/08

RARE MAMAS RISING- EPISODE 38 Mother’s Day Episode: On Bonding & Being There with Rare Mama Nikki McIntosh Join host Nikki on a heartfelt journey of motherhood in a special Mother's Day episode. From grand visions of bonding through shared interests to the reality of simply being present through life's challenges, Nikki shares personal anecdotes and insights that illuminate the essence of maternal love and resilience. Reflecting on her own experiences with her sons and the impact of rare diseases

en

44:08

Paying It Forward with TSC Alliance Director of...

Rare Mamas Rising: A Rare Disease Mom Podcast ·

2024/03/13

Shelly Meitzler is the Director of Community Support & Outreach at TSC Alliance, an internationally recognized nonprofit dedicated to Tuberous Sclerosis Complex (TSC), a rare genetic disorder causing tumors in various organs. With a personal journey spanning over two decades, Shelly's dedication stems from her own family's experience with TSC. As a parent of two children with TSC, Ashlin, and Mason, as well as daughter Mikenna, Shelly draws from her firsthand experience to offer invaluable insight

en

17:04

Transforming Love Into Advocacy

Rare Mamas Rising: A Rare Disease Mom Podcast ·

2024/02/14

RARE MAMAS RISING- EPISODE 36 Transforming Love Into Advocacy with Rare Mama Nikki McIntosh In honor of Rare Disease Day, we explore how a mother’s love transforms into impactful advocacy, empowering us to conquer challenges and ignite change. In this episode, discover the passionate spirit that fuels our fight and learn practical tips for channeling love into action. Don’t miss this episode as you gear up for advocating on Rare Disease Day and throughout the year! LINKS & RESOURCES MENTIONED

en

18:41

Charting the Unknown - Navigating the New Year Amid...

Rare Mamas Rising: A Rare Disease Mom Podcast ·

2024/01/17

RARE MAMAS RISING- EPISODE 35 Charting the Unknown: Navigating the New Year Amid Uncertainty with Rare Mama Nikki McIntosh The beginning of a new year provides a prime opportunity to establish goals, set intentions, and chart a course for the months ahead. However, the unpredictability of rare diseases can derail even the most thought-out plans. Navigating this delicate balance between planning and flexibility is a challenge. Join Nikki in this episode as she delves into strategies for navigating

en

55 results

Similar Podcasts

Tale Teller Kids™

Sarnia de la Mare

米克馬故事坊

咪萊

Imagination Station

Imagination Station

Die Pferde sind nicht das Problem - und du bist nicht zu blöd. Der Aha-Podcast für Pferdemenschen

Silke Jahn & Maren Diehl

Hanna fragt Papa - Der Podcast für neugierige Kinder und Eltern

Hanna und Thomas Schamberger